Saturday, August 1, 2009

[epilepsy] Re: Is this an issue for anyone else?

 

Thanks Millie!

It's fascinating how it effects every single one of us Eps in a different way. I think that is the biggest challenge we have, with the rest of the world. No matter what they expect of us, they don't know, and will never know, what to expect unless they get Ep themselves. And we don't even really know! Yet, once we step outside their generalizations, many are intolerant. It's up to groups like this to figure out how to manage that. As far as I'm concerned it's not really about us, it's about them. Who to let in to our lives, who to keep out, and how to treat those who are in. It's tricky! But fascinating. I would love your thoughts on that! YOu have so much experience. Please check out the blog about LIVING with Epilepsy I started last month. Lately it's focused on Epilepsy and work: http://lyndamcguirk.blogspot.com/
Any pearls of wisdom you would like to share there would be appreciated!

Thanks again, Lynda

--- In epilepsy@yahoogroups.com, mylmy@... wrote:
>
> Hi Lynda,
>
> Welcome to our group.
>
> Although I have had Ep for 47 years I have learned a lot from this
> group. Everybody is different so that makes it interesting.
>
> Millie
>
>
>
>
> > Hi Y'all,
> >
> > I'm so glad to see this topic in here. Yes, I believe age has to be
> > considered. Certain changes are normal, for anyone, like a drop in desire.
> > I have brought this up with my GP and NP. Each had the same response, but
> > not without acknowledging that my temporal lobe injury and seizure meds
> > (Keppra) could be contributuing to my lack of desire. Yet, as time goes
> > on, it's changing. It's not exactly like it was before, but it did come
> > back. It's been 6.5 years since my injury. My attraction to men was always
> > first with their intellect. True originality is my biggest turn-on. No
> > matter what he looks like. And that type usually is consumed with their
> > ideas first, anyway. So the sex is hot and fast, just the way I like it. I
> > have always been bored with men who need it over and over and over again.
> > Don't they have something else to think about? Please. See...I'm back to
> > normal. It just takes time. And, as always, having people in your life who
> > truly love and
> > accept you for who you are. Your lack of desire isn't about them. It's
> > about you. You are with them because you care about them, in the first
> > place, right?
> >
> > Lynda
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
> >
>

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