Hi Steve
Ok that's good, my szs are 98 percent controlled, my last
major sz was in 1997 but I still have what I call break
through or masked szs, about 3 a year, mostly in the winter.
I actually had one this week, I couldn't concentrate, think
or do anything, I just had to let it pass.
Regards
Adrien
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-----Original Message-----
From: epilepsy@yahoogroup
[mailto:epilepsy@yahoogroup
Sent: 26 November 2009 23:42
To: epilepsy@yahoogroup
Subject: [epilepsy] Re: I am new. Please can I have some
advice.
Hi Adrian,
You mentioned controlling seizures completely. A simple
statistic for epilepsy is that 75% of people have their
seizures under control, 25% of people don't. My seizures
where never under control from 1975 till I had surgery 3
years ago. I've been seizure free so far since then (smile).
Take care, keep a smile on your face!
Steve
--- In epilepsy@yahoogroup
<mailto:epilepsy%
<adriencollins22160
>
> Hi Christine
>
> Ok my epilepsy will be different to your daughter's but I
have been on
> tegretol for nearly twenty years and I don't have many
problems with
> it at all. My epilepsy is 98 percent controlled, sometimes
I have
> minor szs but every one with epilepsy will know that it is
unlikely to
> be controlled completely, maybe I'm wrong but that is my
experience
> with tegretol.
>
>
> Regards
>
> Adrien
>
>
> You can get me off list at:
> adriencollins22160@
>
> Speakon is a free fully self-voicing accessible multimedia
program for
> the visually impaired, find out more by downloading the
software from:
> http://www.a-
> <http://www.a-
> You can join the speakon user group by sending a blank
e-mail to:
> speakon-subscribe@
> <mailto:speakon-
>
> -----Original Message-----
> From: epilepsy@yahoogroup
<mailto:epilepsy%
> [mailto:epilepsy@yahoogroup
<mailto:epilepsy%
> On Behalf Of
> cristinfilipuzzi7
> Sent: 26 November 2009 18:42
> To: epilepsy@yahoogroup
<mailto:epilepsy%
> Subject: [epilepsy] I am new. Please can I have some
advice.
>
>
>
> Hello everyone. My daugter was recently diagnosed with
having
> epilepsy. My daughter is turing 12 next month. In January
2009, my
> daughter had a seizure for the first time, shortly after
falling
> asleep. Luckily I was right beside her. It was very scary.
Her face
> turned blue, purple along with her whole body shaking,
foam at her
> mouth. She actually stopped breathing for a short time.
And I could
> not feel a pulse. Shortly afterwards she was struggling to
breath
> again. She makes this choking sound at the beggining as
well. When the
> paramedics arrived her seizure was still not ended. They
gave her an
> injection of medication and provided the air mask.
Afterwards when she
> opens her eyes and looks around a bit, she cannot talk.
When she is
> finally able to talk she starts screaming and crying. Then
she is
> vomiting for hours, shaky, and lightheaded, sleeping alot.
>
> The folling day she had another one in the hospital.
>
> She was admitted for 2 days. And we had followups with the
childrens
> nurologist. Her EEG shows that she has an abnormality in
the left
> hemishpere of her brain which is triggering seizure
activity. Mostly
> in the 2nd stage of sleep.
>
> She was not put on any medications. The doctor said that
he wanted to
> wait and see if she would have anymore. Last Sunday at
approx. 11:30pm
> it happened again. She had another one. Luckily I was
right beside her
> again. We had a bad experience in the hospital, and she
was sent home
> after waiting 10 hours with the paramedics beside her to
see a doctor.
> A couple of hours later, she had another one.
>
> She had an MRI done. Which came back ok. The doctor wants
to put her
> on Tegretol. He says that it is about 80% effective.
> There are many side effects. And I am very worried about
this. I am
> really scared to give her this medication. The majority of
medications
> cause so many other problems in your body. Does anyone
know of any
> information that may help me.
> I really apprecieate it. Thankyou so much.
> Cristin Filipuzzi
>
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