Thursday, February 26, 2009

[epilepsy] Hi people. I think I may have joined the wrong group.

My name is Jon. I started having seizures 3 years ago (have to ask my wife because I forget
information). I'm 43 now and have no childhood record of seizures. My first seizure was a
grand mal in the middle of the night. I ended up throwing myself from the bed onto the floor
between the wall and bed. When the EMTs arrived I was still seizing. I've been on Dilantin
since that day. The grand mal's have mostly subsided and have been replaced by absence
type seizures. This of course happens mostly when I forget to take one 100mg pill on time
(6am, 2pm, 10pm). Every MRI I've had come up clear. No tumors or abnormaliies. This last
seizure I had was on my wifes and I's way home from the movies one night (I asked her to
drive cuz I was feeling "seizurely" and dammit it I really wanted to see "Taken" and remember
it! dammit!) anyway, the doctors took blood and noticed my potassium level was REALLY low.
Has anyone else had this side effect with Dilantin?
The doctors seem to think that the fact that I've been in 2 auto accidents that I ended up
cracking the windshield with my head and one moped accident where I opened the ground
with the same head, are a cause of the seizures. (scar tissue, calcium buildup etc.) but nothin
shows up on the MRI.
Anyway, is this where I belong? Does anyone else suffer from adult onset seizures? I feel so
alone sometimes. My wife is here for me but she doesnt know what I go through. The loss of
appetite after a seizure, the strange taste in my mouth. The loss of all control. I have to stop,
I'll make myself cry again.

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