Robert,
what kind of szs do you have that you can talk
yourself out of them? When I had grand mals I made
a weird noise and landed on the floor. I knew
nothing for a couple hours.
Now they are more like complex partials. My girls say
that my brain is scrambled for a couple days. I do not
pass out now-- but I also don't know that I am not
acting my usual self. I have to be told.
Millie
> My name is Robert, and I have had seizures since 16 months old, as the
> direct result of the removal of a baseball-sized, benign tumor from my
> left temporal lobe. They have decreased over the years both in frequency
> and severity, but I doubt I will ever lose them altogether. I have
> however,learned to control them as they occur. I focus on a single
> individual, all the while refusing to give up control to the seizure.
> Sounds weird, but it works for me.
>
> --- On Thu, 2/26/09, Wendy Baur <wendy.sue@gmail.
>
> From: Wendy Baur <wendy.sue@gmail.
> Subject: [epilepsy] New Here...Introduction & Question
> To: epilepsy@yahoogroup
> Date: Thursday, February 26, 2009, 5:59 PM
>
>
>
>
>
>
> First let me tell you that I am not here for myself I am here for my
> 18 month old daugher Julia. She was diagnosed with a Choroid plexus
> papilloma (Brain tumor) when she was 4 months. We discovered the
> tumor when Julia had her first sezirue we now know it was an infantile
> spasm (associated with an abnormal brain pattern). Julia's tumor was
> taken out at John's Hopkins in Baltimore MD but, she still had
> seizures after surgery. We recently (actually our Christmas persent)
> got rid of the infantile spasms and now have a multifocal seizure
> disorder. When Julia has a seizure her movement repeats itself left
> arm out, right leg up, head turns to right and eyes roll I believe
> this is considered a clonic. Julia still has daily seizures because
> her medication is for infantile spasms and we just started Lamictal.
>
> My question...have any of you had seizures since you were an infant?
>
> What are the best medications for focal seizures?
>
> Thanks,
> Wendy
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
>
Change settings via the Web (Yahoo! ID required)
Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional
Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe
No comments:
Post a Comment