Monday, August 31, 2009

Re: [epilepsy] Transport with sz meds

 

Jason,

You are going to have to remember that most people have
not seen a sz and to them it is scary. The person who
called 911 probably did not read your card but called 911.

You said you woke up in the ambulances-- so when they picked
you up when you couldn't respond -- so they were doing their
job and read your card after they picked you up. And when you
talked to your wife you weren't with it enough to tell her
where you were. They took you to a place that is not expensive --
if I recall from when my daughter lived in Oregon.

Millie

> I have a silver bracelet with the standard medical cadeuseus symbol on the
> outward side. I took a pic of it just now and left it here:
>
> http://plug.thruhere.net/images/medical_bracelet.jpg
>
> (You can also see the huge gash on my forehead from a seizure a few weeks
> ago where I gashed my forehead on a piece of furniture during a 4 AM
> fugue.)
>
> I pretty much gave up on the idea of etching my life story on the inside
> surface, so on the inside it just says
>
> EPILEPSY
> SEE CARD IN WALLET
>
> The idea is, if someone is going to rifle through my pockets anyway to see
> who I am, I'll print the info on a credit-card sized card and stick it in
> the wallet's photo slot. EPILEPSY - complex partial seizures - secondary
> generalization - SEIZURES LAST SEVERAL MINUTES - DO NOT CALL 911; NOT
> NECESSARY - meds 600mg Lamictal / 800 mg Trileptal address 911 Bing Drive
> yak yak yak etc etc etc. It also says to call my wife's cellphone.
>
> I'll give myself credit for being articulate but still I don't know how to
> warn people about possible fugues on a little card, in so many words, with
> no fear of it backfiring. So the card doesn't say anything about those.
> They've gotten worse since I last updated it.
>
> That card worked once, sort of. So I always have to bore everyone with
> this
> same story, where the first thing I remembered was waking up in the
> ambulance and a woman saying, "Don't worry, we read your little card and
> know everything." (I'm obviously paraphrasing, but something like that.)
> And
> I say "sort of", because whoever called 911 on their cellphone obviously
> didn't read the card as they drove past.
>
> The ambulance driver recognized me, from having picked me up at my house
> two
> days before. He said, "hey, I know you, we picked you up for a seizure on
> Friday night! I live right next to you!" So that was interesting. (In
> retrospect, riding a bicycle during a seizure cluster is crazy, but I
> wasn't
> aware of the cluster I was in.)
>
> The lady then asked me, OK, where do you want us to take you? (There are a
> bunch of hospitals around here.) I kept saying I wanted to go over to his
> place (ha) but she kept saying, "Well, we could, but that would definitely
> be AMA." I was kind of delirious (and had the other injuries) so I said
> "OK
> whatever" and they took me to a hospital; later someone handed me a phone
> and walked away. I called my wife at home and surprised her. I didn't even
> know what hospital ER I was in (nobody was around, and I was still
> strapped
> to a board) and being delirious I forgot to mumble that before hanging up.
> (It turned out to be the off-network Kaiser Permanente near here that we
> never go to.) She had to do emergency detective work to find the ER with
> me
> in it. I sometimes wonder how other people can get along without exciting
> things happening in their lives.
>
> Jason
>
>
> [Non-text portions of this message have been removed]
>
>

__._,_.___
Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply to them.  This is especially important if you are on digest.  This not only helps out the list owner but, it makes messages much easier to read when they arrive in our inboxes.

Recent Activity
Visit Your Group
Give Back

Yahoo! for Good

Get inspired

by a good cause.

Y! Toolbar

Get it Free!

easy 1-click access

to your groups.

Yahoo! Groups

Start a group

in 3 easy steps.

Connect with others.

.

__,_._,___

No comments:

Post a Comment