You have to tell him he has seizures. At some point, he will have seizures in front of other people, so he has to be aware that he has seizures and some of the more common things he does when he has a seizure. Have you been to see a neurologist? I'm assuming he'll also wonder why you are taking him to a new doctor, and the doctor will be talking to him and you about his seizures.
If you are matter of fact when you talk to him, it will likely not be a big deal to him. You may have some fears or rather intense feelings about your "baby" having seizures, but try not to pass this along when you talk to him. Be factual, as much as a little guy can understand, and relatively brief. I remember the attention spans of 6 year olds. He'll likely come back to you with questions after he's thought about it for a while, and that's great. You do need to keep him safe, so some things may have to change in his daily life depending on the activities he currently does. Try not to go overboard with this. I understand that most parents want to do everything they can to keep their children safe, but you also want your little guy to have as normal a life as possible.
Best wishes. I hope you can bring his seizures under control. It seems like yesterday when my Megan had her first seizure at ten, but she actually just turned 23 yesterday! She has generalized tonic clonic and myoclonic seizures, but they are now under control. She's currently attending college, has her driver's license, works part time, and basically has a normal life.
Tammy
Megan's Mom
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