I have been doing well. I
had an appointment last thur
with a primary care doctor
who turned me down (they only
see uninsured). SO i see an
internal med dr on tuesday at
11 a.m. Hope this goes well.
I had a throat infection thursday
and was put on a z-pack. I had
just gotten off cipro for a
urinary tract infection the week
before.
I have exactly 40 days to come
up with a primary care doctor to
write my orders for home health
private duty nurses or i will lose
my nurses. So i seriously have to
find doctor. this doctor is suppose
to have dealt with complex case
before. So, this should be fine
doctor!
I did go to the pain dr at the end
of jan and they put me on 15mg of
hydrocodone elixir 3x a day (until they
get it approved for 4x a day) and
methadone 20mg 2x a day. They are
also looking into a spinal cord
stimulator. The dr has to research
to see if that will help me with an
old spinal cord injury and the central
pain and the arachnoiditis all together.
He believes it will help all that and
the rsd. I hope so.
I also got my keppra 500mg 1 tab a.m.
and 2 tabs p.m. approved this week. I
have two weeks samples until they get
the free drug assistance programs
application goes through.
I am still having a hard time with the
death of my nurse. I still miss her.
so much. She brought so much laughter
and enjoyment to my life. I am having
problems with the nurse that replaced
her. So if you will keep that situation
in your prayers I would appreciate it.
I had a swallow study done at Vanderbilt.
And it showed my swallowing was ok, but
that the esophagus had some dysmotility
like my gastroparesis. So when I eat
the food gets stuck in the esophugus and
doesn't go on into the stomach and causes
pain and spasms in the chest and throat.
My cats are doing well. I am loving to
playing with them. I have been sick
with a stomach bug this week so they
haven't been getting enough attention.
But I am feeling better now. Praise
be to God.
My new pain meds are helping me with my
pain level quite a bit. I was at a
level 7-8 and now I am a 5-6 most of
the time with flares. So i guess
narcotics do work for me. I can't wait
to see if the spinal cord stimulator is
an option or not because i still have
a lot of flares of burning pain in my
torso and legs (especially left leg).
All in all i am doing good. Quite
stress about finding a dr and all. But
I am doing better since not in so much
pain. I am having panic attacks from
stress though. I have meds for that
though that I take everyday to prevent
them. Hope everyone is having better
days. God Bless everyone.
NurseGJTubee
christina in tn
p.s. I will start taking papaya enzymes
for stomach as soon as they come in the
mail for my stomach upset and digestion.
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