Wendy,
Welcome to our group. Sorry to hear about Julia. If you
have a clonic or grand mal you usually pass out. At least
I did.
I don't have any answers to your questions since I wasn't
diagnosed (DX)until I was 30. I then had 3 daughters 2, 4 and
6 and a husband (now ex). That was 46 years ago.
Good luck with Julia.
Millie
> First let me tell you that I am not here for myself I am here for my
> 18 month old daugher Julia. She was diagnosed with a Choroid plexus
> papilloma (Brain tumor) when she was 4 months. We discovered the
> tumor when Julia had her first sezirue we now know it was an infantile
> spasm (associated with an abnormal brain pattern). Julia's tumor was
> taken out at John's Hopkins in Baltimore MD but, she still had
> seizures after surgery. We recently (actually our Christmas persent)
> got rid of the infantile spasms and now have a multifocal seizure
> disorder. When Julia has a seizure her movement repeats itself left
> arm out, right leg up, head turns to right and eyes roll I believe
> this is considered a clonic. Julia still has daily seizures because
> her medication is for infantile spasms and we just started Lamictal.
>
> My question...have any of you had seizures since you were an infant?
>
> What are the best medications for focal seizures?
>
> Thanks,
> Wendy
>
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