Hi,
Welcome to the epilepsy group (smile on the Internet. I just read your first post and without reading anymore wanted to email you directly. I can really feel for you, if in anyway I can help you, I would be happy to email or talk with you on the phone if you would ever like to.
Let me tell you a little bit about myself. I'm 55 years old, have had epilepsy since 1975 just a few months after graduating high school. That was 37 1/2 years ago, most of these years my seizures couldn't get under control with medication. On average allot of these years I had on average 1-7 complex partial seizures a month. I tried different medications, they simply couldn't stop my seizures. I went from 1988-2008 not being able to drive. 6 3/4 years ago I had brain surgery to try and stop my seizures. Well, since surgery I haven't yet had a seizure (giant smile)!
What I learned I'm strong at doing is giving others with epilepsy support. When I realized it (by people always telling me thank you for support) I began giving support on my own to people with, and parents of people with epilepsy. It means the world to me knowing I can help others to not feel alone in this world. You can email Millie or others in the group about me if you like. I've been in the group maybe 10 years. Under photos, you can see a few pictures of me around the time I had my surgery under my name is Steve Pales.
By the way I've been at the same job 26 years now and also shattered my left collar bone years ago (broke into 3 pieces) when falling because of a seizure.
I'm as open about myself as a person can be in order to give support. Please feel comfortable asking me anything about myself, my epilepsy ect... You can email me at stephenpales@yahoo.com I also would be happy to give you my cell phone number if you might like to talk and if your son might like dropping me a call. I'm sure he would be uncomfortable calling a stranger to talk about his life with epilepsy but I'm here. If you feel he might like talking on the phone I could give you my cell number to pass on to him.
I'm getting reading to go on vacation, I will be back home next Wednesday. This group is fantastic, feel comfortable posting as often as you like, we all need support (smile)! Take care, keep a smile on your face!
Steve
--- In epilepsy@yahoogroups.com, "dolotsdoolittle" <rjkjak76@...> wrote:
>
> Hi, our 30 yr. old son recently had his first ever tc. He had it at work and dislocated, and broke his shoulder. He lives alone and now isn't allowed to drive because of the seizure. The hospital ran all kinds of tests and couldn't find a reason for the seizure, except his EEG showed he is prone to generalized seizures. He is now on Keppra. I don't know much about seizures because no one in our whole family has had seizures, so we're all kinda puzzled. He has his first follow-up visit after his hospital stay with his Neurologist next week. I am going to drive him to his appt. and I'm trying to prepare some good questions for the Dr. Does anyone have any suggestions of some basic info. we should ask?
> Oh yeah, and moms worried about him living alone :) Thank God he can work from home.
>
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