When we say admitting to having it, was wondering what that meant. I personally don't go out announcing it to
everyone I meet, but if someone happens to see me not feeling well or something and happens to ask I never
hide it.
During my working years I had a participant I cared for 30yr old + and according to Dr. brain span of 1 half
year. He would be quite content to just sit and play in his sand box, or give him a certain cereal box or
empty milk container and he was in his glory. Never spoke, yet and immediately knew if you told him not to
touch something. Well you put newer staff in front of him it was so cute...smart as a whip as down went the
cardboard box and spent all his time doing everything she told him not to touch etc, then sit there with the
biggest grin on his face. Now if that isn't smart tell me what is. There were many like that one that liked
puzzles and would have them done before you even started. Another put a guitar in his hand and he could make
unbelievable music for the group.
Thought I was the only one in our tiny country town here until my hubby pointed out one on a Sunday as he
walked down main street coming home from church. All dressed in a suit and tie and yet would of never been
able to pick out of crowd, and told he had epilepsy all his life and thought mine was bad!! ouch after I heard
his story.
When I look at some of the videos of GM on here, they don't come close to what I did so could not even begin
to imagine what this man was going.
Julie
Julie Hope
epilepsyhealth@
http://www.2betrhea
----- Original Message -----
From: "Steve" <stephenpales@
To: <epilepsy@yahoogroup
Sent: Saturday, October 31, 2009 9:28 AM
Subject: [epilepsy] Re: exposure for epilepsy
Hey, you mention Nathan Milstein having epilepsy. I think more about Presient James Madison who had epilepsy
during his years before becoming President (talk about little guys, smile)! Talk about a stressful job, and
during the civil war!
Hey, I've never felt embarassed having epilepsy! Everybody I know knows I have epilepsy, why hide it? If
they want to know me, why hide it? Its part of me! To me people always seem interested in understanding and
learning about it. Its interesting to me how many people I talk with say they know somebody who has epilepsy.
I tell them about this group, how to find it. I give them my email address in case they would enjoy getting
in touch.
You mention a brain devastated disease. Well, the electrical shocks zapped in me through my life from
seizures has devastated my left temporal lobe, it actually shrunk it in size as that side of my brain is very
weak, pretty useless as compared to the right temporal lobe. Wouldn't you say that has devastated my left
side of my brain? That was fully shown when I had a WADA test! Not only does an MRI show the smaller left
temporal lobe. But the WADA test specifically each side of the brain shows how devastated the left side is!
Whats to feel embarassed about? So yes, my brain on my left side is brain devastated! That's why the use of
my brain went across to peace on the right side where their is more peace and a safer area to live (big
smile)! Living in electrical war wasen't fun for my brain I'm sure. Sort of like my ancestors traveling
across the pond for peace in the United States ( big smile).
Hey, we all have to live our lives and smile, if not, then what! Believe me, I know what that feels like, boy
do I know that feeling! Deep depression isn't fun to go through, even small depression feelings that come and
go! Take care, keep a smile on your face!
Steve
--- In epilepsy@yahoogroup
>
> For people with or know someone with EpiAfter watching the videos which were shared here and which stated
> that 50 million people have epilepsy, I ask - do all 50 million want to be represented as having a
> "terminal" "brain devastating" disease? May I remind that those who suffer that type of seizure are a very
> small percentage and most folks with a seizure disorder are normal to high achievers? Many high IQ folks
> also....
>
> For example: Nathen Milstein who was one of the world's greatest violinists and so forth.
>
> No wonder so many are hesitant to admit having it. With that type of publicity, who wants to be thus
> branded... :( How about some REAL awareness of epilepsy... like... your neighbor who looks totally "normal"
> may actually have it?
>
> Sue
>
> [Non-text portions of this message have been removed]
>
------------
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