Friday, November 19, 2010

Re: [epilepsy] Memory Post Brain Surgery

 

Hello Kelly,

I had brain surgery on October 31, 2001. You about summed it
up on how to keep track of things to help you with memory. After
I had the surgery, I experienced a huge loss of memory and was
partially paralyzed. What my surgeon suggested was to keep a
log on every day things to do. I was also told to ask family and
friends to right down all they can remember about your past, how
you met one another, and what types of activities you were
interested in. I lost all memory of my childhood. I could only
remember back as far as 1982 when and where I graduated
from high school. I was 19 a few days later. At this time, At the
 age of 47 I will occasionally get flash backs of things that may have taken place back then but I'm not completely sure. Sometimes I will
run into someone that knows me but I don't remember them.
I was also told to keep a separate log of all seizures I have
and describe them the best I can. And since I never get a
warning sign of a seizure happening, I ask my wife or whoever
sees it to tell me what happened and and how long the seizure
lasted. Then write it in the log to show my Neurologist when my
last seizure was since my last visit.

Joseph

--- On Thu, 11/18/10, Kelly Porter <kellyporter@frontiernet.net> wrote:

From: Kelly Porter <kellyporter@frontiernet.net>
Subject: Re: [epilepsy] Memory Post Brain Surgery
To: epilepsy@yahoogroups.com
Date: Thursday, November 18, 2010, 6:19 PM

  These are things that help me.  I had an RTL in March of 2008.

-write things down.  Take a small notebook and label it "Drs". In it
write questions that come up and take it to appts. to get answers and
write down the things your Dr. tells you.  Use small notebooks labeled
with other titles for things you know you need to remember.
-make lists.  Keep one on your fridge to add needed grocery items when
it comes up for example.
-have a regular routine of doing the same things on the same day.  It
takes time to get use to it and make it work, but a routine makes it
easier to remember things.
-keep some sort of calender.
-send yourself emails about things you need to remember later and keep
them until you don't need them anymore.
-play games that require use of memory.  There are apps for both android
and iphone that do this.  It helps your brain rework how to make your
memory work better.
-ask for help.  If there id something you routinely forget, ask someone
to remind you of it.
-Don't be afraid to admit you can't do something if it puts to much
stress on you and causes more memory difficulty. Most things are not
worth causing us stress and more issues.
-Don't get to frustrated by your memory issues, it actually makes it
worse not better.

Kelly

On 11/18/2010 11:54 AM, DorisY wrote:
> If by chance you are amoung the many who have also had brain surgery,
> would you be kind enough to fill us in on your suggestions of memory advice.

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