Trish,
Wow! What a time you have had!
Quite a few have mentioned that they had a grid installed (I think)
in their head or brain. Can you tell me what that is? Do they put
you out to do it?
Millie
> Hello,
> I will tell you about what I went through before surgery. It was 1990
> Sept. I was being doctored out of the minnesota epilepsy group And the
> group had a floor in United hospital in St. Paul. So After talking it over
> with my Doctor...Dr. John Gates,We both decided that he needed me to go to
> the epilepsy ward in the hosp. to have an E.E.G. For a week or more. It
> ended up being a mothe where they weaned me off my meds and recorded my
> siezures and as they were doing that thay also were giving me differents
> test like the wada test, MRI,Cat scan and exrays, and the mmpi ( i think
> that is what it was...)It a phsycological test where you have to answer
> over 200 Questions. (boy I hated that test!) They let me get out in
> October but they wanted me back in 2 wks as they wanted me to have a grid
> put on my brain. They did 3 weeks of grid work and on the day of my
> surgery my doctor came in the room and said "I am sorry to tell you that
> the surgery has been
> cancelled." I had family and friens in the room waiting for the surgery
> so they all heard that...The Dr. wanted to tell me why but he wanted the
> people to go. But I said no tell everyone why as I knew I was going to be
> a mess if I was alone. Well the reason was that my left side wouldbe
> compramised as far as Dragging my leg And my arm would be usless and I
> would drool. Talk about a hugh dissapointment!
> the grid out and start me back on meds.Boy was I angry! angry at God!
> angry at my doctor but more angry with myself as I let my hopes fly high
> and told everyone that I won't have siezures anymore!
> As I left the hosp. my doctor told me that there was a new surgery that
> he and my surgen needed to be taugh on how do it and when they got done he
> would call me. Well he called me in April of 91 and said come on in for a
> bit more mapping and other test and we will do a subdural peel. Well I did
> and I had the surgery and after surgery was done and I was awake he told
> me that they were not able to do the middle part of my rt temporal lobe as
> I had a hugh nerve running through it. So he said the siezures might
> decide to jump over that nerve and I would have my siezures again.
> I was siezure free for a motnh and then boom! they came back but without
> my aura or with out the excrutating pain or vomiting.
> Now here is the really sad thing...that I had found out the last 2
> yrs...the siezures that I was having were psuedo siezures and not
> epileptic ones! A blessing but also a curse as I had to see an epileptic
> phsychologist who then taught me how to reconize the psuedo siezures and
> how to teach myself not to have them.Well It worked until Idecided they
> have stopped so I don't need to keep a journal and I could just keep my
> emotions in check...again. It worked for a while infact a yr but then my
> siezures had change again and they put me in Barns Jewish hsp. and after
> the 48 hour EEG. my doc told me they were psuedo siezures and not
> epileptic ones again!.
> Since I had gone through this before I knew how to get rid of them...and
> I did.They took me off of 3 of my epi pills and only put me on one. Now I
> am able to stop them from coming or stop them when they just start.My epi
> doc told me in 6 to a yr she will let me have my liceance to drive! My
> med. which is carbatrol is stopping my epileptic ones.
> I never knew about psuedo siezures till I was told I had them. But thats
> another part of my life.
>
>
> Trish (jiminycricketblue)
>
>
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