Tim,
I used to live in the city, and rode some of those buses and taxis.Sometimes
I go visit my dad in the city, I just can't sleep there anymore. The only
thing about the city is I get to go shopping when I go. When I had that
surgery, they checked for the speech and stuff, to see if it was affected.
It didn't bother my speech any, but the memory is something I wonder about
sometimes.I bet that was scary to have that happen to you. It would have me.
The last time I went to have a test done at the hospital where I go, we got
hit. it didn't hurt the vehicle, but it sure scared me. Take care of
yourself and be careful when you drive. I just want you to be safe.
Tammy
On Sun, Aug 2, 2009 at 1:26 AM, TIMOTHY BALDWIN <tbb1@prodigy.
>
>
> Tammy,
> It must be a real drag not having buses and depending on others to take
> you there, I'm used to Baltimore and D.C.'s metro systems (subway and buses)
> along with the MARC and Amtrak trains that connect the cities.
> I think my uncontrollable seizures maybe because I may be having complex
> partial along with absence or something else. Earlier I was warned of the
> possibility of death but on operation day I was warned of the possibility of
> verbal-memory loss. I had no idea of what that meant until I first
> experienced it about two months later, I learned from experience, now I'm
> used to it
> I've never used a taxi, I can't stand them. Because of an incident near
> to where my employer (Food and Drug Admin. {FDA}) was located in D.C.. I was
> run into as I walked across a street on the west side of the U.S. capital
> building. The cab driver told the capital police, "I didn't hit him, He hit
> me." That is ridicules, for a pedestrian to do to someone who's turning
> right where there's a sign that clearly says, No Right Turns. But he just
> learned to speak in English and supposedly never learned to read in English
> yet.
>
>
> --- On Sat, 8/1/09, uniquepnk tds.net <Uniquepnk@tds.
> wrote:
>
> From: uniquepnk tds.net <Uniquepnk@tds.
> Subject: Re: [epilepsy] Re: brain surgery and driving.
> To: epilepsy@yahoogroup
> Date: Saturday, August 1, 2009, 9:14 PM
>
>
>
> Tim,
>
> I am just glad the seizures aren't like they used to be. I was just
> thinking
> about how badly you could have been hurt. Just thinking of how many times I
> wanted to drive and then the seizures I had would have killed me.Here in
> Kentucky I think it is 90 days, but I am pretty sure you have to have the
> doc's ok too. Even though sometimes I wish could drive when I want to go
> places, I just think about the safety issues and let it go. the mountains
> just aren't a safe place to be driving. LOL.There is no buses around where
> I
> live and years ago the taxis were $50 to and from anyplace that would be a
> ncessary to have to go. So I just have to let my friends take me when I go
> anywhere.If you get another car, please be careful. Just thinking about you
> being safe. Take care.
>
> Tammy
>
> On Fri, Jul 31, 2009 at 11:10 PM, TIMOTHY BALDWIN <tbb1@prodigy. net>
> wrote:
>
> >
> >
> > Tammy,
> > I'm sorry you were having so many seizures before your surgery, but my
> > doctor and the meds. he put me since '80 have always kept at once in 3-4
> > wks. or what I thought was close to being controlled. I drove because of
> my
> > not being aware if they were due to a seizure, but I wasn't fully aware
> of
> > them. And felt at home in body shops. Since being on lacosamide since
> > 6/08 with a different doctor, I still have one per 5-12 wks.. In Maryland
> > 26wks. is required to legally drive. But, I'm thinking of buying a new
> one
> > because I'm sick and tired of taking the bus since '98, and my public
> > life having dropped all the way down.
> > Tim B.
> >
> > --- On Fri, 7/31/09, uniquepnk tds.net <Uniquepnk@tds.
> > wrote:
> >
> > From: uniquepnk tds.net <Uniquepnk@tds. net <Uniquepnk%40tds. net>>
> > Subject: Re: [epilepsy] Re: brain surgery and driving.
> > To: epilepsy@yahoogroup s.com <epilepsy%40yahoogr oups.com>
> > Date: Friday, July 31, 2009, 9:31 PM
> >
> >
> >
> >
> > Tim,
> >
> > I had the surgery and I am glad I had it done, but it did not stop the
> > seizures completely. I don't see why you were driving if you were still
> > having seizures after the surgery. I went 9 months and thought I would
> get
> > to drive too, but then they started back. As long as there is a chance I
> am
> > going to have seizures I will not consider driving, even as much as I
> > wanted
> > to years ago. It doesn't mean as much to me anymore, so as long as I am
> > safe
> > and everybody around me, that is all that matters. I am not having 25
> > seizures a month, but since it is not near that many I am very happy
> about
> > having the surgery.I am sorry it did not stop yours or mine completely,
> but
> > that is just the way things are. Take care.
> >
> > Tammy
> >
> > On Thu, Jul 30, 2009 at 10:29 PM, TIMOTHY BALDWIN <tbb1@prodigy. net>
> > wrote:
> >
> > >
> > >
> > > Everyone,
> > > Its looks like allot of people have commented about how successful
> their
> > > operations were, that's different than me. In '96 my l. temporal lobe
> was
> > > mostly removed, before the surgery I was aware of a seizure occurring
> > every
> > > 3-4 weeks, Others probably happened that I knew nothing of. After my
> > > unsuccessful surgery my seizure rate didn't change, and I continued
> > > to take the same amount of medicines. In '74 I had my first few seizure
> > and
> > > was diagnosed. I continued to drive and totaled my five cars each
> > > were repaired at least as many times as possible. In '98 I finally quit
> > > driving I gave up with my ridicules good luck, my crashes were always
> > alone
> > > without another car involved and the police always assumed that I'd
> > fallen
> > > asleep. If someone else was involved who saw that my eyes were open and
> > the
> > > cop may write that the accident was due to a seizure, If people in that
> > > car saw lawyers could look at my past medical records and decide that I
> > > shouldn't have been driving in the first place...
> > > Tim B.
> > >
> > > --- On Thu, 7/30/09, sept161999@aol. com <sept161999% 40aol.com> <
> > > sept161999@aol. com <sept161999% 40aol.com> > wrote:
> > >
> > > From: sept161999@aol. com <sept161999% 40aol.com> <sept161999@aol.
> > 40aol.com>
> > > >
> > > Subject: Re: [epilepsy] Re: brain surgery and driving.
> > > To: epilepsy@yahoogroup s.com <epilepsy%40yahoogr oups.com>
> >
> > > Date: Thursday, July 30, 2009, 7:41 PM
> > >
> > >
> > >
> > > congrats.
> > > my doctors asked me before they discharged me from the hospital a few
> > days
> > > after the surgery if theres anything they could do.
> > > i said "could you write me prescriptions for my medications" ?
> > > they looked at me like i was crazy.
> > > i guess they never saw someone who wanted medication even after surgery
> > > talk with your dr.
> > > hope everything goes good
> > > Brian
> > >
> > > In a message dated 7/30/2009 6:20:51 A.M. Pacific Daylight Time,
> > > tristinspike26@ yahoo.com writes:
> > >
> > > Brian,
> > > Oh, I already had the surgery (Nov 12, 08). It was a cinch! I know that
> > > surgery isn't a guarantee, but it's worked so far. You mentioned that I
> > > shouldn't think of it as a way to get off of my meds. Although I'm
> still
> > on
> > >
> > > extreme dosages, I do plan to talk my neuro into decreasing my dosages
> at
> > > my next visit. I know I'll probably never be fully "sober," (lol) but I
> > do
> > > think I could cut back a few hundered mg.
> > >
> > > Tristin :)
> > >
> > > --- On Thu, 7/30/09, _sept161999@ aol.sep_ (mailto:sept161999@ aol.
> com)
> > > <_sept161999@ aol.sep_ (mailto:sept161999@ aol. com) > wrote:
> > >
> > > From: _sept161999@ aol.sep_ (mailto:sept161999@ aol. com)
> > > <_sept161999@ aol.sep_ (mailto:sept161999@ aol. com) >
> > > Subject: Re: [epilepsy] Re: brain surgery and driving.
> > > To: _epilepsy@yahoogrou pepile_ (mailto:epilepsy@ yahoogroup s.com)
> > > Date: Thursday, July 30, 2009, 9:09 AM
> > >
> > > it's true that surgery is not for everyone but looking into it might
> not
> > >
> > > hurt. I had surgery. before surgery i would have an average 50 seizures
> > > per
> > >
> > > day from age 2 to age 29. now after surgery ive been seizure free a
> > little
> > >
> > > more then 9 in a half years. Just remember if you want to have it done
> do
> > > a
> > >
> > > lot of homework into what you must do(testing) how things would be
> done.
> > >
> > > get references on doctors. BUT REMEMBER SURGERY IS NOT A GUARANTEE IT
> > WILL
> > >
> > > STOP OR EVEN CONTROL SEIZURES. and also you might have to stay on
> > > medication
> > >
> > > so dont think of surgery as a way to also being able to stop
> medications.
> > >
> > > Brian
> > >
> > > In a message dated 7/30/2009 5:54:22 A.M. Pacific Daylight Time,
> > >
> > > tristinspike26@ yahoo.com writes:
> > >
> > > Well Birdman,
> > >
> > > I understand that surgery isn't always perfect, and it doesn't work for
> > >
> > > everyone. But I can't criticize it. It's worked for me, so far. I'm 8
> > >
> > > months seizure-free thanks to a left temporal lobectomy. I've waited a
> > > long
> > >
> > > time to get my driver's license, and driving I'm gonna do. I know
> there's
> > >
> > > the possibility of having another seizure, and I know to take
> precautions
> > >
> > > if/when I start feeling strange. I have to take advantage of this time
> > >
> > > because it may not last for long.
> > >
> > > Tristin :)
> > >
> > > --- On Thu, 7/30/09, korky106_a <_korky106_a@ yahoo.kor_
> > >
> > > (mailto:korky106_ (mailto:korky1> wrote:
> > >
> > > From: korky106_a <_korky106_a@ yahoo.kor_ (mailto:korky106_ _korky106_
> > a@y>
> > >
> > > Subject: [epilepsy] Re: brain surgery and driving.
> > >
> > > To: _epilepsy@yahoogrou pepile_ (mailto:epilepsy@ To: _epilepsy@yaho
> > >
> > > Date: Thursday, July 30, 2009, 1:56 AM
> > >
> > > I am well aware the desire for people to drive- I think it may be more
> > for
> > >
> > > a person with seizures. i am 58- I have had seizures since I was 13- I
> > was
> > >
> > > bit by a mosquito and given encephalitis- my brain became infected-
> > >
> > > swelled up to the point I went into a coma for 18 hrs. The drs did not
> > > expect me
> > >
> > > to come out of it and live. I have brain damage because of this and
> > >
> > > seizures- all kinds. I have had a right temporal lobectomy to remove
> what
> > > they
> > >
> > > thought was the damaged cells and take away my seizures. Well some time
> > > went
> > >
> > > by without seizures- I got my license and- away I drove feeling GREAT-
> > > well
> > >
> > > i have totalled my Honda Accord because I had a seizure- surgery is NOT
> > >
> > > always perfect- I found this out when I totaled my Taurus as a result
> of
> > a
> > >
> > > seizure accident. OKEASE reconsider driving- I will NEVER try driving
> > > again. I
> > >
> > > am fortunate to be alive and to have not hurt anyone as a result of my
> > >
> > > driving- I can adjust to not driving- I could
> > >
> > > NEVER adjust to hurting a person because I chose to drive when I
> > >
> > > shouldn't- THINK TWICE- Thanks- Birdman--- In epilepsy@yahoogroup
> s.com,
> > >
> > > "tristinspike26" <tristinspike26@ ...> wrote:
> > >
> > > >
> > >
> > > > Hi all,
> > >
> > > > Tomorrow I'm kind of going to share my epilepsy surgery testimony
> with
> > >
> > > my friend's (Lisa's) neurologist. I'm totally tickled that she wants me
> > to
> > >
> > > talk to her neurologist and tell him what surgery did for me. We're
> > trying
> > >
> > > to get her referred to the Medical College of Georgia; where I had my
> > >
> > > surgery. Surgery worked so far for me. I hope and pray that my friend,
> > > Lisa,
> > >
> > > turns out to be a good candidate. Maybe surgery will work for her too.
> It
> > > makes
> > >
> > > me feel good knowing that my struggle with epilepsy and my surgery
> might
> > >
> > > inspire someone else (Lisa). Since I got my driver's license (for the
> > past
> > >
> > > month) I've been driving Lisa around and helping her get to where she
> > > needs
> > >
> > > to go. I've been in her shoes. I know what it's like. It's just my way
> of
> > >
> > > paying it forward.
> > >
> > > >
> > >
> > > > Tristin :)
> > >
> > > >
> > >
> > > [Non-text portions of this message have been removed]
> > >
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