Thursday, March 25, 2010

Re: [epilepsy] Your headache post seizures

 

Tammy,
I've been on all kinds of medicine combinations.I finally got into a study of lacosamide in '07.It was passed in Europe on 7/3/08 then real quickly FDA passed Vimpat on 10/31/08.Vimpat reduced my frequency of seizures from one every 3-4 weeks to one per 8-10 weeks.Then Keppra XR was added to it on 12/4/09,what a change now I'm not aware of any since then.I take the alot of Vimpat twice a day, 8:30am&8:30pm and XR only once at bedtime (9:30pm). It is very important to always take medicines at exactly the same time or maybe 1or 2 mins. late,ALL the time. Never think of it like or around that time. Prescriptions might say morning and evening but then time it more exactly.
Tim Baldwin
   

----- Original Message ----
From: uniquepnk tds.net <Uniquepnk@tds.net>
To: epilepsy@yahoogroups.com
Sent: Tue, March 23, 2010 9:23:50 PM
Subject: Re: [epilepsy] Your headache post seizures

Deb,

I have been on the Keppra for years, so I know pretty well what I can take
and what not to take with it. The Vimpat I haven't been on that long, so I
really don't know about it. The antibiotics and other medicine for other
problems I do wonder about if and when the time comes for them. Every now
and then I go and get something to eat after a seizure.I don't know why I do
it. It was worse before I was changed to the Vimpat, but it has happened.
Just have to be careful and ask the doctors before taking other things.
Vimpat is a pretty new thing with the doctors around here, so there is a lot
to learn about it. I guess it will take so time. Take care.

Tammy

On Mon, Mar 22, 2010 at 11:13 PM, Deb few <na_na_76904@yahoo.com> wrote:

>
>
> Tammy,
> I take the same medicine as you do. I dont have much  of a headache either,
> just sleep helps me alot and I get some what hungry afterwards. But mainly
> Im sleepy.
> Im really careful of what meds  I take with it though. I cant take cipro at
> all, it gives me a seizures.
> So my Dr. has that finally in his chart.
> Other than that, so far so good.
> Nite all.
> Deb
>
> ________________________________
> From: uniquepnk tds.net <Uniquepnk@tds.net <Uniquepnk%40tds.net>>
> To: epilepsy@yahoogroups.com <epilepsy%40yahoogroups.com>
> Sent: Mon, March 22, 2010 8:32:31 PM
> Subject: Re: [epilepsy] Your headache post seizures
>
> Doris,
>
> I hardly ever get headaches since I have been Keppra. It was the same with
> the Neurontin too. Both of them are given for pain too.Before I took either
> one of them I took advil for the headaches after a seizure. Just sleeping
> the seizure off helped more than anything for me
> when the headaches were really bad.You might ought to make sure it is safe
> to take with medicine you take. Take care.
>
> Tammy
> On Sun, Mar 21, 2010 at 5:43 PM, DorisY <dorisellen@nc.rr.com<dorisellen%40nc.rr.com>>
> wrote:
>
> >
> >
> > I was wondering what you might have found helpful when it is
> > the time after, or day after a seizure and the headache follows.
> > My seizures are nocturnal only, but it seems to take at least a
> > day after for headache to go away. Is there anything you do
> > that is helpful for this other than extra drug, such as Excedrin
> > for headache or something similar.
> >
> > Just thought maybe someone would have meaningful suggestion.
> > Thanks.
> > Doris
>
> >
> >
> >
>
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>
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>
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>

>

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