Tuesday, December 7, 2010

Re: [epilepsy] Re: Your experience with Keppra

 

Good morning Suzanne
I find the same here....memory both long (gone for sure) and short gets shorter some days worse than others.
But don't tell me how to do something once, I have to do it multiple times over and over and many days over
before it has a chance to stick. Also noticed that with the elderly when was a caregiver. If telling them
once, it goes in one ear and out the other :(smile:) but over and over at different times it becomes a regular
routine and is there. One fellow with epilepsy, who never spoke a word in his life (not that he didn't know
what you were saying) would clap his hands when he got excited. As staff we would pick up on and just out of
the woods would say 'patty cake' to him. We would just do it automatically as playing a game with him. Talk
about heart attack, as one day he refused our hands on his and clapped so excitedly and the words came out
'atty cake'. Patience patience. Slow and easy does it. Seems like sometimes a regular routine is needed in
our lives maybe this is what it is for. Not only the Keppra, which I have no experience with by the way, but
most of the meds we take + the number of seizures will do this to us.
Just my 2 cents for the day.
Julie
Julie Hope
epilepsyhealth@sasktel.net
http://www.2betrhealth.com
----- Original Message -----
From: "suzannenewid" <a.s.hines@tesco.net>
To: <epilepsy@yahoogroups.com>
Sent: Tuesday, December 07, 2010 10:43 AM
Subject: [epilepsy] Re: Your experience with Keppra

My specialist said to me that it's the synapses between the cells that are messed up - the pathways - so I
need to reinforce all the info going in - so I am learning Italian as a challenge - I do everything to
reinforce the memory - and it does work - I walk past people I know - I did it twice today, I rewatch tv
programmes from the week before without realising that I have seen them, so much memory gets lost but anything
I have given a double/triple/quadruple dose of brain power to stands a much better chance of staying put. My
suggestion to your daughter is to stick with it, don't let the bloody thing beat her, to write down as much as
she can, to keep a work diary, to record her work onto an i-player so she can play it back, she'll get there I
am sure - and she may grow out of the ADD, 1 of my grandchildren who was on ADD pills galore is more or less
fine and off the medication at the age of 18 as long as she keeps off aspartame type chemicals

Suzanne

--- In epilepsy@yahoogroups.com, Tammara Wolfgram <tammy@...> wrote:
>
> Hi Suzanne,
>
> I hear you about the memory/brain thing. Megan also has ADD and the combination of that and her AEDs has
> really made college difficult for her. I admire that girl a lot because she doesn't know the word "Quit."
> She is determined to finish college, even if it is extremely difficult for her to remember things.
>
> Tammy
> Megan's Proud Mama
>

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