Ok so I am one of the parents here. Julia born with a brain tumor and
now uncontrollable seizures. I am so tired of watching seizures then
Julia goes to sleep, wake up siezure go back to sleep...get our
pattern here. It's no wonder that she will be 2 next month and still
a 6 - 8 month old developmentally her darn brain won't let her
develop! I am simply having a poor me WTF kind of day. I just went
and got a handicap plackard for the car it's getting kinda hard to get
Julia to and from the car when idot people park too close. I have had
to open the back hatch of my tahoe and put her in that way before. I
really don't understand what did I do to deserve this hell that I am
in. Yes I consider watching thousands of seizures and fighting for
every inch of development I get out of Julia hell. The
seizures...well it's like watching her die and I am tired of it. Then
I have these people with "perfect" kids that look at me and Julia like
we're the plague. I have 2 normal kids too and I try to make life
normal when our lives are FAR from normal. Then I have these parents
who can't even move their feet out of my way when I walk into the
gymnastics waiting room pushing Julia (2 yo) and caring Kiley (10
months). I don't expect pity or expect people to get up and help with
the door I don't expect anything simply GET THE F OUT OF MY WAY!!! I
mean really simply move your feet so the wheels of the stroller won't
hit your feet honestly is that too much to ask. Then when the class
is over why the heck do I need to wait for your kid to tell your
friend about their costume, then struggle to put her shoes on, then
watch you stop and chat on the way out the door. SIMPLY GET OUT OF MY
WAY!!!! I didn't ask for a special needs kid and God should know I
don't want a special needs kid so, if I hear one more person say, "
you handle all this so well" I am going to SCREAM!!!! I just want to
say well you idot I don't have a choice and I really wish it was you
and not me!!!!!
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