Hi Susan
It is the side affects I am avoiding, plus I know in myself
that I have never needed a second medication but also my own
gp has never put me on another medication so why now? The gp
I saw on Tuesday has a fondness of giving out drugs
regardless. I will wait until I speak to my neurologist in
June, see what he says, he is the expert.
Regards
Adrien
-----Original Message-----
From: epilepsy@yahoogroups.com
[mailto:epilepsy@yahoogroups.com] On Behalf Of Susan Wain
Sent: 30 May 2012 11:02 PM
To: epilepsy@yahoogroups.com
Subject: Re: [epilepsy] Some advice wanted on my seizure
yesterday
The best thing to do is to talk to your pharmacist! They
know more than the doctor about meds! I was on Depakote and
what a nightmare! I had hallucinations that were close to
aura seizures, I lost most of my hair, and couldn't sleep.
PLUS I was still having seizures. Once I switched to
Trileptol I was fine.
________________________________
From: Adrien Collins <adriencollins22160@googlemail.com
<mailto:adriencollins22160%40googlemail.com> >
To: epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com>
Sent: Wednesday, May 30, 2012 9:34 AM
Subject: RE: [epilepsy] Some advice wanted on my seizure
yesterday
Hi
I have been given lanactoal but gut instinct tells me I
don't need it, mum and I have been looking it up on the net
and I am definitely not going to take it but I just would
like to hear if I am doing the right thing. I am not
impressed or encouraged by the large list of side affects or
the fact that it could interact with my tegretol which until
now has been working ok. I think I myself should know but I
also know that I have to lose some weight and exercise a bit
more, whether or not these will help me I don't know but I
would feel better if I lost some weight not that I am too
heavy but could do with loosing a few kiloes. Being that I
am in a wheelchair, it is difficult for me to exercise but
every little helps.
Regards
Adrien
-----Original Message-----
From: epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com>
[mailto:epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com> ] On Behalf Of Andy
Swarbrick
Sent: 29 May 2012 09:02 PM
To: epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com>
Subject: Re: [epilepsy] Some advice wanted on my seizure
yesterday
I wish our Jane had been able to have a review. It was
something she
put off, and put off...
xx
Andy
http://www.forjane.co.uk/ - Fighting SUDEP. Donate Now:
http://uk.virginmoneygiving.com/team/ForJane
On 29 May 2012 19:56, Adrien Collins
<adriencollins22160@googlemail.com
<mailto:adriencollins22160%40googlemail.com>
<mailto:adriencollins22160%40googlemail.com> > wrote:
> Hi
>
> Just wanted to let you know that I now have my review
booked
> for the 15th of June, I went to see my doctor and he rang
> and got me an appointment strait away with the
neurologist.
> He has also put me on another medication to work along
side
> the tegretol, I have to get it from the pharmacist, will
> keep you posted.
>
>
> Regards
>
> Adrien
>
>
> -----Original Message-----
> From: epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com>
<mailto:epilepsy%40yahoogroups.com>
> [mailto:epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com>
<mailto:epilepsy%40yahoogroups.com> ] On Behalf Of Susan
Wain
> Sent: 24 May 2012 12:05 AM
> To: epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com>
<mailto:epilepsy%40yahoogroups.com>
> Subject: Re: [epilepsy] Some advice wanted on my seizure
> yesterday
>
>
>
> It sounds like some of my panic attacks that get real
> intense! Things smell stronger and stranger and U get de
> javu
>
> ________________________________
> From: Adrien Collins <adriencollins22160@googlemail.com
<mailto:adriencollins22160%40googlemail.com>
<mailto:adriencollins22160%40googlemail.com>
> <mailto:adriencollins22160%40googlemail.com> >
> To: epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com>
<mailto:epilepsy%40yahoogroups.com>
> <mailto:epilepsy%40yahoogroups.com>
> Sent: Wednesday, May 23, 2012 1:49 PM
> Subject: RE: [epilepsy] Some advice wanted on my seizure
> yesterday
>
>
>
>
> Hi Elizabeth
>
> Ok about your szs, they sound very familiar, yes I have a
> doctor's appointment for early next week, I need to get
this
> checked in to, something is changing. I haven't seen a
> doctor for my eyes for 7 or 8 years, there is little they
> can do but it is clear to me that things are changing, I
> have had ep for so long but it doesn't mean that it should
> be forgotten. Today, not for the first time, I had a kind
of
> flash back, I had just moved away from the sink after
> cleaning my teeth, my head started to swim, it was like I
> was seeing pictures. I spoke to someone at the
encephalitis
> society and he thinks it is definite brain activity, not
> sure what. It was like I was have millions of pictures
> whizzing through my head, because I am blind I can't see
but
> the signals are getting through and are not being
translated
> but this may be the build up of signals kind of escaping,
> really puzzling. I have had it several times over the last
> few years. It only lasts for a minute or less.
>
> Regards
>
> Adrien
>
> -----Original Message-----
> From: epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com>
<mailto:epilepsy%40yahoogroups.com>
> <mailto:epilepsy%40yahoogroups.com>
> [mailto:epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com>
<mailto:epilepsy%40yahoogroups.com>
> <mailto:epilepsy%40yahoogroups.com> ] On Behalf Of
Elizabeth
> Quinn
> Sent: 23 May 2012 03:22 AM
> To: epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com>
<mailto:epilepsy%40yahoogroups.com>
> <mailto:epilepsy%40yahoogroups.com>
> Subject: Re: [epilepsy] Some advice wanted on my seizure
> yesterday
>
> Hi!
>
> That sounds like my classic seizures. Sometimes I feel
> queasy, sometimes not. But I usually have some
concentration
> issues, feel like something's off, etc... Light can also
> bother me (like filtering) and has triggered seizures. I
> would call your doctor and let him/her know what happened.
> It may just be a fluke, especially if you're not really
> stressed, you've gone to bed on time, etc.. But maybe you
> need a med change. I wouldn't totally discredit the light
> this time. If it keeps happening though, I agree--go see a
> doctor, which I assume you already do for your eyes.
>
> elizabeth
>
> ----- Original Message -----
> From: Adrien Collins
> To: epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com>
<mailto:epilepsy%40yahoogroups.com>
> <mailto:epilepsy%40yahoogroups.com>
> <mailto:epilepsy%40yahoogroups.com>
> Sent: Tuesday, May 22, 2012 12:53 PM
> Subject: [epilepsy] Some advice wanted on my seizure
> yesterday
>
> Hi
>
> Yesterday I had one of my regular epileptic storms, I felt
> ok the day before but I have been thinking back and the
> build up to this seizure have been obvious, stroppy,
> irritable, impatient, and others. I lost concentration,
> focus, and I had a muzzy head most of the day. I also felt
> queasy most of the day which is unusual for me. Also, when
> the sun comes round to my side of the house, it is very
> bright and the bright lights seem to aggravate me. Not
only
> when I had the seizure but other times. I spoke with the
> epilepsy action earlier on and they suggest that the
bright
> lights may be caused by something else. What do you guys
> think about this? I am blind so I can't see but when I
face
> any bright or flashing lights such as when you are driving
> along the road and you pass trees and the sun is
flickering
> between the trees, I can't look at the light. I just need
to
> know what this may be. My eyes work even though I am
blind,
> it is the brain that is damaged.
>
> Regards
>
> Adrien
>
> [Non-text portions of this message have been removed]
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
>
>
> ------------------------------------
>
> Just a friendly reminder: Please remember to sign your
post and remember to clean up messages when you reply to
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>
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>
>
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