Tuesday, July 16, 2013

Re: [epilepsy] New here - have questions

 

I am glad you are willing to learn!

I was 35 when I was diagnosed. One thing to keep in mind is that
seizures do not necessarily have a hereditary link. They can, but it is
not necessary. No one in my family history has them either.

When you go to the appointment be sure your son shares with the
neurologist any side effects to the medicine, especially those he isn't
tolerating well. There are many meds to choose from and there is no
reason to suffer with side effects. Also, he should ask the neurologist
if he/she believes his seizures are idiopathic, meaning having no known
cause. Most adult onset seizures are this way, but it is good to know
all the possible causes have been ruled out.

There will be a lot of adjusting for son. He will go through an anger
stage, a stage of loss, and possibly a stage of depression. None of
these are unusual with a diagnosis of epilepsy because it is still
somewhat of a "secret" disorder, something people don't talk about.
This is especially true for those who grew up before the 1950's when
people were still institutionalized for having seizures. The best thing
you can do is validate his feelings and never tell him he is wrong for
having them.

Kelly

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