Saturday, August 1, 2009

Re: [epilepsy] Re: brain surgery and driving.

 

Tim,

I am just glad the seizures aren't like they used to be. I was just thinking
about how badly you could have been hurt. Just thinking of how many times I
wanted to drive and then the seizures I had would have killed me.Here in
Kentucky I think it is 90 days, but I am pretty sure you have to have the
doc's ok too. Even though sometimes I wish could drive when I want to go
places, I just think about the safety issues and let it go. the mountains
just aren't a safe place to be driving. LOL.There is no buses around where I
live and years ago the taxis were $50 to and from anyplace that would be a
ncessary to have to go. So I just have to let my friends take me when I go
anywhere.If you get another car, please be careful. Just thinking about you
being safe. Take care.

Tammy

On Fri, Jul 31, 2009 at 11:10 PM, TIMOTHY BALDWIN <tbb1@prodigy.net> wrote:

>
>
> Tammy,
> I'm sorry you were having so many seizures before your surgery, but my
> doctor and the meds. he put me since '80 have always kept at once in 3-4
> wks. or what I thought was close to being controlled. I drove because of my
> not being aware if they were due to a seizure, but I wasn't fully aware of
> them. And felt at home in body shops. Since being on lacosamide since
> 6/08 with a different doctor, I still have one per 5-12 wks.. In Maryland
> 26wks. is required to legally drive. But, I'm thinking of buying a new one
> because I'm sick and tired of taking the bus since '98, and my public
> life having dropped all the way down.
> Tim B.
>
> --- On Fri, 7/31/09, uniquepnk tds.net <Uniquepnk@tds.net<Uniquepnk%40tds.net>>
> wrote:
>
> From: uniquepnk tds.net <Uniquepnk@tds.net <Uniquepnk%40tds.net>>
> Subject: Re: [epilepsy] Re: brain surgery and driving.
> To: epilepsy@yahoogroups.com <epilepsy%40yahoogroups.com>
> Date: Friday, July 31, 2009, 9:31 PM
>
>
>
>
> Tim,
>
> I had the surgery and I am glad I had it done, but it did not stop the
> seizures completely. I don't see why you were driving if you were still
> having seizures after the surgery. I went 9 months and thought I would get
> to drive too, but then they started back. As long as there is a chance I am
> going to have seizures I will not consider driving, even as much as I
> wanted
> to years ago. It doesn't mean as much to me anymore, so as long as I am
> safe
> and everybody around me, that is all that matters. I am not having 25
> seizures a month, but since it is not near that many I am very happy about
> having the surgery.I am sorry it did not stop yours or mine completely, but
> that is just the way things are. Take care.
>
> Tammy
>
> On Thu, Jul 30, 2009 at 10:29 PM, TIMOTHY BALDWIN <tbb1@prodigy. net>
> wrote:
>
> >
> >
> > Everyone,
> > Its looks like allot of people have commented about how successful their
> > operations were, that's different than me. In '96 my l. temporal lobe was
> > mostly removed, before the surgery I was aware of a seizure occurring
> every
> > 3-4 weeks, Others probably happened that I knew nothing of. After my
> > unsuccessful surgery my seizure rate didn't change, and I continued
> > to take the same amount of medicines. In '74 I had my first few seizure
> and
> > was diagnosed. I continued to drive and totaled my five cars each
> > were repaired at least as many times as possible. In '98 I finally quit
> > driving I gave up with my ridicules good luck, my crashes were always
> alone
> > without another car involved and the police always assumed that I'd
> fallen
> > asleep. If someone else was involved who saw that my eyes were open and
> the
> > cop may write that the accident was due to a seizure, If people in that
> > car saw lawyers could look at my past medical records and decide that I
> > shouldn't have been driving in the first place...
> > Tim B.
> >
> > --- On Thu, 7/30/09, sept161999@aol. com <sept161999% 40aol.com> <
> > sept161999@aol. com <sept161999% 40aol.com> > wrote:
> >
> > From: sept161999@aol. com <sept161999% 40aol.com> <sept161999@aol.com<sept161999%
> 40aol.com>
> > >
> > Subject: Re: [epilepsy] Re: brain surgery and driving.
> > To: epilepsy@yahoogroup s.com <epilepsy%40yahoogr oups.com>
>
> > Date: Thursday, July 30, 2009, 7:41 PM
> >
> >
> >
> > congrats.
> > my doctors asked me before they discharged me from the hospital a few
> days
> > after the surgery if theres anything they could do.
> > i said "could you write me prescriptions for my medications" ?
> > they looked at me like i was crazy.
> > i guess they never saw someone who wanted medication even after surgery
> > talk with your dr.
> > hope everything goes good
> > Brian
> >
> > In a message dated 7/30/2009 6:20:51 A.M. Pacific Daylight Time,
> > tristinspike26@ yahoo.com writes:
> >
> > Brian,
> > Oh, I already had the surgery (Nov 12, 08). It was a cinch! I know that
> > surgery isn't a guarantee, but it's worked so far. You mentioned that I
> > shouldn't think of it as a way to get off of my meds. Although I'm still
> on
> >
> > extreme dosages, I do plan to talk my neuro into decreasing my dosages at
> > my next visit. I know I'll probably never be fully "sober," (lol) but I
> do
> > think I could cut back a few hundered mg.
> >
> > Tristin :)
> >
> > --- On Thu, 7/30/09, _sept161999@ aol.sep_ (mailto:sept161999@ aol. com)
> > <_sept161999@ aol.sep_ (mailto:sept161999@ aol. com) > wrote:
> >
> > From: _sept161999@ aol.sep_ (mailto:sept161999@ aol. com)
> > <_sept161999@ aol.sep_ (mailto:sept161999@ aol. com) >
> > Subject: Re: [epilepsy] Re: brain surgery and driving.
> > To: _epilepsy@yahoogrou pepile_ (mailto:epilepsy@ yahoogroup s.com)
> > Date: Thursday, July 30, 2009, 9:09 AM
> >
> > it's true that surgery is not for everyone but looking into it might not
> >
> > hurt. I had surgery. before surgery i would have an average 50 seizures
> > per
> >
> > day from age 2 to age 29. now after surgery ive been seizure free a
> little
> >
> > more then 9 in a half years. Just remember if you want to have it done do
> > a
> >
> > lot of homework into what you must do(testing) how things would be done.
> >
> > get references on doctors. BUT REMEMBER SURGERY IS NOT A GUARANTEE IT
> WILL
> >
> > STOP OR EVEN CONTROL SEIZURES. and also you might have to stay on
> > medication
> >
> > so dont think of surgery as a way to also being able to stop medications.
> >
> > Brian
> >
> > In a message dated 7/30/2009 5:54:22 A.M. Pacific Daylight Time,
> >
> > tristinspike26@ yahoo.com writes:
> >
> > Well Birdman,
> >
> > I understand that surgery isn't always perfect, and it doesn't work for
> >
> > everyone. But I can't criticize it. It's worked for me, so far. I'm 8
> >
> > months seizure-free thanks to a left temporal lobectomy. I've waited a
> > long
> >
> > time to get my driver's license, and driving I'm gonna do. I know there's
> >
> > the possibility of having another seizure, and I know to take precautions
> >
> > if/when I start feeling strange. I have to take advantage of this time
> >
> > because it may not last for long.
> >
> > Tristin :)
> >
> > --- On Thu, 7/30/09, korky106_a <_korky106_a@ yahoo.kor_
> >
> > (mailto:korky106_ (mailto:korky1> wrote:
> >
> > From: korky106_a <_korky106_a@ yahoo.kor_ (mailto:korky106_ _korky106_
> a@y>
> >
> > Subject: [epilepsy] Re: brain surgery and driving.
> >
> > To: _epilepsy@yahoogrou pepile_ (mailto:epilepsy@ To: _epilepsy@yaho
> >
> > Date: Thursday, July 30, 2009, 1:56 AM
> >
> > I am well aware the desire for people to drive- I think it may be more
> for
> >
> > a person with seizures. i am 58- I have had seizures since I was 13- I
> was
> >
> > bit by a mosquito and given encephalitis- my brain became infected-
> >
> > swelled up to the point I went into a coma for 18 hrs. The drs did not
> > expect me
> >
> > to come out of it and live. I have brain damage because of this and
> >
> > seizures- all kinds. I have had a right temporal lobectomy to remove what
> > they
> >
> > thought was the damaged cells and take away my seizures. Well some time
> > went
> >
> > by without seizures- I got my license and- away I drove feeling GREAT-
> > well
> >
> > i have totalled my Honda Accord because I had a seizure- surgery is NOT
> >
> > always perfect- I found this out when I totaled my Taurus as a result of
> a
> >
> > seizure accident. OKEASE reconsider driving- I will NEVER try driving
> > again. I
> >
> > am fortunate to be alive and to have not hurt anyone as a result of my
> >
> > driving- I can adjust to not driving- I could
> >
> > NEVER adjust to hurting a person because I chose to drive when I
> >
> > shouldn't- THINK TWICE- Thanks- Birdman--- In epilepsy@yahoogroup s.com,
> >
> > "tristinspike26" <tristinspike26@ ...> wrote:
> >
> > >
> >
> > > Hi all,
> >
> > > Tomorrow I'm kind of going to share my epilepsy surgery testimony with
> >
> > my friend's (Lisa's) neurologist. I'm totally tickled that she wants me
> to
> >
> > talk to her neurologist and tell him what surgery did for me. We're
> trying
> >
> > to get her referred to the Medical College of Georgia; where I had my
> >
> > surgery. Surgery worked so far for me. I hope and pray that my friend,
> > Lisa,
> >
> > turns out to be a good candidate. Maybe surgery will work for her too. It
> > makes
> >
> > me feel good knowing that my struggle with epilepsy and my surgery might
> >
> > inspire someone else (Lisa). Since I got my driver's license (for the
> past
> >
> > month) I've been driving Lisa around and helping her get to where she
> > needs
> >
> > to go. I've been in her shoes. I know what it's like. It's just my way of
> >
> > paying it forward.
> >
> > >
> >
> > > Tristin :)
> >
> > >
> >
> > [Non-text portions of this message have been removed]
> >
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> >
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> >
> >
> >
>
> [Non-text portions of this message have been removed]
>
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>
>
>

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