Hi Uggie,
I am also a new person in this group. I have a daughter who is 14
years old. She has had epilepsy most of her life. She takes keppra
250mg twice a day and trileptal 900mg in divided doses.
I am wondering about your daughter's headaches and if you have tried
eliminating unnatural food additives. If you haven't tried it, I
would highly recommend that you take out of her diet all foods with
red 40 coloring, all unnatural food colorings, all unnatural food
flavorings, and preservatives. These unnatural additives are known
to cause severe headaches in children and adults. I know a boy who
had weeks of severe headaches and his doctor told his parents to
eliminate all foods with Red 40. His headaches completely quit. I
discovered when I eliminated all these additives in my family, I quit
having headaches. Later I realized that the preservatives in bread
gave me severe headaches in the afternoon. Vanillin (fake vanilla)
found in most chocolate and sweets, gave me headaches if I ate it 2-3
days in a row.
Rhonda
--- In epilepsy@yahoogroup
>
>
>
> Hi my name is Uggie (Sharon), I am a SAHM who subs in our local
school
> district in the cafeteria. I have 3 children: Mindy(Min) 16,
Megan 8, and
> Teddy 2. My hubby is Ed who is a owner/operator truck driver and
runs East
> of the Mississippi.
>
> We live in W. Pa on 4 acres with our cat P'nut Butter and Betta
fish Mr
> Fishy and Indigo. Just had to give away our American Bulldog
Bandit -
> couldn't get anyone to take care of my younger 2, while Min was
hospitalized
> this last time, and couldn't leave him home alone for 2 days......
>
> I joined this group so that hopefully someone on here can lead me
to better
> info than I have found about Grand Mals.... Including how long
these side
> effects will last - I have included below a history on her seizure
disorder
>
> Brief history on Mindy and her seizures.
>
> *As an infant she had 1-3 febrile seizures(fever related)
> *As a Toddler (age 3-5) she had Atonic (drop attack) seizures. Had
migraines
> after seizure was done.
> *As a pre-teen (ages 9- present) she had petit mal(day dream)
seizures.
> Has been seizure free for over a yr now - still on meds though.
> *Migraine has been non-stop since Jan 17th - lowest pain level has
been a 4
> *Grand Mal seizure on Sat - may or may not happen again
> -no memory of anything that happened on Friday or Sat (remembers
being at
> hosp, cant remember y)
> -at hospital could remember she was born in Oct, no date though.
> -No memory of night at movies with her friends either
> -no memory of leaving Rayna's house or even being home b4 the
hospital.
> -still disoriented and occasional dizziness lingering.
> -limited range of motion and weakness in upper extremeties
> -was just at store and as she held onto grocery cart - the store
started to
> spin on her.
>
> **Current seizure meds
> Keppra 500 mg (2x day)
>
> Thanks for allowing me to join your group!!
> Any questions? Just ask.....
>
> Uggie
>
>
>
>
> 
> ----------
>
>
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>
>
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>
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