Wednesday, August 26, 2009

Re: [epilepsy] Re: "serious" side effets

 

Marshii,

I am sorry that you have the side effects you mentioned.And I know that
each person is different and each person needs to find their own meds
that fit them.

I have been on Dilantin and Phenabarb for over 20 years. The only side
effect I have is swollen gums. And that I am being helped with by my
dentist.

My last sz was 2 years ago and before that it was 4 years.

Millie

> I have been on the same medication. You may just need to talk to your
> doctor about the side effects. I've had severe...some of the same you
> mentioned...side effects, and it's just been getting the right dose at the
> right time. The dizziness, blurred vision have not been things that last
> once my levels have balanced out. Best of luck!
>
> --- In epilepsy@yahoogroups.com, "gaelic_darkwater" <gaelic_darkwater@...>
> wrote:
>>
>> I've been trying to find an answer to this for several days and can't
>> seem to get a real answer anywhere, so I'm hoping someone here has
>> experience with this or knows someone who does and can give me an
>> answer...
>>
>> I'm having a LOT of problems with the side effects from the phenytoin.
>> I looked the medicine up online and the side effects are mostly listed
>> as "serious", such as loss of balance, and dizziness, although I also
>> have blurred vision and EXTREME fatigue. (I have slept for DAYS at a
>> time.) I also can't type anywhere NEAR as easily as I once did and
>> frequently misspell words or even forget words entirely. Not too long
>> ago I stood in my kitchen for nearly an hour struggling to remember what
>> the big silver box was and how in the world it was used. It was the
>> microwave, which I use every day.
>>
>> So what I need to know is, when they say "serious" how serious is it?
>> Am I risking serious long-lasting health problems (which I really can't
>> afford added to these seizures) or do they just mean that these are
>> seriously irritating? What should I do? I can't get to my doctor for
>> weeks still.
>>
>
>
>

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