Hi Doris
Well I have to positive, life is far too short to be
anything other. Yes I will let you know how it goes but I
would like to know more about this bright lights, I am
wondering if my ep is worsening. This is my first storm in a
long time but when they come, they still catch me out.
Regards
Adrien
-----Original Message-----
From: epilepsy@yahoogroups.com
[mailto:epilepsy@yahoogroups.com] On Behalf Of DorisY
Sent: 22 May 2012 08:59 PM
To: epilepsy@yahoogroups.com
Subject: [epilepsy] Re: Some advice wanted on my seizure
yesterday
Hi Adrien,
You sound super positive and I am really glad. When
you get moment after appointment next week, please let
us know how it went.
Sincerely, Doris
--- In epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com> , "Adrien Collins"
<adriencollins22160@...> wrote:
>
> Hi Doris
>
> Ok thanks for your support, yes I know there are lots of
> people who can relate to my problems so that is why I ask
on
> here. I know the light affects me but I didn't realise
until
> yesterday how annoying the bright light can be. I have sun
> glasses but being totally blind, I don't think to wear
them.
> Also I sit at my pc and often in the dark and leave the
> lights off but the light on my laptop aggravates me but I
> don't think about it although I can see it, I can tell
> between light and dark, although I am blind. it just slips
> my mind if you know what I mean. It is hard to explain but
> yesterday worried me a bit. Next week I have an
appointment
> with my doctor I think I should tell him about all these
> problems, see what he suggests. He in the past has said my
> epilepsy needs checking out as it hasn't been done for a
> long time.
>
>
> Regards
>
> Adrien
>
>
> -----Original Message-----
> From: epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com>
> [mailto:epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com> ] On Behalf Of DorisY
> Sent: 22 May 2012 07:57 PM
> To: epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com>
> Subject: [epilepsy] Re: Some advice wanted on my seizure
> yesterday
>
>
>
> Hi Adrien,
> I ache for you. Gosh that will not help much,
> but I want you to know we are all together in our own
> ways and experiences. Post a seizure, I can relate
> to the day of being muzzy and I find a lot of sleep
> helps. I wonder if you have tried sunglasses to
> help in part with the difficulty of briteness causing
> both discomfort and a frequent hard thing to deal with.
> Remember there are so many who can relate to what you
> are saying.
> Take care.
> Sincerely, Doris
>
> --- In epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com>
> <mailto:epilepsy%40yahoogroups.com> , "Adrien Collins"
> <adriencollins22160@> wrote:
> >
> > Hi
> >
> > Yesterday I had one of my regular epileptic storms, I
felt
> > ok the day before but I have been thinking back and the
> > build up to this seizure have been obvious, stroppy,
> > irritable, impatient, and others. I lost concentration,
> > focus, and I had a muzzy head most of the day. I also
felt
> > queasy most of the day which is unusual for me. Also,
when
>
> > the sun comes round to my side of the house, it is very
> > bright and the bright lights seem to aggravate me. Not
> only
> > when I had the seizure but other times. I spoke with the
> > epilepsy action earlier on and they suggest that the
> bright
> > lights may be caused by something else. What do you guys
> > think about this? I am blind so I can't see but when I
> face
> > any bright or flashing lights such as when you are
driving
> > along the road and you pass trees and the sun is
> flickering
> > between the trees, I can't look at the light. I just
need
> to
> > know what this may be. My eyes work even though I am
> blind,
> > it is the brain that is damaged.
> >
> > Regards
> >
> > Adrien
> >
>
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