Seedsaver, Sorry--Don't know your name
I agree. There was so much more that could have been said about
we who have EP. I think there should be a whole hour or 2 where
it tells of some of us who are pretty much controlled, the dogs
people have, the methods we use to remind us to take our meds,
triggers for some, etc.
Of course it was put on by CURE and they want to get money to
cure EP. That is why I think they kept it at that level. I don't know
as that will ever happen -- because the brain is so complicated.
Did any of you write something after the movie? This morning
58 people had written and most were uncontrolled. I haven't
checked tonite.
Millie
----- Original Message -----
From: "seedsaver1949" <seedsaver1949@
To: <epilepsy@yahoogroup
Sent: Monday, October 26, 2009 6:37 PM
Subject: [epilepsy] about 60 minutes
> It was an OK show. I am always disappointed when people with epilepsy are
> all lumpled together as unable to function in society without help. I
> realize meds are help but only talking about people who need implants or
> have a susbstantial amount of brain damage, usually from seizures as a
> young child, misrepresents the disorder.
>
> If there are so many people with epilepsy then I can only surmise most of
> us quietly lead our lives, taking our meds and hardly ever having a
> seizure. We don't tell anyone except people we can really trust (as I do)
> so the statistics are probably way off.
>
> I know there are people in this group who don't have auras and have major
> difficulties in the world. Folks who just black out (which scares the heck
> out of me)and others who have auras and can get out of harm's way. I also
> know there are people here who are trying to cope with not being able to
> help their children with epilepsy. There are also people who are really
> mad at the world for foisting this on them (yes, I did read your entire
> post). My point is that the ONLY commonality we have with our disorder is
> that it is called "epilepsy."
>
> So just once I would like to see a news story that shows the whole story.
> We are just people, young and old.
>
>
>
>
>
> ------------
>
> Just a friendly reminder: Please remember to sign your post and remember
> to clean up messages when you reply to them. This is especially important
> if you are on digest. This not only helps out the list owner but, it
> makes messages much easier to read when they arrive in our inboxes.
>
> Yahoo! Groups Links
>
>
>
>
>
Change settings via the Web (Yahoo! ID required)
Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional
Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe
No comments:
Post a Comment