Monday, November 22, 2010

[epilepsy] Re: Ambulatory EEG

 

Wendy,
Oh I am so glad for you Wendy!!
Yes she was quite the tropper. The last few days she was so depressed though.
I hope you get some helpful news :)

Take care,
Jamie (Megan's mom age 9)

--- In epilepsy@yahoogroups.com, wendy d <wdeb5@...> wrote:
>
> Thanks, Jamie! I checked with my insurance as you suggested - they should cover
> 90% of my 24 hour ambulatory EEG. What a patient daughter you must have to be
> video taped and all hooked up for 6 days.
>
> Wendy
>
>
>
>
>
> ________________________________
> From: Jamie <cnmjmaloney@...>
> To: epilepsy@yahoogroups.com
> Sent: Tue, November 16, 2010 8:32:02 PM
> Subject: [epilepsy] Re: Ambulatory EEG
>
>
> Wendy, I don't know what kind of insurance you have.....you might want to find
> out what your cost would be. Me then 8 year-old had a 6 day one and our cost was
> almost 2K. We have a PPO. We video taped her while she slep too and he said
> that was VERY helpful. I pushed the button when I thought I saw one. The Dr
> watched the video and confirmed 6 seizures but the EEG showed no sign. SHe
> something to be aware of. Pros and COns to both. My daughters dr is always
> wanted to give her more tests but we have said no at least twice to more EEGS.
> Good Luck :) I hope you get answers to your questions.
>
> Sincerly,
> Jamie (Megan's mom age 9)
>
> --- In epilepsy@yahoogroups.com, wendy d <wdeb5@> wrote:
> >
> > Thanks, Elizabeth, Millie and Tim. I've emailed the doctor to see what she
> >wants
> >
> > to do, and I think it is definitely worth a shot. I will let you know what
> > happens!
> >
> > Wendy
> >
> >
> >
> >
> >
> > ________________________________
> > From: TIMOTHY BALDWIN <tbb1@>
> > To: epilepsy@yahoogroups.com
> > Sent: Mon, November 15, 2010 9:35:50 AM
> > Subject: Re: [epilepsy] Ambulatory EEG
> >
> >
> > Wendy,
> > Don't miss out,it could show some seizures that you don't have any idea
> >of.After
> >
> >
> > its over you'll probably be asked;How many seizures did you have while being
> > recorded?You might say four,sixteen or none.The doctor will look at records and
> >
> > find out see how many epileptic seizures you had.If you told him four or
> >another
> >
> >
> > amount,but none are found.He might decide that they were probably weren't due
> >to
> >
> >
> > epilepsy.If you said none,and he finds that you had some could've been very
> > quick or all happened while sleeping.It's very important to know of the fact
> > that you could be having more than you know of.Say if you were driving and had
> >a
> >
> >
> > very quick seizure happened in .3 of a second,and only caused you to blink your
> >
> > eyes shut,while in or about to make a turn as the road does,it's likely you
> > might go straight into a tree without turning.If in a turn you could not
> > continue to turn and run off the road or crash into a car next to you.It only
> > takes a tenth of a second to cause you to crash and wonder what caused this.If
>
> > some epileptic seizures are long enough for many to notice,maybe you could've
> > been sitting down,w/o a witness to tell you of having one.
> > Tim Baldwin
> >
> > ________________________________
> > From: wendy d <wdeb5@>
> > To: epilepsy@yahoogroups.com
> > Sent: Sun, November 14, 2010 4:48:29 PM
> > Subject: [epilepsy] Ambulatory EEG
> >
> >
> > Hello,
> >
> > My simple partial seizures are changing a little bit, and my doctor suggested
> >an
> >
> >
> >
> > ambulatory (at home) EEG for 24-48 hours to try to find out which area of the
> > brain is affected. During this outpatient procedure, I am told I will press the
> >
> > "event" button when I feel a seizure. I believe I have had seizures during
> > previous EEGs that did not show up. The large majority of my EEGs, including
> > overnights, are completely normal. Would there be any benefit to doing the
> > ambulatory EEG is my seizures may not show up on the recording? I'd guess there
> >
> > is a chance something might show up if I am having more intense seizures, but
> > there is also a high probability that nothing will show up at all. Could there
>
> > be a chance that something will show up even when it hasn't before, or should I
> >
> > just skip it? Thanks!!
> >
> > Wendy
> >
> > [Non-text portions of this message have been removed]
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

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