I have always been unaware of what I was doing in my seizures - and would always end the seizures by going completely unconscious on all fronts. My friends or family would tell me afterwards what happened .... it was embarrassing. My grandmother never looked at me the same way again - she would never be alone with me again either. I wish that she was still alive so I could tell her that I don't have seizures anymore. We used to be quite close.
That is interesting about the MS . I read an article last summer about a study that was been done on MS using large doses of magnesium. The article said that many of the symptoms of MS were the same as those of magnesium deficiency. But then MS is an neurological disorder, so that is not surprising.
That must have been upsetting for you - you sound as if you have a lot of poise.
blessings
Shan
--- In epilepsy@yahoogroup
>
> Hi,
>
> I've had 2 grand-mals complications of an upper respiratory infection and where the lesions are. The lesions are possible MS and the seizures only come with MS type episodes. Yes, as I understand it how TL lesions affects you depends on which side they are on. Mine can also interfere with speech, memory, speaking and writing.
>
> The worst experiences I've had with mine is when I blank out and have no memory of what I've done. Once I was at the grocery store and somehow managed to walk off with someone else's cart LOL. I was 3 isles down before I snapped out of it. I found my cart but couldn't find who's cart I walked off with so I left it where mine was...hoping they just ran across the store and hadn't noticed.
>
> Take Care,
>
> Christine
>
> --- On Fri, 2/5/10, Shan <surpriseshan2@
>
> From: Shan <surpriseshan2@
> Subject: [epilepsy] Re:Any validity in this?/CHANGED TO TEMPORAL LOBE LESIONS
> To: epilepsy@yahoogroup
> Date: Friday, February 5, 2010, 7:55 PM
>
> I have a lesion on my right temporal lobe. It was causing Grand Mal seizures sometimes with a 'twist' so to speak. Really glad not to have those anymore. I would make all sorts of sounds, and do strange unusual things....scared my grandmother and brothers. But the seizures would have been different to yours as my lesion was on the other side.
> The EEG technicians said the lesions were scar tissue.
> blessings
> Shan
>
> --- In epilepsy@yahoogroup
> >
> > Hi,
> >
> > I have a history of SPS, SPS-Secondarily Generalized and I have had similar experiences. My seizures are caused by lesions, one of which is on my left temporal lobe so I know how unsettling it can be to hear music, bells, voices, etc. that you know aren't supposed to be there.
> >
> > My neurologist says its not uncommon at all. Some of my triggers are repeated movements of patterns, staring out of a moving car to long in one spot, sound (chopping vegetables brings on flashing lights) high pitched noises, bright lights, and one of the more odd ones I discovered recently the chemical name for Epsom salts brings on bright flashes of lights and shaking.
> >
> > Hope that helps you relax about it a little.
> >
> > Take care,
> >
> > Christine
> >
> > --- On Fri, 2/5/10, C. Michal <cmichal427@
> >
> > I have sps which is not grand mal but shaking spells during which I remain conscious but unable tn move or speak. So far the only triggers have been repeated flashing lights or rock music but yesterday it happened for 2 minutes during a lesson of the card game bridge.My doctor who is a psychiatrist says possibly the movement of the intricate design on the back of the cards while the other players shuffled them could be responsible.
> >
> > ----------
> > Sent from AT&T's Wireless network using Mobile Email
> >
> > ------Original Message-----
> > From: <epilepsy@yahoogroup
> > To: <epilepsy@yahoogroup
> > Date: Friday, February 5, 2010 11:07:21 AM GMT-0000
> > Subject: [epilepsy] Digest Number 5098
> >
> >
> >
> >
> >
> > For people with or know someone with Epi
> >
> >
> > Messages In This Digest (6
> > Messages)
> >
> >
> >
> > 1.
> > Re: Disability Insurance)
> > From:
> > Millie Myers
> > 2.
> >
> > From:
> > Mindy Ziemer
> > 3a.
> > Re: Magnesium
> > From:
> > Shan3b.
> > Re: Magnesium
> > From:
> > deacon500@
> > Re: Magnesium
> > From:
> > Millie Myers
> > 4.1.
> > Re: keppra
> > From:
> > uniquepnk tds.net
> >
> >
> > View All Topics | Create New Topic<http://groups.
> >
> >
> > Messages
> >
> >
> > 1.
> >
> >
> > Re: Disability Insurance)
> >
> > Posted by: "Millie Myers"
> > mylmy@ <mailto:mylmy@
> >
> >
> > mylmy
> >
> >
> >
> > Thu Feb 4, 2010 3:26 am (PST)
> >
> >
> >
> >
> >
> > Donna Marie,
> >
> >
> >
> > It usually takes 3 tries before you get disability. did you have a lawyer help you? That seems to be the key now-- to get a lawyer.
> >
> >
> >
> > Personally I don't see what having life insurance on your you has to do with your EP or your disability -- but then what do I know? $2,000 isn't all that much insurance.
> >
> >
> >
> > Check with a lawyer.
> >
> >
> >
> > Millie
> >
> >
> >
> > ----- Original Message -----
> >
> > From: Donna Marie
> >
> > To: epilepsy@yahoogroup
> >
> > Sent: Thursday, February 04, 2010 1:01 AM
> >
> > Subject: Re: [epilepsy] non driver (Disability Insurance)
> >
> >
> >
> > I have applied for Social Security Disability, SSI 5 months ago they denied me SSI due to 2 life insurance policies I have out on myself and my son and daughter are sole beneficiaries to both policies but because both policies added up to more than $2,000 in Massachusettes I got denied for SSI. The Disability part is"still pendint" I call every day yet I never receive a call, notice via mail I have no idea what is happening and I have a attorney on standby in case I get denied. I can't collect unemployment cause I cannot work due to doctor's order's cause of my epilepsy/seizures.
> >
> >
> >
> > Donna
> >
> >
> >
> > .
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
> >
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> > Back to top
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> >
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> >
> > Messages in this topic
> > (1)
> >
> > 2.
> >
> >
> >
> >
> > Posted by: "Mindy Ziemer"
> > maziemer@ <mailto:maziemer@
> >
> >
> > maziemer
> >
> >
> >
> > Thu Feb 4, 2010 4:12 am (PST)
> >
> >
> >
> >
> >
> > please unsubscribe me
> >
> > Mindy A. Ziemer
> >
> >
> >
> >
> >
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> >
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> >
> > Messages in this topic
> > (1)
> >
> > 3a.
> >
> >
> > Re: Magnesium
> >
> > Posted by: "Shan"
> > surpriseshan2@ <mailto:surprisesha
> >
> >
> > bestsurprise2002
> >
> >
> >
> > Thu Feb 4, 2010 10:50 am (PST)
> >
> >
> >
> >
> >
> > I stopped all anti-seizure/
> >
> >
> >
> > I started reducing my medications about 8 months after starting the transdermal magnesium chloride every day. I started using the transdermal magnesium everyday in spring 2005. I could probably have stopped the anticonvulsants a year before I did, but I was afraid. For the last 11 months I had been takig tegretol 200mg every second day - I had been on 400mg of tegretol 2x a day.
> >
> >
> >
> > I was afraid as I had been told so many many times that there was no cure for epilepsy and that I would have to take drugs for the rest of my life. And once I tried to stop taking the medications and had a Grand Mal temporal lobe seizure. Another time when I was taking Dilantin, I had been taking only one capsule a day for a year and been controlled so my neurologist thoughtthat I might not need anticonvulsants anymore and told me to stop taking the dilantin. 36 hours later I had a Grand Mal convulsion in the shower. So I had a history of sometimes being controlled by very little drugs. So even though I had been taking so little tegretol for 11 months, I was still scared to stop it completely.
> >
> >
> >
> > I really wish that I had done more research years before. It is not new knowledge that all epileptics are magnesium deficient. It is not a new knowledge that magnesium deficiency causes seizures. It is not a new knowledge that anticonvulsants and antibiotics deplete magnesium. There are even studies showing that epileptics stop having seizures when treated with magnesium - this is not new knowledge either.
> >
> >
> >
> > blessings
> >
> > Shan
> >
> >
> >
> > --- In epilepsy@yahoogroup
> >
> > >
> >
> > > Shan ,
> >
> > >
> >
> > > Do I understand you to say that you have stopped all anti-convulsive med and are only taking magnesium?
> >
> > >
> >
> > > How long have you been without a sz?
> >
> > >
> >
> > > Millie
> >
> > >
> >
> > >
> >
> > >
> >
> > >
> >
> > >
> >
> > >
> >
> > > ----- Original Message -----
> >
> > > From: Shan
> >
> > > To: epilepsy@yahoogroup
> >
> > > Sent: Wednesday, February 03, 2010 9:10 PM
> >
> > > Subject: [epilepsy] Re: Mice epilepsy cure raises hopes
> >
> > >
> >
> > >
> >
> > >
> >
> > > I find this interesting. Especially since I and my parents were told that the Petite Mal seizures I had were genetic. In fact, one Neurologist told me that I was 'testbook case', and I certainly was according to the waves and spikes of the EEG. But I guess genetics must be able to be changed or cured with magnesium - because I have not had those seizures since I stopped the anticonvulsants. Of coarse the fact that anticonvulsants deplete magnesium may have been a factor.....I guess it should not be suprising to me that with many epileptics their seizuers get worse with time.
> >
> > >
> >
> > > It is really wonderful to be able to drive a car now and I love my bike.
> >
> > >
> >
> > > blessings
> >
> > > Shan
> >
> > >
> >
> > > --- In epilepsy@yahoogroup
> >
> > >>
> >
> > >> http://english.
> >
> > >>
> >
> > >
> >
> > >
> >
> > >
> >
> > >
> >
> > >
> >
> > > [Non-text portions of this message have been removed]
> >
> > >
> >
> >
> >
> >
> >
> >
> >
> >
> > Back to top
> >
> > Reply to sender
> > |
> >
> > Reply to group
> > |
> >
> > Reply via web post
> >
> >
> >
> > Messages in this topic
> > (4)
> > 3b.
> >
> >
> > Re: Magnesium
> >
> > Posted by: "deacon500@"
> > deacon500@ <mailto:deacon500@
> >
> >
> > stheller
> >
> >
> >
> > Thu Feb 4, 2010 12:42 pm (PST)
> >
> >
> >
> >
> >
> > I'm interested in your story. What kind of testing did you have to find out the magnesium would work? Where do you get in patch form? What dose? Dani's Dad
> >
> >
> > Sent from my BlackBerry device from Cincinnati Bell Wireless
> >
> >
> >
> >
> >
> > -----Original Message-----
> >
> >
> > From:"Shan"< surpriseshan2@
> >
> >
> > Date: Thu, 04 Feb 2010 18:48:24
> >
> >
> > To:< epilepsy@yahoogroup
> >
> >
> > Subject: [epilepsy] Re: Magnesium
> >
> >
> >
> >
> >
> > I stopped all anti-seizure/
> >
> >
> >
> >
> >
> > I started reducing my medications about 8 months after starting the transdermal magnesium chloride every day. I started using the transdermal magnesium everyday in spring 2005. I could probably have stopped the anticonvulsants a year before I did, but I was afraid. For the last 11 months I had been takig tegretol 200mg every second day - I had been on 400mg of tegretol 2xa day.
> >
> >
> >
> >
> >
> > I was afraid as I had been told so many many times that there was no cure for epilepsy and that I would have to take drugs for the rest of my life. And once I tried to stop taking the medications and had a Grand Mal temporal lobe seizure. Another time when I was taking Dilantin, I had been taking only one capsule a day for a year and been controlled so my neurologist thought that I might not need anticonvulsants anymore and told me to stop taking the dilantin. 36 hours later I had a Grand Mal convulsion in the shower. So I had a history of sometimes being controlled by very little drugs. So even though I had been taking so little tegretol for 11 months, I was still scared to stop it completely.
> >
> >
> >
> >
> >
> > I really wish that I had done more research years before. It is not new knowledge that all epileptics are magnesium deficient. It is not a new knowledge that magnesium deficiency causes seizures. It is not a new knowledge that anticonvulsants and antibiotics deplete magnesium. There are even studies showing that epileptics stop having seizures when treated with magnesium - this is not new knowledge either.
> >
> >
> >
> >
> >
> > blessings
> >
> >
> > Shan
> >
> >
> >
> >
> >
> > --- In epilepsy@yahoogroup
> >
> >
> > >
> >
> >
> > > Shan ,
> >
> >
> > >
> >
> >
> > > Do I understand you to say that you have stopped all anti-convulsive med and are only taking magnesium?
> >
> >
> > >
> >
> >
> > > How long have you been without a sz?
> >
> >
> > >
> >
> >
> > > Millie
> >
> >
> > >
> >
> >
> > >
> >
> >
> > >
> >
> >
> > >
> >
> >
> > >
> >
> >
> > >
> >
> >
> > > ----- Original Message -----
> >
> >
> > > From: Shan
> >
> >
> > > To: epilepsy@yahoogroup
> >
> >
> > > Sent: Wednesday, February 03, 2010 9:10 PM
> >
> >
> > > Subject: [epilepsy] Re: Mice epilepsy cure raises hopes
> >
> >
> > >
> >
> >
> > >
> >
> >
> > >
> >
> >
> > > I find this interesting. Especially since I and my parents were told that the Petite Mal seizures I had were genetic. In fact, one Neurologist told me that I was 'testbook case', and I certainly was according to the waves and spikes of the EEG. But I guess genetics must be able to be changed or cured with magnesium - because I have not had those seizures since I stopped the anticonvulsants. Of coarse the fact that anticonvulsants deplete magnesium may have been a factor.....I guess it should not be suprising to me that with many epileptics their seizuers get worse with time.
> >
> >
> > >
> >
> >
> > > It is really wonderful to be able to drive a car now and I love my bike
> >
> >
> > >
> >
> >
> > > blessings
> >
> >
> > > Shan
> >
> >
> > >
> >
> >
> > > --- In epilepsy@yahoogroup
> >
> >
> > >>
> >
> >
> > >> http://english.
> >
> >
> > >>
> >
> >
> > >
> >
> >
> > >
> >
> >
> > >
> >
> >
> > >
> >
> >
> > >
> >
> >
> > > [Non-text portions of this message have been removed]
> >
> >
> > >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
> >
> >
> >
> >
> >
> > Back to top
> >
> > Reply to sender
> > |
> >
> > Reply to group
> > |
> >
> > Reply via web post
> >
> >
> >
> > Messages in this topic
> > (4)
> > 3c.
> >
> >
> > Re: Magnesium
> >
> > Posted by: "Millie Myers"
> > mylmy@ <mailto:mylmy@
> >
> >
> > mylmy
> >
> >
> >
> > Thu Feb 4, 2010 8:14 pm (PST)
> >
> >
> >
> >
> >
> > Shan,
> >
> >
> >
> > What is transdermal magnesium chloride? Do you put it on your skin?
> >
> >
> >
> > I'm not surprised that you had a sz when you quit taking Dilantin. When I was DX I was told that
> >
> > I could go with out szs for 20 years and then they night start up again.
> >
> >
> >
> > What you say is not new knowledge about magnesium is news to me. So I guess I am learning
> >
> > like I have learned a lot in this group. Is magnesium checked in your blood like when you take
> >
> > a fasting blood test?
> >
> >
> >
> > Millie
> >
> >
> >
> > ----- Original Message -----
> >
> > From: Shan
> >
> > To: epilepsy@yahoogroup
> >
> > Sent: Thursday, February 04, 2010 1:48 PM
> >
> > Subject: [epilepsy] Re: Magnesium
> >
> >
> >
> > I stopped all anti-seizure/
> >
> >
> >
> > I started reducing my medications about 8 months after starting the transdermal magnesium chloride every day. I started using the transdermal magnesium everyday in spring 2005. I could probably have stopped the anticonvulsants a year before I did, but I was afraid. For the last 11 months I had been takig tegretol 200mg every second day - I had been on 400mg of tegretol 2x a day.
> >
> >
> >
> > I was afraid as I had been told so many many times that there was no cure for epilepsy and that I would have to take drugs for the rest of my life. And once I tried to stop taking the medications and had a Grand Mal temporal lobe seizure. Another time when I was taking Dilantin, I had been taking only one capsule a day for a year and been controlled so my neurologist thought that I might not need anticonvulsants anymore and told me to stop taking the dilantin. 36 hours later I had a Grand Mal convulsion in the shower. So I had a history of sometimes being controlled by very little drugs. So even though I had been taking so little tegretol for 11 months, I was still scared to stop it completely.
> >
> >
> >
> > I really wish that I had done more research years before. It is not new knowledge that all epileptics are magnesium deficient. It is not a new knowledge that magnesium deficiency causes seizures. It is not a new knowledge that anticonvulsants and antibiotics deplete magnesium. There are even studies showing that epileptics stop having seizures when treated with magnesium - this is not new knowledge either.
> >
> >
> >
> > blessings
> >
> > Shan
> >
> >
> >
> > --- In epilepsy@yahoogroup
> >
> > >
> >
> > > Shan ,
> >
> > >
> >
> > > Do I understand you to say that you have stopped all anti-convulsive med and are only taking magnesium?
> >
> > >
> >
> > > How long have you been without a sz?
> >
> > >
> >
> > > Millie
> >
> > >
> >
> > >
> >
> > >
> >
> > >
> >
> > >
> >
> > >
> >
> > > ----- Original Message -----
> >
> > > From: Shan
> >
> > > To: epilepsy@yahoogroup
> >
> > > Sent: Wednesday, February 03, 2010 9:10 PM
> >
> > > Subject: [epilepsy] Re: Mice epilepsy cure raises hopes
> >
> > >
> >
> > >
> >
> > >
> >
> > > I find this interesting. Especially since I and my parents were told that the Petite Mal seizures I had were genetic. In fact, one Neurologist told me that I was 'testbook case', and I certainly was according to the waves and spikes of the EEG. But I guess genetics must be able to be changed or cured with magnesium - because I have not had those seizures since I stopped the anticonvulsants. Of coarse the fact that anticonvulsants deplete magnesium may have been a factor.....I guess it should not be suprising to me that with many epileptics their seizuers get worse with time.
> >
> > >
> >
> > > It is really wonderful to be able to drive a car now and I love my bike.
> >
> > >
> >
> > > blessings
> >
> > > Shan
> >
> > >
> >
> > > --- In epilepsy@yahoogroup
> >
> > >>
> >
> > >> http://english.
> >
> > >>
> >
> > >
> >
> > >
> >
> > >
> >
> > >
> >
> > >
> >
> > > [Non-text portions of this message have been removed]
> >
> > >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
> >
> >
> >
> >
> >
> > Back to top
> >
> > Reply to sender
> > |
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> > Reply to group
> > |
> >
> > Reply via web post
> >
> >
> >
> > Messages in this topic
> > (4)
> >
> > 4.1.
> >
> >
> > Re: keppra
> >
> > Posted by: "uniquepnk tds.net"
> > Uniquepnk@ <mailto:Uniquepnk@
> >
> >
> > uniquepnk
> >
> >
> >
> > Thu Feb 4, 2010 6:55 pm (PST)
> >
> >
> >
> >
> >
> > Tim,
> >
> >
> >
> > I was switched to the Keppra XR about 6 or& months ago. My neurologist
> >
> > didn't want me to take the generic form of the regular Keppra. I take the
> >
> > Keppra XR just like I did the Keppra. Twice a day. One 500mg of the morning
> >
> > and one at night. They seem to work better with a smaller dose. I was on
> >
> > 2,000 mgs of the regular Keppra.The Keppra XR stays in your bloodstream at a
> >
> > constant level, as for the regular Keppra it gets to its peak and then goes
> >
> > back down when it is time for the next dose. I am on 300mgs a day of the
> >
> > Vimpat too.
> >
> >
> >
> > Tammy
> >
> >
> >
> > On Wed, Feb 3, 2010 at 10:41 PM, TIMOTHY BALDWIN< tbb1@<mailto:
> >
> >
> >
> > >
> >
> > >
> >
> > > Is there a reason that people try Keppra with its twice daily use, instead
> >
> > > of Keppra XR when Keppra XR only needs to be taked once a day. Is it just
> >
> > > because generics are available for this stuff. I'm on Keppra XR 500mg 2 once
> >
> > > daily at bedtime; with, Vimpat 100mg 3 1/2 tabs twice daily.
> >
> > > Tim Baldwin
> >
> > >
> >
> > > ____________
> >
> > > From: mariea< annaackermann@
> >
> > > To: epilepsy@yahoogroup
> >
> > > Sent: Wed, February 3, 2010 9:28:20 PM
> >
> > > Subject: [epilepsy] keppra
> >
> > >
> >
> > >
> >
> > >
> >
> > > Increase in keppra from 500mg twice daily to 1000mg twice daily with the
> >
> > > 600mg lamictal already on. Keppra is a"new" drug for me. The lamictal
> >
> > > worked well for so long.Now I have more hand tremors, noticed having more
> >
> > > involuntary jerking movements at nite. Not convulsions, just jerking,not
> >
> > > sure if it is related to the muscle spasms or not. I can feel this feeling
> >
> > > of"electrical surges" shooting up back of my neck at times mostly at night.
> >
> > > So I really don't know if this is d/t the meds or if type of seizure. I go
> >
> > > to a different neuro. on the 10th. Had eeg and 3 mri 5th of last month and
> >
> > > of course not talked to just here take this, wasn't happy with hospital at
> >
> > > all so my doctor is sending me to the neuro he sees. Anyway I also don't
> >
> > > feel hungry and when i do eat i feel overly full and nausea.Does any one
> >
> > > have any of these issues?
> >
> > > MarieA
> >
> > >
> >
> > > [Non-text portions of this message have been removed]
> >
> > >
> >
> > >
> >
> > >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
> >
> >
> >
> >
> >
> > Back to top
> >
> > Reply to sender
> > |
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> > Reply to group
> > |
> >
> > Reply via web post
> >
> >
> >
> > Messages in this topic
> > (158)
> >
> >
> >
> >
> >
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> > Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply to them. This is especially important if you are on digest. This not only helps out the list owner but, it makes messages much easier to read when they arrive in our inboxes.
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> Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply to them. This is especially important if you are on digest. This not only helps out the list owner but, it makes messages much easier to read when they arrive in our inboxes.
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