May I ask how u found that ur seizures were from a head injury as a child?
And that u just possibly were not born like that?
Thanks
Uggie
-------Original Message-----
From: uniquepnk tds.net
Date: 2/27/2009 5:45:41 PM
To: epilepsy@yahoogroup
Subject: Re: [epilepsy] New Here...Introduction & Questio
Robert,
I don't know if I said welcome to you or not, but welcome just the same.I
have seizures in the same place, but mine are from a head injury when I was
a baby. It is wonderful that you are able to stop the seizures from
occurring. Sometimes I know and can tell somebdoy they are going to happen,
but that is about it. I know you have a lot to deal with still. The
medications and all. Take care.
Tammy
On Thu, Feb 26, 2009 at 10:52 PM, Robert Shaffer <robert_shaffer51@
> wrote:
> My name is Robert, and I have had seizures since 16 months old, as the
> direct result of the removal of a baseball-sized, benign tumor from my
left
> temporal lobe. They have decreased over the years both in frequency and
> severity, but I doubt I will ever lose them altogether. I have
> however,learned to control them as they occur. I focus on a single
> individual, all the while refusing to give up control to the seizure.
> Sounds weird, but it works for me.
>
> --- On Thu, 2/26/09, Wendy Baur <wendy.sue@gmail.
com>>
> wrote:
>
> From: Wendy Baur <wendy.sue@gmail.
> Subject: [epilepsy] New Here...Introduction & Question
> To: epilepsy@yahoogroup
> Date: Thursday, February 26, 2009, 5:59 PM
>
> First let me tell you that I am not here for myself I am here for my
> 18 month old daugher Julia. She was diagnosed with a Choroid plexus
> papilloma (Brain tumor) when she was 4 months. We discovered the
> tumor when Julia had her first sezirue we now know it was an infantile
> spasm (associated with an abnormal brain pattern). Julia's tumor was
> taken out at John's Hopkins in Baltimore MD but, she still had
> seizures after surgery. We recently (actually our Christmas persent)
> got rid of the infantile spasms and now have a multifocal seizure
> disorder. When Julia has a seizure her movement repeats itself left
> arm out, right leg up, head turns to right and eyes roll I believe
> this is considered a clonic. Julia still has daily seizures because
> her medication is for infantile spasms and we just started Lamictal.
>
> My question...have any of you had seizures since you were an infant?
>
> What are the best medications for focal seizures?
>
> Thanks,
> Wendy
>
> [Non-text portions of this message have been removed]
>
>
>
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