Yes, that's right. He did wet the bed until he was 6 or 7, so we went through that, too. He's 15 now, and he's quite high-functioning. In fact, he's not even on any med for anything, and for that, I know we're really fortunate. (My statement was worth repeating, though. Apparently, some here were confused.)
I have an update to my situation I will post separately. I think I'm getting it all figured out now!! :)
LIZARD :)
--- On Sat, 8/29/09, Danny Newell <bigboy46@sbcglobal.
From: Danny Newell <bigboy46@sbcglobal.
Subject: Re: [epilepsy] What in the world...and my poo-pooed Keppra issue (Clarification)
To: epilepsy@yahoogroup
Date: Saturday, August 29, 2009, 4:46 PM
yes i know that you are the one that has seizures and not your son. what i was saying that some children with autism does have a bedwetting problem. you are very lucky your son does not wet the bed then. but you said it is difficult to get your son out of bed and dressed and breakfast before sending him off to school. you have a hard time getting yourself out of bed to get your son up then.
--- On Sat, 8/29/09, Liz Welker <lizard110366@ yahoo.com> wrote:
From: Liz Welker <lizard110366@ yahoo.com>
Subject: Re: [epilepsy] What in the world...and my poo-pooed Keppra issue (Clarification)
To: epilepsy@yahoogroup s.com
Date: Saturday, August 29, 2009, 6:42 AM
Okay...let me be clear about this: I am the one in the house with epi. My son does not have it. I posted to get input on dealing with fever and insomnia from Keppra since I started it nearly 2 months ago.
LIZARD :)
--- On Fri, 8/28/09, Danny Newell <bigboy46@sbcglobal
From: Danny Newell <bigboy46@sbcglobal
Subject: Re: [epilepsy] What in the world...and my poo-pooed Keppra issue
To: epilepsy@yahoogroup s.com
Date: Friday, August 28, 2009, 11:00 PM
oh o.k., i bet it can be quite an ordeal, you just lucky he doesn't wet the bed. that would make things a lot harder to deal with. i know when i have a seizure in bed at night i seem to wet the bed all the time myself. plus i was a bedwetter growing up. i was always a very deep sleeper and that didn't help at all.
--- On Fri, 8/28/09, Liz Welker <lizard110366@ yahoo.com> wrote:
From: Liz Welker <lizard110366@ yahoo.com>
Subject: Re: [epilepsy] What in the world...and my poo-pooed Keppra issue
To: epilepsy@yahoogroup s.com
Date: Friday, August 28, 2009, 5:32 PM
He takes his shower at night so just has to get up, get dressed, and eat, but it can be quite the ordeal kicking him into gear.
LIZARD, not looking forward to it...starting Wed
--- On Fri, 8/28/09, Danny Newell <bigboy46@sbcglobal . net> wrote:
From: Danny Newell <bigboy46@sbcglobal . net>
Subject: Re: [epilepsy] What in the world...and my poo-pooed Keppra issue
To: epilepsy@yahoogroup s.com
Date: Friday, August 28, 2009, 7:46 PM
you never had a problem with him taking a bath or shower so he will get dressed then.
--- On Fri, 8/28/09, Liz Welker <lizard110366@ yahoo.com> wrote:
From: Liz Welker <lizard110366@ yahoo.com>
Subject: Re: [epilepsy] What in the world...and my poo-pooed Keppra issue
To: epilepsy@yahoogroup s.com
Date: Friday, August 28, 2009, 4:10 PM
No, thank God; none of that. I just have to prod him out of bed and make sure he gets dressed, make his breakfast, and get him out the door.
LIZARD :)
--- On Fri, 8/28/09, Danny Newell <bigboy46@sbcglobal . net> wrote:
From: Danny Newell <bigboy46@sbcglobal . net>
Subject: Re: [epilepsy] What in the world...and my poo-pooed Keppra issue
To: epilepsy@yahoogroup s.com
Date: Friday, August 28, 2009, 3:40 PM
does getting him up that early a big chore for you, do you have to help him with bathing and changing his bedding if he wets the bed everyday. i know with me i have always wet the bed and then my teens i would wet the bed on and off. my mother would have to help me with cleaning my ears and washing my hair in the bath tub since i couldn't get my ears cleaned and couldn't get my hair washed right and cleaned. that what my difficult situation i had as a child growing up.
--- On Fri, 8/28/09, Liz Welker <lizard110366@ yahoo.com> wrote:
From: Liz Welker <lizard110366@ yahoo.com>
Subject: Re: [epilepsy] What in the world...and my poo-pooed Keppra issue
To: epilepsy@yahoogroup s.com
Date: Friday, August 28, 2009, 8:06 AM
Hey, Lynette. :)
Thanks for this. Does Klonopin leave you hung over? My son (15, autistic) starts school Wed and I have to get him up at about 6 am.
'Preciate it!
LIZARD :)
--- On Fri, 8/28/09, Lynette Dye <dyellis@yahoo. com> wrote:
From: Lynette Dye <dyellis@yahoo. com>
Subject: Re: [epilepsy] What in the world...and my poo-pooed Keppra issue
To: epilepsy@yahoogroup s.com
Date: Friday, August 28, 2009, 9:48 AM
Liz,
My Nuero gave me a little Klonopin in the pm to help me sleep. I am very happy with Keppra and sleep very well now. Sweet dreams to you.
My best to you,
Lynette
____________ _________ _________ __
From: Liz Welker <lizard110366@ yahoo.com>
To: epilepsy@yahoogroup s.com
Sent: Friday, August 28, 2009 6:25:05 AM
Subject: Re: [epilepsy] What in the world...and my poo-pooed Keppra issue
Okay...there' s some hypocrisy going on here. Yes, I am sure that some people may find that MSG and other things can aggravate their szs, but it's clear that it isn't many of us. I think that, if this is a subject that interests some people, it should be discussed through private e-mailing.
At the same time, I am desperately struggling to sleep through the night for 2 months, and it's documented that fever and insomnia are both possible effects of Keppra, yet because so many of you claim not to have had these problems, you're telling me they don't exist. GOOGLE IT!!!!!!!! There is info out there, and my pharm even pointed it out. I came here for HELP, and dismissal (for the most part) is what I have been getting. If you're going to support Craig's discussion about MSG, why not mine?? I would be more than happy to discuss it off-list. Keppra is the ONLY med to EVER control my SPs, and I would like to stay on it for that reason, but I need validation and tips on getting--and staying--asleep. Already tried AmbienCR and Melatonin.
LIZARD, ready to leave
--- On Thu, 8/27/09, Tim H <deacon500@gmail. com> wrote:
From: Tim H <deacon500@gmail. com>
Subject: Re: [epilepsy] What in the world.
To: epilepsy@yahoogroup s.com
Date: Thursday, August 27, 2009, 9:48 PM
Hello,
I would say a little more respect is needed by those on this list who can't
seem to handle Craig's issue with MSG. This is a scientifically documented
problem: some people with epilepsy have more seizure activity when they
consume foods with MSG. I too support Craig's right to discuss MSG +
seizure related issues. If this is such a problem for a few of you, simply
delete his message when it appears in your email.
Peace,
Tim H.
"Dani's Dad"
On Thu, Aug 27, 2009 at 10:00 AM, Jewl Wall <wallja99@fightfor. org> wrote:
>
>
> Everyone,
>
> What is the problem of his talking about his trouble with MSG?
> If you see the subject line delete it, before reading it.
>
> Others talk about their medications problems more than once. I talk about
> seizure alert dogs and it is under my signature. I know of another question
> and poll that keeps coming up that everyone "always" answers No to but it
> keeps coming up.
>
> I tell the same story over and over when new people join on how my epilepsy
> started.
>
> Some one new joined and Craig said Hi and told a little about himself and
> included the MSG. They might have this same trouble or never thought this
> maybe a part of their condition they need to look at.
>
> Than for doing that he was bashed three times by three different people, so
> yes that brought up the topic again, but not by Craig's doing.
>
> Now he is getting bashed again which still leaves the topic on the list.
>
> If he wants to say Hi to people there is nothing wrong with him telling his
> story.
>
>
> Jewl, TX
>
> Information on Seizure Response/Alert Dogs
>
> http://www.homestea <blocked::http://www.homestea d.com/Tagert/ MsJewl.html>
> d.com/Tagert/ MsJewl.html
>
> [Non-text portions of this message have been removed]
>
>
>
--
Visit My blog:
http://mensgrief. blogspot. com/
____________ _______
< ' )))><
One is called to live nonviolently, even if the change one works for seems
impossible. It may or may not be possible to turn the U.S. around through
nonviolent revolution. But one thing favors such an attempt: the total
inability of violence to change anything for the better.
- Daniel Berrigan, poet, peace activist, and priest.
< ' )))><
"To the true servant of God every place is the right place and every time is
the right time."
- Catherine of Siena,
St. Catherine of Siena as Seen in Her Letters.
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