Sunday, February 20, 2011

Re: [epilepsy] Going to see your parents

I had the surgery in 2004 on my left temporal lobe. I was on 4 different
seizure meds and and one to help me sleep at night too. My seizures are
still complex partials, but before the surgery I was having 25-30 a month
and now it is about 3-5 a month. I was just glad that they were cut down and
I am not on so much medicine. I was so scared when I finally made to the
deicision to go through with it. I was given information from my neurologist
about people who had done before. He gave me a 70% chance that I would never
have another seizure, but even though they did start back, they are not near
as bad as they were.It is something I never regretted. Min started from a
head injury when I was a baby. I am 42 now, the scarring is still there, but
they did remove some of it.If there is anything else I can help, write
anytime. Take care.

Tammy

On Sun, Feb 20, 2011 at 10:58 AM, <lbarnett3@kc.rr.com> wrote:

>
>
> I believe that knowledge is power and the more information you can provide
> your family, the better. Does your doctor have any information he can give
> you? Is there anything he can add specific to your situation? Are there
> articles on the internet you can access that are similar to your situation
> that would be of help? If you are leaning toward surgery, why are you going
> that direction? Write it down at home in a pro versus con list such as this
>
> Pros Cons
> Will help control Seizures better May cause some memory loss
> I may get to reduce medications May have to take the same amount
>
> You get the idea...the more you know and can articulate, reherse, write
> down and think about, the better armed you will be when talking to your
> family. Also, allow yourself to realize how scarey this is at home so that
> when you get home, you are not sliding back into old roles AND feeling
> guilty about them. THIS is a scarey choice and you have a right to feel
> scared. But if you do your homework first, you will feel armed and empowered
> too.
> Lynn
>
>
>


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