I had a left temporal surgery back in 2004 and went 9 months without a
seizure. Today when I went to see my neurologist, he is wanting me to have
the surgery again. It seems like they would have gotten all the damage the
1st time when I had it done.I thought all those tests they done back before
I had it done was to show them how much it would affect the speech and
stuff. I am certainly glad I had it done the 1st time, it cut the seizures
down a lot, but if you have to have it done every so often, there is no way
I could get the nerve up to having it done again anytime soon.You all that
have been through the surgery thing more than once are braver than me. Take
care.
Tammy
On Tue, Aug 4, 2009 at 5:48 PM, Pastor Joseph Groth <pastorjwgroth@
> wrote:
>
>
> Hello,
> When I had my brain surgery in 2001, I was told it was only a temporary
> fix.. And that most people with seizures who have had this kind of surgery
> usually had to return within 2-3 years to do it all over again.
> God Bless!!
> Pastor Joseph
>
> --- On Tue, 8/4/09, no_seizures_
> wrote:
>
> From: no_seizures_
> >
> Subject: [epilepsy] Re: brain surgery
> To: epilepsy@yahoogroup
> Date: Tuesday, August 4, 2009, 7:27 AM
>
>
> Hi Ron,
>
> You mentioned "As for the surgery- there are NO guarantees- just
> promises". Just wondering what promises where you given? I've never heard
> anybody having surgery for epilepsy of a guarantee or promise that seizure
> will be gone, cured ect... Everybody I ever have been in contact with where
> told that seizures can't come back anytime in their life. Like you said, no
> guarantees, but, simply the that your surgery will stop seizures or reduce
> them or maybe not change them. And of course they just might get worse, we
> just never know. What people do use is guidance when the Drs. explain to
> you the % of chance in a person's situation, everybody is different. For I
> was told the % where 50% chance of no more seizures. 25% chance or reducing
> them & 25% chance of no change. And of cource, those numbers come from the
> their experience and research. Each persons situation are different, each
> persons scar tissue is different. After tests our
> done and we are told our situations, its then all up to us as far as going
> for it or not if we become a candidate for surgery. Also, if surgery is
> succefull, if seizures stop from surgery its the person who had surgery,
> their choice going further to reducing medications to rid a person of the
> side affects of them. My choice was to stay on them 100% as another hope of
> keeping me away from returning seizures. Like I said, I made the choice of
> both surgery and reducing meds. Well, I'm on the very lucky side of
> results, so far. To this day so far, no seizures but I know they can come
> back anytime, anywhere but for now, so far so good (smile). Take care, keep
> a smile on your face!
>
> Steve
>
> --- In epilepsy@yahoogroup
> <korky106_a@
> >
> > I had tried so many AED's in 1999 trying to control my seizures- I lost
> vount. Since none of them were controlling my seizures i decided to have
> brain surgery- A right temporal lobectomy- I had contacted Encephalitis in
> 1964- I was 13. My brain was mapped- tey thought they know what part of the
> brain to remove to control the seizures. Well- I had the surgery- they had
> to reopen my head because they left an infection. Needless to say I am still
> having seizures- I have totalled cars because i thought I was cured.. Well,
> I will NEVER drive again and I am still having seizures- not as many but
> enough. As for the surgery- there are NO guarantees- just promises.
> >
> > Birdman Ron
> >
> > andshadow@ wrote:
> > >
> > > Even when I had my deep vein blood clot (Thrombosis a.k.a DVT) and in
> the major arterie for my leg, my doctor said, "YOU COULDN'T PAY ME TO DO
> SURGERY ON YOU~You Have
> > > ' Behcet's ' !"
> > > Sent from my Verizon Wireless BlackBerry
> > >
> > > -----Original Message-----
> > > From: Tristin Seagraves <tristinspike26@
> > >
> > > Date: Mon, 3 Aug 2009 06:18:47
> > > To: <epilepsy@yahoogroup
> > > Subject: Re: [epilepsy] brain surgery
> > >
> > >
> > >
> > > Hi CBI,
> > > A good sugical candidate is someone who is experiencing 2+ seizures
> per month, someone who's seizures aren't controllable with AEDs, and someone
> who's seizures are coming from mainly one central location in the brain.
> After you've tried more than 2 different AEDs and you're still having
> seizures, chances are that meds aren't going to do the job.
> > >
> > > There's a lot of testing to take place before surgery. I went through
> 6 months of candidate testing, including MRIs, a PET scan,
> neuropsychological evaluation, WADA angiogram, Video EEGs, depth electrodes,
> grid electrodes, brain mapping, etc. etc.
> > >
> > > If you are referred to a neurosurgeon for candidate testing, it isn't
> elective. My insurance covered it all.... no questions asked.
> > >
> > > There are very few risks with this type of surgery; mostly infection.
> The tests will show which side of the brain controls language, memory, and
> speech (specifically the WADA angiogram). If your seizures are coming from
> the same side that your speech and language is on, they might not do surgery
> because it could cause a speech deficit. In most cases, the speech and
> language is on the left side but not always (mine is on the right).
> > >
> > > Surgery doesn't work for everyone, but I've never heard of it making
> seizures worse.
> > >
> > > I had my surgery at a "major medical facility"...
> of Georgia.
> > >
> > > For my surgery, I was out of work from Oct 28, 08 until Dec 1, 08. I
> had my surgery on Nov 12. From Oct 28 to Nov 12, I was hooked up to EEG
> with a camera in my face. We also did depth electrodes and brain mapping
> during the first two weeks. I was back to work quickly. My neurologist
> wanted me to take another 2 weeks off, but I was determined to get back in
> the groove.
> > >
> > > Just a few answers to your questions...
> > >
> > > I hope everything works out.
> > >
> > > God bless you,
> > > Tristin :)
> > > --- On Sat, 8/1/09, CBI <cbicook@> wrote:
> > >
> > >
> > > From: CBI <cbicook@>
> > > Subject: [epilepsy] brain surgery
> > > To: epilepsy@yahoogroup
> > > Date: Saturday, August 1, 2009, 6:43 PM
> > >
> > >
> > >
> > >
> > >
> > >
> > > There has been a lot of reference to those having surgery. Can
> someone(s) explain what makes a person a candidate to have surgery? Is it
> the number of seizures one has, the location in their brain that they
> begin, inability to gain control using medications or what? I keep
> reading about these surgery's and don't know where to start to find out if
> it would work for me. How does insurance cover these? Is it considered
> elective? Is it beyond experimental. What are the risks? Could you worsen
> the level and type of seizures you currently have? Do you need to be at a
> major medical facility to have this surgery or are more and more hospitals
> capable of performing it?
> > > How much time must one take or have available to complete this process
> and continue back to work?
> > >
> > > I know these are a lot of questions. I'm sure there are some good
> WEB sites to explain it and I confess I have not looked at them yet.. I'd
> like to get the group's opinion and recommendations on this process.
> Thanks.
> > >
> > >
> > > CBI
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > > [Non-text portions of this message have been removed]
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > > [Non-text portions of this message have been removed]
> > >
> > >
> > >
> > > ------------
> > >
> > > Just a friendly reminder: Please remember to sign your post and
> remember to clean up messages when you reply to them. This is especially
> important if you are on digest. This not only helps out the list owner but,
> it makes messages much easier to read when they arrive in our inboxes.
> > >
> > > Yahoo! Groups Links
> > >
> >
>
> ------------
>
> Just a friendly reminder: Please remember to sign your post and remember to
> clean up messages when you reply to them. This is especially important if
> you are on digest. This not only helps out the list owner but, it makes
> messages much easier to read when they arrive in our inboxes.
>
> Yahoo! Groups Links
>
> [Non-text portions of this message have been removed]
>
>
>
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