Robert,
Welcome, Glad to have you. That ia strange. I mention evry once in a while about my other two groups to each group.
I own two epilepsy groups and one seizure alert dog group. This group tell s you about the dogs, how the work, our personal experience having had them.
Where to find an organization that trains them or how to train your own. Plus a whole lot more.
Everyone is welcome to join anyone they want.
From: "group@late-effects-radiotherapy.co.uk" <group@late-effects-radiotherapy.co.uk>
To: epilepsy@yahoogroups.com
Sent: Monday, September 9, 2013 6:19 PM
Subject: [epilepsy] Hello
Welcome, Glad to have you. That ia strange. I mention evry once in a while about my other two groups to each group.
I own two epilepsy groups and one seizure alert dog group. This group tell s you about the dogs, how the work, our personal experience having had them.
Where to find an organization that trains them or how to train your own. Plus a whole lot more.
Everyone is welcome to join anyone they want.
Jewl, TX
Information on Seizure Response/Alert Dogs
http://www.homestead.com/Tagert/MsJewl.html
From: "group@late-effects-radiotherapy.co.uk" <group@late-effects-radiotherapy.co.uk>
To: epilepsy@yahoogroups.com
Sent: Monday, September 9, 2013 6:19 PM
Subject: [epilepsy] Hello
Hi all,
Just joined. I didn't know there was another group run by Jewl (where I have been a member for several years). I am in UK and take Tegretol, Mysoline and Clonazepam (also take extra of this to try to try to arrest cluster seizures). I went through a whole succession of AEDs trying to regain the full control I had for 12 years until 1992. Newest AED I tried during thid time was Keppra then Trileptal. I know there are now new ones out there, and these have been discussed with the neuro Prof recently. We decided I was probably best to stick with the current regime, unless things take a dive.
I should add my epilepsy started life as nocturnal only TC szrs. When control (on Phenytoin) was lost they came back as daytime CPs. These have changed several times over 20 years.
Best wishes
Robert
Just joined. I didn't know there was another group run by Jewl (where I have been a member for several years). I am in UK and take Tegretol, Mysoline and Clonazepam (also take extra of this to try to try to arrest cluster seizures). I went through a whole succession of AEDs trying to regain the full control I had for 12 years until 1992. Newest AED I tried during thid time was Keppra then Trileptal. I know there are now new ones out there, and these have been discussed with the neuro Prof recently. We decided I was probably best to stick with the current regime, unless things take a dive.
I should add my epilepsy started life as nocturnal only TC szrs. When control (on Phenytoin) was lost they came back as daytime CPs. These have changed several times over 20 years.
Best wishes
Robert
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