Millie and Tim,
what kinds of things did you learn during your sleep study?
When we were sent to Standford for Megan's, Standford Drs. said there isn't a sleep disorder associated with seizures. AT first they though her activity could be some deep sleep walking until they saw the video and they were like NO way! Turned out she had severe sleep obstucitve apnea. But the profeesor/dr. only thinks the two things could be playing off each other. SHe still isn't use to her CPAP machine.
:) Jamie (Megan age 9 mom)
--- In epilepsy@yahoogroups.com, "Millie Myers" <mylmy@...> wrote:
>
> Tim
>
> I gone thru a sleep study twice. I always enjoyed it and learned a lot.
>
> Millie
>
>
>
> ----- Original Message -----
> From: TIMOTHY BALDWIN
> To: epilepsy@yahoogroups.com
> Sent: Sunday, November 21, 2010 8:57 PM
> Subject: Re: [epilepsy] Ambulatory EEG
>
>
>
> Wendy,
> Mine going back to the Sleep Institute at 3pm which is close to NYU's
> Comprehensive Epilepsy Center in New York City. I'll be traveling via bus for
> four hours from Baltimore to NYC on both 12/3 and 12/6.
> Tim Baldwin
>
> ________________________________
> From: wendy d <wdeb5@...>
> To: epilepsy@yahoogroups.com
> Sent: Sun, November 21, 2010 1:30:56 PM
> Subject: Re: [epilepsy] Ambulatory EEG
>
> Tim,
> Good luck! I will have mine for 24 hours on 12/6 - so starting just as you are
> ending.
>
> Wendy
>
> ________________________________
> From: TIMOTHY BALDWIN <tbb1@...>
> To: epilepsy@yahoogroups.com
> Sent: Tue, November 16, 2010 5:06:42 PM
> Subject: Re: [epilepsy] Ambulatory EEG
>
> Wendy,
> I'll be having a 72 hour ambulatory eeg(AEEG)from 3PM friday 12/3 when I'll go
> to the place and get it installed on a fri..Have it on thru the weekend then
> return at 3PM on mon.12/6 and have it uninstalled.Of course I'll also take off
> work on tuesday because I'll get home late at night on mon.It will be very
> interesting,I had a Video-EEG late last year.And want to give more information
> to doctor.
> Tim Baldwin
>
> ________________________________
> From: wendy d <wdeb5@...>
> To: epilepsy@yahoogroups.com
> Sent: Mon, November 15, 2010 2:38:46 PM
> Subject: Re: [epilepsy] Ambulatory EEG
>
> Thanks, Elizabeth, Millie and Tim. I've emailed the doctor to see what she wants
>
> to do, and I think it is definitely worth a shot. I will let you know what
> happens!
>
> Wendy
>
> ________________________________
> From: TIMOTHY BALDWIN <tbb1@...>
> To: epilepsy@yahoogroups.com
> Sent: Mon, November 15, 2010 9:35:50 AM
> Subject: Re: [epilepsy] Ambulatory EEG
>
> Wendy,
> Don't miss out,it could show some seizures that you don't have any idea of.After
>
> its over you'll probably be asked;How many seizures did you have while being
> recorded?You might say four,sixteen or none.The doctor will look at records and
> find out see how many epileptic seizures you had.If you told him four or another
>
> amount,but none are found.He might decide that they were probably weren't due to
>
> epilepsy.If you said none,and he finds that you had some could've been very
> quick or all happened while sleeping.It's very important to know of the fact
> that you could be having more than you know of.Say if you were driving and had a
>
> very quick seizure happened in .3 of a second,and only caused you to blink your
> eyes shut,while in or about to make a turn as the road does,it's likely you
> might go straight into a tree without turning.If in a turn you could not
> continue to turn and run off the road or crash into a car next to you.It only
> takes a tenth of a second to cause you to crash and wonder what caused this.If
> some epileptic seizures are long enough for many to notice,maybe you could've
> been sitting down,w/o a witness to tell you of having one.
> Tim Baldwin
>
> ________________________________
> From: wendy d <wdeb5@...>
> To: epilepsy@yahoogroups.com
> Sent: Sun, November 14, 2010 4:48:29 PM
> Subject: [epilepsy] Ambulatory EEG
>
> Hello,
>
> My simple partial seizures are changing a little bit, and my doctor suggested an
>
> ambulatory (at home) EEG for 24-48 hours to try to find out which area of the
> brain is affected. During this outpatient procedure, I am told I will press the
> "event" button when I feel a seizure. I believe I have had seizures during
> previous EEGs that did not show up. The large majority of my EEGs, including
> overnights, are completely normal. Would there be any benefit to doing the
> ambulatory EEG is my seizures may not show up on the recording? I'd guess there
> is a chance something might show up if I am having more intense seizures, but
> there is also a high probability that nothing will show up at all. Could there
> be a chance that something will show up even when it hasn't before, or should I
> just skip it? Thanks!!
>
> Wendy
>
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