Tuesday, November 24, 2009

Re: [epilepsy] incredible bad news

 

Christina,

Where in Tennessee do you live? My husband sees an amazing neurologist in Memphis. I am not sure if he takes Tenncare but he might at least be able to refer you to someone else that he is in cohorts with.

Staci 

--- On Tue, 11/24/09, Millie Myers <mylmy@gogreencroft.net> wrote:

From: Millie Myers <mylmy@gogreencroft.net>
Subject: Re: [epilepsy] incredible bad news
To: epilepsy@yahoogroups.com
Date: Tuesday, November 24, 2009, 12:43 AM

 

Chrisina,

Sorry you had such a bad day. It is unusual that she told you all this

without talking to your specialists- -isn't it? Can you call her nurses

and have them talk to your Dr. or get an appointment with him?

Or call your specialists and see what they have to say.

I never talk to my Dr. on the phone. The nurses have been good at

telling or asking him what I want to know-- and then getting back to me.

Did this Dr. give you all the things she wants to take away?

Do you walk a little each day? I find that when a person is in bed all

the time you get very weak.

The patients that I have taken care of who have a feeding tube-- do not eat.

I'm surprised you can.

Try to cool down and not get upset. That isn't going to help anything.

Millie

----- Original Message -----

From: christina

To: epilepsy@yahoogroup s.com

Sent: Monday, November 23, 2009 6:43 PM

Subject: [epilepsy] incredible bad news

Everyone Please Help!!!

I went to my primary care doctor and

it was terrible. I was going for

bursitis, a gel mattress, and refills

on my meds. well, i got much more than

I bargained for.

first of all, there was a new nurse

practitioner there and she saw me.

she began seeing me and then there was

an emergency. Then, she comes back

into the room with my med bottles and

unfilled prescription. i had a total

of 8 pain pills (in 3 bottles) to my

name from left over prescriptions from

the dentist and an emergency trip for

trigeminal neuralgia.

The unfilled prescriptions were for

darvocet and hydrocodone. One from

surgery last week, one from the 2

from dentist. i had had 3 dry sockets.

And I hadn't even filled the prescriptions.

I didn't have the money. She said I was

hoarding medicine like ws going to run out.

Then she was saying I didn't need the

feeding tube for meds and water and

draining stomach when nausea and

supplements since I can eat by mouth some.

I think I may have to go on tube feedings

any how. She was so mean to me!!!

She said next that I didn't need nurses.

I just needed to get up and be mobile.

I told her that I had just had physical

therapy for 2 months and they had to quit

because I was making no progress-actually

I was going backwards. I am going backwards-

getting weaker from the arachnoiditis.

She said "IF" i had gastroparesis like she

didn't believe me that I didn't need any

narcotics. sure narcotics slow your stomach/

bowels, but you don't need to be in pain

either. I just had a test that showed the

gastroparesis it was in the chart and I

had faxed it o her and I know she

received it.

I so didn't like her. She said you can

have me for your doctor, but you can

have no narcotics, no nurses, and I will

call all your specalists and doctors and

see if you really need that care or not.

I wouldn't mind her calling my specialist

as long as she didn't try to talk them

out of my care. I had no choice I had

to quit her with that criteria.

I am so angry right now for my nurse

taking that in. I could fire that nurse

I hate her anyway she is a *****. She

is negative, rough, and down right

abusive with her words sometimes. She is

partly to blame!. What she told that NP

gave her the ideas. I have no clue what

she told her, but I know it was lies and

it wasn't good. She is one of the nurses

who always believes NOTHING is wrong with

me because I have invisable conditions.

I purposely don't let her go back to see

the doctors with me any more. This time

she caught the doctor aside.

I dunno what I am going to do. I have to

find a doctor and quick. This week is

Thanksgiving and the doctor's offices are

going to be closed. All i have is tomorrow.

They are probably closed on Wednesday.

Then, the first of next week i will have

to try hard. I have seen nearly every

doctor in my town. they WILL NOT treat

someone as sick as me with as many ailments.

And many don't take my insurance-TENNCARE-

Tennessee's Medicaid. I was glad to finally

get a doctor in my town. I am afraid I may

have to travel now out of town.

When I get this stressed, I get further

depressed, i don't eat. Everything flares

up. I feel worse. I hurt worse.

Everything goes crazy! My anxiety is high.

And I have more panic attacks.

Oh, I have rambled enough. PLease pray

for me. I have so much anxiety and

stress. Now I will have to listen to

my nurses go and go over about How i

don't have a doctor and how they lose

their jobs since there will be now

doctor to order my nurses. Great.

Congratulations for me...

NurseGJTubee

christina in tn and crying...

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