----------
Sent from AT&T's Wireless network using Mobile Email
------Original Message-----
From: C. Michal <cmichal427@yahoo.
To: <notify-dg-epilepsy@
Date: Friday, February 5, 2010 10:31:51 PM GMT+0000
Subject: Any validity in this?
I have sps which is not grand mal but shaking spells during which I remain conscious but unable tn move or speak. So far the only triggers have been repeated flashing lights or rock music but yesterday it happened for 2 minutes during a lesson of the card game bridge.My doctor who is a psychiatrist says possibly the movement of the intricate design on the back of the cards while the other players shuffled them could be responsible.
----------
Sent from AT&T's Wireless network using Mobile Email
------Original Message-----
From: <epilepsy@yahoogroup
To: <epilepsy@yahoogroup
Date: Friday, February 5, 2010 11:07:21 AM GMT-0000
Subject: [epilepsy] Digest Number 5098
For people with or know someone with Epi
Messages In This Digest (6
Messages)
1.
Re: Disability Insurance)
From:
Millie Myers
2.
From:
Mindy Ziemer
3a.
Re: Magnesium
From:
Shan3b.
Re: Magnesium
From:
deacon500@gmail.
Re: Magnesium
From:
Millie Myers
4.1.
Re: keppra
From:
uniquepnk tds.net
View All Topics | Create New Topic<http://groups.
Messages
1.
Re: Disability Insurance)
Posted by: "Millie Myers"
mylmy@gogreencroft.
mylmy
Thu Feb 4, 2010 3:26 am (PST)
Donna Marie,
It usually takes 3 tries before you get disability. did you have a lawyer help you? That seems to be the key now-- to get a lawyer.
Personally I don't see what having life insurance on your you has to do with your EP or your disability -- but then what do I know? $2,000 isn't all that much insurance.
Check with a lawyer.
Millie
----- Original Message -----
From: Donna Marie
To: epilepsy@yahoogroup
Sent: Thursday, February 04, 2010 1:01 AM
Subject: Re: [epilepsy] non driver (Disability Insurance)
I have applied for Social Security Disability, SSI 5 months ago they denied me SSI due to 2 life insurance policies I have out on myself and my son and daughter are sole beneficiaries to both policies but because both policies added up to more than $2,000 in Massachusettes I got denied for SSI. The Disability part is"still pendint" I call every day yet I never receive a call, notice via mail I have no idea what is happening and I have a attorney on standby in case I get denied. I can't collect unemployment cause I cannot work due to doctor's order's cause of my epilepsy/seizures.
Donna
.
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
Back to top
Reply to sender
|
Reply to group
|
Reply via web post
Messages in this topic
(1)
2.
Posted by: "Mindy Ziemer"
maziemer@yahoo.
maziemer
Thu Feb 4, 2010 4:12 am (PST)
please unsubscribe me
Mindy A. Ziemer
Back to top
Reply to sender
|
Reply to group
|
Reply via web post
Messages in this topic
(1)
3a.
Re: Magnesium
Posted by: "Shan"
surpriseshan2@
bestsurprise2002
Thu Feb 4, 2010 10:50 am (PST)
I stopped all anti-seizure/
I started reducing my medications about 8 months after starting the transdermal magnesium chloride every day. I started using the transdermal magnesium everyday in spring 2005. I could probably have stopped the anticonvulsants a year before I did, but I was afraid. For the last 11 months I had been takig tegretol 200mg every second day - I had been on 400mg of tegretol 2x a day.
I was afraid as I had been told so many many times that there was no cure for epilepsy and that I would have to take drugs for the rest of my life. And once I tried to stop taking the medications and had a Grand Mal temporal lobe seizure. Another time when I was taking Dilantin, I had been taking only one capsule a day for a year and been controlled so my neurologist thoughtthat I might not need anticonvulsants anymore and told me to stop taking the dilantin. 36 hours later I had a Grand Mal convulsion in the shower. So I had a history of sometimes being controlled by very little drugs. So even though I had been taking so little tegretol for 11 months, I was still scared to stop it completely.
I really wish that I had done more research years before. It is not new knowledge that all epileptics are magnesium deficient. It is not a new knowledge that magnesium deficiency causes seizures. It is not a new knowledge that anticonvulsants and antibiotics deplete magnesium. There are even studies showing that epileptics stop having seizures when treated with magnesium - this is not new knowledge either.
blessings
Shan
--- In epilepsy@yahoogroup
>
> Shan ,
>
> Do I understand you to say that you have stopped all anti-convulsive med and are only taking magnesium?
>
> How long have you been without a sz?
>
> Millie
>
>
>
>
>
>
> ----- Original Message -----
> From: Shan
> To: epilepsy@yahoogroup
> Sent: Wednesday, February 03, 2010 9:10 PM
> Subject: [epilepsy] Re: Mice epilepsy cure raises hopes
>
>
>
> I find this interesting. Especially since I and my parents were told that the Petite Mal seizures I had were genetic. In fact, one Neurologist told me that I was 'testbook case', and I certainly was according to the waves and spikes of the EEG. But I guess genetics must be able to be changed or cured with magnesium - because I have not had those seizures since I stopped the anticonvulsants. Of coarse the fact that anticonvulsants deplete magnesium may have been a factor.....I guess it should not be suprising to me that with many epileptics their seizuers get worse with time.
>
> It is really wonderful to be able to drive a car now and I love my bike.
>
> blessings
> Shan
>
> --- In epilepsy@yahoogroup
>>
>> http://english.
>>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
Back to top
Reply to sender
|
Reply to group
|
Reply via web post
Messages in this topic
(4)
3b.
Re: Magnesium
Posted by: "deacon500@gmail.
deacon500@gmail.
stheller
Thu Feb 4, 2010 12:42 pm (PST)
I'm interested in your story. What kind of testing did you have to find out the magnesium would work? Where do you get in patch form? What dose? Dani's Dad
Sent from my BlackBerry device from Cincinnati Bell Wireless
-----Original Message-----
From:"Shan"< surpriseshan2@
Date: Thu, 04 Feb 2010 18:48:24
To:< epilepsy@yahoogroup
Subject: [epilepsy] Re: Magnesium
I stopped all anti-seizure/
I started reducing my medications about 8 months after starting the transdermal magnesium chloride every day. I started using the transdermal magnesium everyday in spring 2005. I could probably have stopped the anticonvulsants a year before I did, but I was afraid. For the last 11 months I had been takig tegretol 200mg every second day - I had been on 400mg of tegretol 2xa day.
I was afraid as I had been told so many many times that there was no cure for epilepsy and that I would have to take drugs for the rest of my life. And once I tried to stop taking the medications and had a Grand Mal temporal lobe seizure. Another time when I was taking Dilantin, I had been taking only one capsule a day for a year and been controlled so my neurologist thought that I might not need anticonvulsants anymore and told me to stop taking the dilantin. 36 hours later I had a Grand Mal convulsion in the shower. So I had a history of sometimes being controlled by very little drugs. So even though I had been taking so little tegretol for 11 months, I was still scared to stop it completely.
I really wish that I had done more research years before. It is not new knowledge that all epileptics are magnesium deficient. It is not a new knowledge that magnesium deficiency causes seizures. It is not a new knowledge that anticonvulsants and antibiotics deplete magnesium. There are even studies showing that epileptics stop having seizures when treated with magnesium - this is not new knowledge either.
blessings
Shan
--- In epilepsy@yahoogroup
>
> Shan ,
>
> Do I understand you to say that you have stopped all anti-convulsive med and are only taking magnesium?
>
> How long have you been without a sz?
>
> Millie
>
>
>
>
>
>
> ----- Original Message -----
> From: Shan
> To: epilepsy@yahoogroup
> Sent: Wednesday, February 03, 2010 9:10 PM
> Subject: [epilepsy] Re: Mice epilepsy cure raises hopes
>
>
>
> I find this interesting. Especially since I and my parents were told that the Petite Mal seizures I had were genetic. In fact, one Neurologist told me that I was 'testbook case', and I certainly was according to the waves and spikes of the EEG. But I guess genetics must be able to be changed or cured with magnesium - because I have not had those seizures since I stopped the anticonvulsants. Of coarse the fact that anticonvulsants deplete magnesium may have been a factor.....I guess it should not be suprising to me that with many epileptics their seizuers get worse with time.
>
> It is really wonderful to be able to drive a car now and I love my bike
>
> blessings
> Shan
>
> --- In epilepsy@yahoogroup
>>
>> http://english.
>>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
[Non-text portions of this message have been removed]
Back to top
Reply to sender
|
Reply to group
|
Reply via web post
Messages in this topic
(4)
3c.
Re: Magnesium
Posted by: "Millie Myers"
mylmy@gogreencroft.
mylmy
Thu Feb 4, 2010 8:14 pm (PST)
Shan,
What is transdermal magnesium chloride? Do you put it on your skin?
I'm not surprised that you had a sz when you quit taking Dilantin. When I was DX I was told that
I could go with out szs for 20 years and then they night start up again.
What you say is not new knowledge about magnesium is news to me. So I guess I am learning
like I have learned a lot in this group. Is magnesium checked in your blood like when you take
a fasting blood test?
Millie
----- Original Message -----
From: Shan
To: epilepsy@yahoogroup
Sent: Thursday, February 04, 2010 1:48 PM
Subject: [epilepsy] Re: Magnesium
I stopped all anti-seizure/
I started reducing my medications about 8 months after starting the transdermal magnesium chloride every day. I started using the transdermal magnesium everyday in spring 2005. I could probably have stopped the anticonvulsants a year before I did, but I was afraid. For the last 11 months I had been takig tegretol 200mg every second day - I had been on 400mg of tegretol 2x a day.
I was afraid as I had been told so many many times that there was no cure for epilepsy and that I would have to take drugs for the rest of my life. And once I tried to stop taking the medications and had a Grand Mal temporal lobe seizure. Another time when I was taking Dilantin, I had been taking only one capsule a day for a year and been controlled so my neurologist thought that I might not need anticonvulsants anymore and told me to stop taking the dilantin. 36 hours later I had a Grand Mal convulsion in the shower. So I had a history of sometimes being controlled by very little drugs. So even though I had been taking so little tegretol for 11 months, I was still scared to stop it completely.
I really wish that I had done more research years before. It is not new knowledge that all epileptics are magnesium deficient. It is not a new knowledge that magnesium deficiency causes seizures. It is not a new knowledge that anticonvulsants and antibiotics deplete magnesium. There are even studies showing that epileptics stop having seizures when treated with magnesium - this is not new knowledge either.
blessings
Shan
--- In epilepsy@yahoogroup
>
> Shan ,
>
> Do I understand you to say that you have stopped all anti-convulsive med and are only taking magnesium?
>
> How long have you been without a sz?
>
> Millie
>
>
>
>
>
>
> ----- Original Message -----
> From: Shan
> To: epilepsy@yahoogroup
> Sent: Wednesday, February 03, 2010 9:10 PM
> Subject: [epilepsy] Re: Mice epilepsy cure raises hopes
>
>
>
> I find this interesting. Especially since I and my parents were told that the Petite Mal seizures I had were genetic. In fact, one Neurologist told me that I was 'testbook case', and I certainly was according to the waves and spikes of the EEG. But I guess genetics must be able to be changed or cured with magnesium - because I have not had those seizures since I stopped the anticonvulsants. Of coarse the fact that anticonvulsants deplete magnesium may have been a factor.....I guess it should not be suprising to me that with many epileptics their seizuers get worse with time.
>
> It is really wonderful to be able to drive a car now and I love my bike.
>
> blessings
> Shan
>
> --- In epilepsy@yahoogroup
>>
>> http://english.
>>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
[Non-text portions of this message have been removed]
Back to top
Reply to sender
|
Reply to group
|
Reply via web post
Messages in this topic
(4)
4.1.
Re: keppra
Posted by: "uniquepnk tds.net"
Uniquepnk@tds.
uniquepnk
Thu Feb 4, 2010 6:55 pm (PST)
Tim,
I was switched to the Keppra XR about 6 or& months ago. My neurologist
didn't want me to take the generic form of the regular Keppra. I take the
Keppra XR just like I did the Keppra. Twice a day. One 500mg of the morning
and one at night. They seem to work better with a smaller dose. I was on
2,000 mgs of the regular Keppra.The Keppra XR stays in your bloodstream at a
constant level, as for the regular Keppra it gets to its peak and then goes
back down when it is time for the next dose. I am on 300mgs a day of the
Vimpat too.
Tammy
On Wed, Feb 3, 2010 at 10:41 PM, TIMOTHY BALDWIN< tbb1@prodigy.
>
>
> Is there a reason that people try Keppra with its twice daily use, instead
> of Keppra XR when Keppra XR only needs to be taked once a day. Is it just
> because generics are available for this stuff. I'm on Keppra XR 500mg 2 once
> daily at bedtime; with, Vimpat 100mg 3 1/2 tabs twice daily.
> Tim Baldwin
>
> ____________
> From: mariea< annaackermann@
> To: epilepsy@yahoogroup
> Sent: Wed, February 3, 2010 9:28:20 PM
> Subject: [epilepsy] keppra
>
>
>
> Increase in keppra from 500mg twice daily to 1000mg twice daily with the
> 600mg lamictal already on. Keppra is a"new" drug for me. The lamictal
> worked well for so long.Now I have more hand tremors, noticed having more
> involuntary jerking movements at nite. Not convulsions, just jerking,not
> sure if it is related to the muscle spasms or not. I can feel this feeling
> of"electrical surges" shooting up back of my neck at times mostly at night.
> So I really don't know if this is d/t the meds or if type of seizure. I go
> to a different neuro. on the 10th. Had eeg and 3 mri 5th of last month and
> of course not talked to just here take this, wasn't happy with hospital at
> all so my doctor is sending me to the neuro he sees. Anyway I also don't
> feel hungry and when i do eat i feel overly full and nausea.Does any one
> have any of these issues?
> MarieA
>
> [Non-text portions of this message have been removed]
>
>
>
[Non-text portions of this message have been removed]
Back to top
Reply to sender
|
Reply to group
|
Reply via web post
Messages in this topic
(158)
Recent Activity
*
9 *
New Members *
*
2 *
New Photos *
Visit Your Group
Yahoo! Groups
Going Green
Explore green tips
and resources
Yahoo! Groups
Mental Health Zone
Learn about issues
Find support
Group Charity
Citizen Schools
Best after school
program in the US
Need to Reply?
Click one of the "Reply" links to respond to a specific message in the Daily Digest.
Create New Topic |
Visit Your Group on the Web
Messages
| Files<http://groups.
| Photos<http://groups.
| Links<http://groups.
| Database<http://groups.
| Polls<http://groups.
| Members<http://groups.
| Calendar<http://groups.
Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply to them. This is especially important if you are on digest. This not only helps out the list owner but, it makes messages much easier to read when they arrive in our inboxes.
Change settings via the Web (Yahoo! ID required)
Change settings via email: Switch delivery to Individual<mailto:epilepsy-normal@
Visit Your Group |
Yahoo! Groups Terms of Use |
Unsubscribe
No comments:
Post a Comment