Anne and Tammy,
I know exactly what you mean. I started having seizures when I was
four. One day, I walked into my parents' room complaining of a
headache, and then fell to the floor and started convulsing. It had
to have scared them half to death. I have no idea what could have
caused it. Several times in my life I wished that I didn't have
epilepsy. I would look back and think of how different my life could
have been if I didn't have to take meds for it(better grades in
school, able to go all the way through college, better social life,
etc.), then I get frustrated, then it starts building up until I have
to just stop what I'm doing and "reboot" so to speak. I take a few
deep breaths, collect my thoughts, count my blessings, and then I can
start going again. Sorry for venting, and I know I will probably do
more venting in the future, but it helps to get stuff like that off
my chest, even if I'm not verbally expressing myself.
Mark
--- In epilepsy@yahoogroup
>
> Anne,
>
> It can get depressing when you sit and wonder why you have to deal
with it sometimes. I have wondered that myself, but anymore I just
try to do things for others and forget my own problems and it helps
me more doing that.Try not to worry so much about it and do things to
make you happy. You are more than welcome to write and talk to me
anytime. Take care.
>
> Tammy
> ---- cutesta_007 <cutesta_007@
> > Thanks Tammy, I have both partial and grand mals but I have no
idea
> > how I ended up with epilepsy as I have nothing that I could
relate
> > myself to an injury that would cause it, I never use to let it
get me
> > down as I know that there are many that have far worse to deal
with
> > and in a way it helped me not to focus on the limitations of my
> > abilities, but I feel quite hopeless a lot now-days so I gather
> > depression has taken hold. I am grateful to have found this site
and
> > have found there was much I did not know and people facing the
same
> > challenges, whether they have epilepsy or care for someone with
> > epilepsy, just to talk makes a lot of difference to so many. I
hope
> > to talk to you again, Thank You. Best Wishes and Good Health to
All.
> > Anne ;-) --- In
> > epilepsy@yahoogroup
> > >
> > > Anne,
> > >
> > > Welcome to the group. I have complex partial seizures in the
left
> > temporal lobe. My seizures were from a head injury. Even if you
> > haven't repleid to any of the messages until now, at least you
got
> > something out of them. It seems to me that is what being a part
of
> > this group is supposed to do. There is plenty of information and
> > people who care about the way you feel. Glad you are here. If you
> > need anything write anytime. Take care.
> > >
> > > Tammy
> > > ---- cutesta_007 <cutesta_007@
> > > > It has taken me a while before I could get myself together to
> > introduce
> > > > myself like I should have when I first replied to a post
here, I
> > have
> > > > read many of the messages here and identify with so much that
has
> > been
> > > > said and it does help to know that I am not just being
stupid, I
> > can
> > > > see how this group can help many people to cope better even
if it
> > is
> > > > just somebody to talk to but also there's some great
information
> > that
> > > > people can make their mind on their direction of help.
> > > > My name is Anne, I live in Perth Western Australia with my
> > partner and
> > > > I have had TL epilepsy for just over twenty years, as with
many
> > there
> > > > has been the ups and downs of life living with epilepsy IE:
> > trying to
> > > > control seizures, discrimination and various health issues
> > related to
> > > > epilepsy. My seizures are not controlled and I have very
little
> > contact
> > > > with the outside world these days except for my computer and
it
> > is
> > > > resulting in me losing confidence in myself and not being
able to
> > > > communicate without being worried about how some are going to
> > interpret
> > > > what I have said, if I sound like a fool or I missed
something
> > and they
> > > > think I am being rude? I have found here many have the same
> > problems in
> > > > different degrees and My heart goes out to everyone here
going
> > through
> > > > difficult times, I hope that better times are ahead for all.
Anne
> > > >
> > >
> >
> >
>
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