[epilepsy] Re: New here - have questions

 

My parents are not the most emotionally available people so when I was diagnosed, it was almost like my mum was afraid of me, which felt horrible so i definitely agree that communication and availability is key!

I wouldn't want to live alone at this time but my seizures are very frequent but I feel like so much of my independence has been taken away from me since my diagnosis that I wouldn't really appreciate anyone commenting on my lifestyle or any of my choices but how does he feel? Is your son happy with his current living situation? Does he want to be back driving straight away? It's difficult cause I'm sure he wouldn't want to feel like epilepsy is taking over every aspect of his life and independence but the reality is you need to adjust, especially in that initial period.

It was a few months before anyone in my family would use the word seizure! They were my 'episodes'. I guess your sons grandmother is of a generation where epilepsy and seizures were viewed and treated completely differently! Little by little.

--- In epilepsy@yahoogroups.com, "dolotsdoolittle" <rjkjak76@...> wrote:
>
> Thank you Millie, that sounds like good advice. We are openly talking about it, but his Grandmother won't say the word seizure or epilepsy. We are still confused as to whether he has epilepsy or not. Him not driving is a problem because he doesn't live in a city with a good public transportation system. He mentioned to me he may need to move to Chicago or somewhere that has good transportation options if he keeps having seizures. Right now his employer has him coming into work twice a week and the rest of the days he works from home. He has been using a Taxi to get to work. His Neurologist hinted that he may be able to drive again after his visit next week depending on how compliant he is on taking his medicine. Even though he is 30 I'm worried about him driving and having a seizure and living alone. I know I will get used to it all in time, but I'm pretty stressed out about it now.

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