Monday, October 26, 2009

[epilepsy] about 60 minutes

 

It was an OK show. I am always disappointed when people with epilepsy are all lumpled together as unable to function in society without help. I realize meds are help but only talking about people who need implants or have a susbstantial amount of brain damage, usually from seizures as a young child, misrepresents the disorder.

If there are so many people with epilepsy then I can only surmise most of us quietly lead our lives, taking our meds and hardly ever having a seizure. We don't tell anyone except people we can really trust (as I do) so the statistics are probably way off.

I know there are people in this group who don't have auras and have major difficulties in the world. Folks who just black out (which scares the heck out of me)and others who have auras and can get out of harm's way. I also know there are people here who are trying to cope with not being able to help their children with epilepsy. There are also people who are really mad at the world for foisting this on them (yes, I did read your entire post). My point is that the ONLY commonality we have with our disorder is that it is called "epilepsy."

So just once I would like to see a news story that shows the whole story. We are just people, young and old.

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