Welcome to the group ....glad to have you. I know when I would be reading a book and even yet sometimes when
tired and not quite with it today, I would have to read to myself outloud. That was the only way that anything
would make any sense. Also read it slooooooow. I stare too and quite often at the stars and try and figure
what is what up there. Most people with epilepsy have the odd breakthrough of pseudo seizures. We were told
that by our epileptologist that looked after our daughter. He is a brain specialiast that deals with
epilepsy only so is up to par on everything new going on. Your Neurologist looks after people with any brain
condition, so you can see his education is spread in a wider field. If you are having pseudo seizures the
person to go to is your epileptologist. They will give you a VEEG and be able to tell what is what and where
in your brain it is happening. Don't worry they ARE seizures just the same and should be treated like them.
I know I have had several of them I am sure as they are not epilepsy ones. Stress is a big factor of them and
can cause them to happen any time.
With our daughter the specialist said he could tell they were pseudo as she would be talking away, flip into a
GM and come out of it and continue on with the same subject she was talking before. On hindsight looking back
it was amazing how she did that. During the seizure she made no sense at all but when she came out she
continued on right where she left off on the sentence just before. She ended up so she couldn't walk and was
in a wheel chair. Legs parilized. That was another thing as during her VEEG her parilized legs would
actually move with the G.M. A little theropy was all she needed and even though she couldn't feel her legs
she could eventually walk with a gait and doing pretty good at the end.
I would find out all I could about the pseudo seizures and learn how you can distinguish between the real ones
and the non epilepsy ones. Here is a site about the Cyst.
http://www.abta.
Feel free to write any time.
Google in Pseudo Seizures too and you will find lots of good reading.
Julie
Julie Hope
epilepsyhealth@
http://www.2betrhea
----- Original Message -----
From: "tweedyjojo" <tweedyjojo@yahoo.
To: <epilepsy@yahoogroup
Sent: Wednesday, August 05, 2009 8:40 PM
Subject: [epilepsy] New to Group
Hello Everyone,
I was diagnosed with primary generalized epilepsy last year. Since then it has been nothing, but book reading
to try and figure out what this all means. I remember when I was a kid things would happen to me, but I never
figured in a million years it was epilepsy. I star gaze all the time even when I was a kid--I have read that
this is called absent siezures. The different medications that I have been prescribed is Keppra XR and
Topamax. I also have been diagnosed with pseudosiezures, chronic migraines and have a pineal cyst(1.5cm).
Can anyone help me oout to understand what is actually happening to me; who might be going through the same
things.
------------
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