Well it depends on what your condition is post-ictally. Sometimes you snap
right out of it. Unfortunately I go into fugues and get in fights with
people while still unconscious. Or I regain consciousness verrrrrry
sloooowwwwwwwwly during which time I'm confused and maybe doing things.
One recent one I had here, I was taking a shower in the shower room, and
came out with no towel on the hooks. My clothes that I'd been wearing were
still hanging there, but that's it. I had to sneak out and grab a wad of
paper towels, and back in the shower room I was thinking, this doesn't make
sense. That's always the #1 thought, something doesn't make sense.
So I got dressed after paper-towelling myself off and got back to my chair
dressed and soaked, and I sat in the chair for a time... trying
unsuccessfully to get work done... and as I did I felt one of those strange
emotions that in my whole life I've only felt after seizures. I sent an
email to my boss asking if she knew if I had a seizure or not. She came over
right away saying, yes, you just had a big one and you started walking
around. The whole going to the shower thing was a fugue, which is why I
don't remember anything happening before I was in the shower. I regained
consciousness in there. And that was during a time when I wasn't biking to
work, so taking a shower was totally bizarre.
I found the text file that I'd been editing, with a repeating letter right
at the place where I was typing when I lost consciousness. I thought that
was funny.
Anyway it isn't a matter of educating people in the vicinity; my memory
really does get erased.
Jason
On Tue, Aug 25, 2009 at 4:47 PM, Sandy <uhura102@yahoo.
> Perhaps it is not so much memory being erased but the they were feeding you
> information at a time when like your computer was frozen.. maybe re
> education would help
> regain a bit of dignity for you.. that car to bike thing.. somehow doesn't
> make sense..
> supposed it is about someone worried about getting sued.. and that over
> phrase used for for some valid circumstances gets used in about any
> situation.. what if you hit and killed someone? It more rings like a pat
> answer for an unwillingness to talk about it.. People get frightened about
> what they don't understand.. and we all know that a misunderstanding can
> cause a lot of harm. I'm not saying you should be able to drive, just that
> you ought to have more imput after a seizure has happened.. instead of
> feeling like egg on someone's face. Wonder if there is some experience they
> could relate what happens to you to what happens to them they have no say
> in, so you are not as ostracized.
>
>
> Hey Rodolfo Quinones, Jason and Mark.. Sandy here
> You wrote..
> ..Sometimes I have seizures here; they just have my wife come pick me up.
> If I
> see her here I instantly know what happened (despite my memory being
> erased).
> ..you can ride a bike if you can't drive a car, but I guess nobody worries
> about
> epileptic bikers ("bikers with epilepsy").
> I was kicked off a bike once by a seizure in 2007 ... I wear a sterling
> silver curb-link medical bracelet that says "EPILEPSY / SEE CARD IN WALLET".
> The card says not to call 911. But the people who saw me unconscious on the
> side of the road and drove past me (!)
> called 911 ... This bracelet is totally scraped up ..should get it engraved
> again. Jason
>
>
>
>
> Mark,
>
> I've had my credit ruined once already by this situation. When NJ revoked
> my
> license, they actually sent a self-addressed stamped envelope for me to
> physically send it back. They also suspended my license here in CA for six
> seizure-free months (i.e. forever) because CA state law requires the ER to
> fax the DMV when people have seizures. This is also the law in NJ, PA, and
> NY, the other three states I've lived in... wonder what the chances were of
> that.
>
> NOW I have to ride a bike to work. I guess it's a cushy commute though,
> only
> 5 miles, from Santa Clara through Sunnyvale to Cupertino. And I can
> telecommute at this job if I don't want to bike in. It's the perfect job
> for
> an epileptic ("person with epilepsy"). I highly recommend going into
> computers.
>
> Sometimes I have seizures here; they just have my wife come pick me up. If
> I
> see her here I instantly know what happened (despite my memory being
> erased).
>
> When the license got suspended, I just went to a local bike store and
> splurged on a nice one. You might as well. It's kind of crazy that you can
> ride a bike if you can't drive a car, but I guess nobody worries about
> epileptic bikers ("bikers with epilepsy").
>
> I was kicked off a bike once by a seizure in 2007 on my way back from a
> bookstore. I wear a sterling silver curb-link medical bracelet that says
> "EPILEPSY / SEE CARD IN WALLET". The card says not to call 911. But the
> people who saw me unconscious on the side of the road and drove past me (!)
> called 911 (which was already illegal in CA, with the recent cellphone law,
> now that I think about it). They knew the whole story when I woke up in the
> ambulance.
>
> This bracelet is totally scraped up now; I should get it engraved again.
>
> Jason
>
> --- On Tue, 8/25/09, Rodolfo Quinones <rodolfoquinones20@
>
>
> From: Rodolfo Quinones <rodolfoquinones20@
> Subject: Re: [epilepsy] I've had it!
> To: epilepsy@yahoogroup
> Date: Tuesday, August 25, 2009, 6:16 PM
>
>
> Say Mark,
>
> I can understand what your saying,because of my disability with the
> epilepsy problem
>
> and my lupus problem too. I can't get a job as a dish washer or even a
> jaintor to
>
> clean other people mess. So don't feel bad about it Mark.
>
> Rodolfo
>
> --- On Tue, 8/25/09, Jason <tiscione@gmail.
>
>
> From: Jason <tiscione@gmail.
> Subject: Re: [epilepsy] I've had it!
> To: epilepsy@yahoogroup
> Date: Tuesday, August 25, 2009, 10:34 PM
>
>
>
>
>
>
> Mark,
>
> I've had my credit ruined once already by this situation. When NJ revoked
> my
> license, they actually sent a self-addressed stamped envelope for me to
> physically send it back. They also suspended my license here in CA for six
> seizure-free months (i.e. forever) because CA state law requires the ER to
> fax the DMV when people have seizures. This is also the law in NJ, PA, and
> NY, the other three states I've lived in... wonder what the chances were of
> that.
>
> NOW I have to ride a bike to work. I guess it's a cushy commute though,
> only
> 5 miles, from Santa Clara through Sunnyvale to Cupertino. And I can
> telecommute at this job if I don't want to bike in. It's the perfect job
> for
> an epileptic ("person with epilepsy"). I highly recommend going into
> computers.
>
> Sometimes I have seizures here; they just have my wife come pick me up. If
> I
> see her here I instantly know what happened (despite my memory being
> erased).
>
> When the license got suspended, I just went to a local bike store and
> splurged on a nice one. You might as well. It's kind of crazy that you can
> ride a bike if you can't drive a car, but I guess nobody worries about
> epileptic bikers ("bikers with epilepsy").
>
> I was kicked off a bike once by a seizure in 2007 on my way back from a
> bookstore. I wear a sterling silver curb-link medical bracelet that says
> "EPILEPSY / SEE CARD IN WALLET". The card says not to call 911. But the
> people who saw me unconscious on the side of the road and drove past me (!)
> called 911 (which was already illegal in CA, with the recent cellphone law,
> now that I think about it). They knew the whole story when I woke up in the
> ambulance.
>
> This bracelet is totally scraped up now; I should get it engraved again.
>
> Jason
>
> On Tue, Aug 25, 2009 at 3:05 PM, Mary CDer <marycder@yahoo. com> wrote:
>
> > have your friend take u to work or get a bicycle untill u can afford a
> car
> > again, i rode a bicycle for years back and forth to work, noone ever
> bought
> > me a car
> >
> > --- On Tue, 8/25/09, thebakist <thebakist@yahoo. com> wrote:
> >
> >
> > From: thebakist <thebakist@yahoo. com>
> > Subject: [epilepsy] I've had it!
> > To: epilepsy@yahoogroup s.com
> > Date: Tuesday, August 25, 2009, 5:00 PM
> >
> >
> >
> >
> >
> >
> > Where is justice in the world? Not only have I lost my driving privileges
> > for 6 months, but due to that fact, I've been unable to work and
> therefore
> > can't afford to maintain my car. I've had to sell it. Fortunately, I've
> sold
> > it to a friend who takes me where I have to go when I have no other way
> of
> > getting there (doctor's appoitments, et al. The driving suspension is due
> to
> > expire in about 2 months, but a lot of good that does me now.
> >
> > My dad had bought me my car which I have subsequently sold. Since then,
> he
> > has passed away and my Mom doesn't seem to show any interest in getting
> me a
> > car.
> >
> > I just needed to vent.
> >
> > Thanks for reading my ranting
> >
> > Mark
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
> > ------------ --------- --------- ------
> >
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> >
> > Yahoo! Groups Links
> >
> >
> >
> >
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
> ------------
>
> Just a friendly reminder: Please remember to sign your post and remember to
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