Tammy,
Have you considered going to whoever is in charge of the EMT's
and talking with them? They may have a side you haven't heard
about -- but it sounds like it is time they heard your side.
Millie
> Well Steve, every time they called an ambulance for Megan, the
> seizure was either over before they called the ambulance or shortly
> after, so that she was always post-ictal by the time the ambulance
> got there. And they STILL always wanted to haul her off to the
> hospital. I don't care if an ambulance is called. What I object to is
> the paramedics automatically hauling her to the hospital because she
> is post ictal and can't communicate effectively at that point.
>
> Status elepticus is a serious medical emergency. A post ictal state
> is not. Can't they train people to respond differently to the two? I
> find it incredibly irritating, not to mention expensive:) And I can't
> help but think that the high cost of medical care could be brought
> down just a little if only the people who really needed to be hauled
> to the emergency room for treatment were actually taken there.
>
> Someone mentioned having EFA go to bat on this issue. I don't know if
> they ever would (I have been less than impressed with our local
> branch), but I do think that we need to fight for some rights here.
> Patients generally have the right to refuse treatment or transport,
> but the nature of epilepsy is that most patients are not mentally
> clear at the time that an ambulance arrives. Something needs to be
> done. Training I think would be the most effective thing, but there
> may be other routes. Perhaps a unique bracelet that only signifies
> epilepsy, so that the paramedics know what they are dealing with from
> the get-go. (Although you would think they would have enough training
> to go, "Oh this person has had a seizure. Maybe they are post-ictal."
>
> OK, enough ranting from me for now:)
> Tammy
> Megan's Mom
>
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