Thanks, Keena. :)
I'm on reg generic Keppra, but I have it figured out. :) It apparently elevated my thyroid levels just enough to put me in hell, so I'm taking a lower dose of thyroid med and already feel MUCH better. :) I'd say I'm about 90% now, especially after my nap about an hour ago. :) What a ride!!!!!!!! At least I know now...
((((((((((((
LIZARD :)
--- On Sun, 8/30/09, Jeff Stewart <jeffro7946@yahoo.
From: Jeff Stewart <jeffro7946@yahoo.
Subject: Re: [epilepsy] What in the world...and my poo-pooed Keppra issue
To: epilepsy@yahoogroup
Date: Sunday, August 30, 2009, 4:17 PM
Lizard
I just went and looked at the personal perscription info sheet from just refilling her Keppra XR any who on the cantact your dr immediately says fever chills are trouble sleeping it has a bunch more as well hope this helps
Keena
____________ _________ _________ __
From: Liz Welker <lizard110366@ yahoo.com>
To: epilepsy@yahoogroup s.com
Sent: Sunday, August 30, 2009 5:08:31 AM
Subject: Re: [epilepsy] What in the world...and my poo-pooed Keppra issue
Well...lo and behold, last night I learned that Keppra can change thyroid levels!!!!!! !! I now recognize that I have some signs of slight hyperthyroid, and probably just enough to matter, since I seem to have a very small comfortable window...so tomorrow, I will call both my endo and nsg to see what can be done about this.
Thanks, hon'! :)
((((((((HUGS) ))))))))) ,
LIZARD :)
--- On Sun, 8/30/09, Julie Hope <epilepsyhealth@ sasktel.net> wrote:
From: Julie Hope <epilepsyhealth@ sasktel.net>
Subject: Re: [epilepsy] What in the world...and my poo-pooed Keppra issue
To: epilepsy@yahoogroup s.com
Date: Sunday, August 30, 2009, 12:31 AM
And those feelings (crappy/sleepy/ fever) are nothing to joke about...you sure don't feel good...period.
Julie
Julie Hope
epilepsyhealth@ sasktel.net
http://www.2betrhea lth.com
----- Original Message -----
From: "Liz Welker" <lizard110366@ yahoo.com>
To: <epilepsy@yahoogrou p s.com>
Sent: Saturday, August 29, 2009 7:52 AM
Subject: ReRe: [epilepsy] What in the world...and my poo-pooed Keppra issue
Thanks, Julie. :)
I'm very sure. I sleep 'til 3:30 or 4 am and then wake up hot. There are NO other symptoms, and my szs have
always started with a 3-4 min aura that wakes me up. There have been none since I started Keppra. No
post-ictal signs at all, just crappy sleep and fever.
I am finding out that Melatonin can also aggravate fever, but I had this problem long before I started
Melatonin a couple of weeks ago.
LIZARD :)
--- On Fri, 8/28/09, Julie Hope <epilepsyhealth@ sasktel.net> wrote:
From: Julie Hope <epilepsyhealth@ sasktel.net>
Subject: ReRe: [epilepsy] What in the world...and my poo-pooed Keppra issue
To: epilepsy@yahoogroup s.com
Date: Friday, August 28, 2009, 11:44 PM
oops sorry Liz. Very sorry. What time of evening do you take your meds? Possibly if taken earlier the a.m.
would come sooner. Are you sure you aren't having a seizure just before arising? This or just after going to
sleep is when they usually hit if a nocturnal one. If you have one then it only makes sense you would be
sluggish in the a.m. Can sympathize with you in that department 100%.
Also have an autistic nephew so can link to there too.
Have a good night .... will be thinking of you in a.m.
Julie
Julie Hope
epilepsyhealth@ sasktel.net
http://www.2betrhea lth.com
----- Original Message -----
From: "Liz Welker" <lizard110366@ yahoo.com>
To: <epilepsy@yahoogrou p s.com>
Sent: Friday, August 28, 2009 8:40 PM
Subject: ReRe: [epilepsy] What in the world...and my poo-pooed Keppra issue
He's not taking anything. I am. I'm the one with the epi.
LIZARD :)
--- On Fri, 8/28/09, Julie Hope <epilepsyhealth@ sasktel.net> wrote:
From: Julie Hope <epilepsyhealth@ sasktel.net>
Subject: ReRe: [epilepsy] What in the world...and my poo-pooed Keppra issue
To: epilepsy@yahoogroup s.com
Date: Friday, August 28, 2009, 9:26 PM
Liz
What time of night does he take his last med? Those meds are strong believe me and if taken to late like I
sometimes do I also have trouble getting going in the a.m. He isn't having a seizure of any kind during the
night is he....that would sure make him sleepy or just not very responsive first thing in a.m.
When he starts/adds this new drug to his agenda watch for the first bit for any new changes. Might be a good
time, though you prob. do already, start a diary and see how it affects him. Possibly the a.m. sluggishness
with change and he will be sleepier at night? You just never know. And how Keppra affects another person could
affect him just the opposite. Nobody is the same.
Best of luck.
Julie
Julie Hope
epilepsyhealth@ sasktel.net
http://www.2betrhea lth.com
----- Original Message -----
From: "Liz Welker" <lizard110366@ yahoo.com>
To: <epilepsy@yahoogrou p s.com>
Sent: Friday, August 28, 2009 6:32 PM
Subject: ReRe: [epilepsy] What in the world...and my poo-pooed Keppra issue
He takes his shower at night so just has to get up, get dressed, and eat, but it can be quite the ordeal
kicking him into gear.
LIZARD, not looking forward to it...starting Wed
--- On Fri, 8/28/09, Danny Newell <bigboy46@sbcglobal . net> wrote:
From: Danny Newell <bigboy46@sbcglobal . net>
Subject: ReRe: [epilepsy] What in the world...and my poo-pooed Keppra issue
To: epilepsy@yahoogroup s.com
Date: Friday, August 28, 2009, 7:46 PM
you never had a problem with him taking a bath or shower so he will get dressed then.
--- On Fri, 8/28/09, Liz Welker <lizard110366@ yahoo.com> wrote:
From: Liz Welker <lizard110366@ yahoo.com>
Subject: ReRe: [epilepsy] What in the world...and my poo-pooed Keppra issue
To: epilepsy@yahoogroup s.com
Date: Friday, August 28, 2009, 4:10 PM
No, thank God; none of that. I just have to prod him out of bed and make sure he gets dressed, make his
breakfast, and get him out the door.
LIZARD :)
--- On Fri, 8/28/09, Danny Newell <bigboy46@sbcglobal . net> wrote:
From: Danny Newell <bigboy46@sbcglobal . net>
Subject: ReRe: [epilepsy] What in the world...and my poo-pooed Keppra issue
To: epilepsy@yahoogroup s.com
Date: Friday, August 28, 2009, 3:40 PM
does getting him up that early a big chore for you, do you have to help him with bathing and changing his
bedding if he wets the bed everyday. i know with me i have always wet the bed and then my teens i would wet
the bed on and off. my mother would have to help me with cleaning my ears and washing my hair in the bath tub
since i couldn't get my ears cleaned and couldn't get my hair washed right and cleaned. that what my difficult
situation i had as a child growing up.
--- On Fri, 8/28/09, Liz Welker <lizard110366@ yahoo.com> wrote:
From: Liz Welker <lizard110366@ yahoo.com>
Subject: ReRe: [epilepsy] What in the world...and my poo-pooed Keppra issue
To: epilepsy@yahoogroup s.com
Date: Friday, August 28, 2009, 8:06 AM
Hey, Lynette. :)
Thanks for this. Does Klonopin leave you hung over? My son (15, autistic) starts school Wed and I have to get
him up at about 6 am.
'Preciate it!
LIZARD :)
--- On Fri, 8/28/09, Lynette Dye <dyellis@yahoo. com> wrote:
From: Lynette Dye <dyellis@yahoo. com>
Subject: ReRe: [epilepsy] What in the world...and my poo-pooed Keppra issue
To: epilepsy@yahoogroup s.com
Date: Friday, August 28, 2009, 9:48 AM
Liz,
My Nuero gave me a little Klonopin in the pm to help me sleep. I am very happy with Keppra and sleep very well
now. Sweet dreams to you.
My best to you,
Lynette
____________ _________ _________ __
From: Liz Welker <lizard110366@ yahoo.com>
To: epilepsy@yahoogroup s.com
Sent: Friday, August 28, 2009 6:25:05 AM
Subject: ReRe: [epilepsy] What in the world...and my poo-pooed Keppra issue
Okay...there' s some hypocrisy going on here. Yes, I am sure that some people may find that MSG and other
things can aggravate their szs, but it's clear that it isn't many of us. I think that, if this is a subject
that interests some people, it should be discussed through private e-mailing.
At the same time, I am desperately struggling to sleep through the night for 2 months, and it's documented
that fever and insomnia are both possible effects of Keppra, yet because so many of you claim not to have had
these problems, you're telling me they don't exist. GOOGLE IT!!!!!!!! There is info out there, and my pharm
even pointed it out. I came here for HELP, and dismissal (for the most part) is what I have been getting. If
you're going to support Craig's discussion about MSG, why not mine?? I would be more than happy to discuss it
off-list. Keppra is the ONLY med to EVER control my SPs, and I would like to stay on it for that reason, but I
need validation and tips on getting--and staying--asleep. Already tried AmbienCR and Melatonin.
LIZARD, ready to leave
--- On Thu, 8/27/09, Tim H <deacon500@gmail. com> wrote:
From: Tim H <deacon500@gmail. com>
Subject: Re: [epilepsy] What in the world.
To: epilepsy@yahoogroup s.com
Date: Thursday, August 27, 2009, 9:48 PM
Hello,
I would say a little more respect is needed by those on this list who can't
seem to handle Craig's issue with MSG. This is a scientifically documented
problem: some people with epilepsy have more seizure activity when they
consume foods with MSG. I too support Craig's right to discuss MSG +
seizure related issues. If this is such a problem for a few of you, simply
delete his message when it appears in your email.
Peace,
Tim H.
"Dani's Dad"
On Thu, Aug 27, 2009 at 10:00 AM, Jewl Wall <wallja99@fightfor. org> wrote:
>
>
> Everyone,
>
> What is the problem of his talking about his trouble with MSG?
> If you see the subject line delete it, before reading it.
>
> Others talk about their medications problems more than once. I talk about
> seizure alert dogs and it is under my signature. I know of another question
> and poll that keeps coming up that everyone "always" answers No to but it
> keeps coming up.
>
> I tell the same story over and over when new people join on how my epilepsy
> started.
>
> Some one new joined and Craig said Hi and told a little about himself and
> included the MSG. They might have this same trouble or never thought this
> maybe a part of their condition they need to look at.
>
> Than for doing that he was bashed three times by three different people, so
> yes that brought up the topic again, but not by Craig's doing.
>
> Now he is getting bashed again which still leaves the topic on the list.
>
> If he wants to say Hi to people there is nothing wrong with him telling his
> story.
>
>
> Jewl, TX
>
> Information on Seizure Response/Alert Dogs
>
> http://www.homestea http://www.homestea d.com/Tagert/ MsJewl.html>
> d.com/Tagert/ MsJewl.html
>
> [Non-text portions of this message have been removed]
>
>
>
--
Visit My blog:
http://mensgrief. blogspot. com/
____________ _______
< ' )))><
One is called to live nonviolently, even if the change one works for seems
impossible. It may or may not be possible to turn the U.S. around through
nonviolent revolution. But one thing favors such an attempt: the total
inability of violence to change anything for the better.
- Daniel Berrigan, poet, peace activist, and priest.
< ' )))><
"To the true servant of God every place is the right place and every time is
the right time."
- Catherine of Siena,
St. Catherine of Siena as Seen in Her Letters.
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