my concerned is what side affect surgery can bring
currently I have one or two seizures a month, I do take 19 pills
3 different medications, my memory is not the best but what if it does get worse
after surgery or something goes wrong, or my vision goes....I don't know I guess
I'm just scared
________________________________
From: Kelly Porter <kellyporter@frontiernet.net>
To: epilepsy@yahoogroups.com
Sent: Sun, February 20, 2011 10:33:32 AM
Subject: Re: [epilepsy] going to CA to visit my mom
I had my right temporal lobectomy in March of 08'. I understand the
pressure you feel like you are under. For me the decision came down to
asking my epileptologist this question "Do you beleive this is the only
chance i have of being seizure free?" her answer "yes without
question". I told her if the surgery could give me one day seizure free
I would do it, she told me it would at least give me that. I have no
doubt that it is one of the best decisions I have ever made.
Some background on me. I was having 10-12 complex partials a day before
I was diagnosed, and 3-6 a day even though I was on 3 meds. The Dr.
told me I was an "extreme case" and that surgery was my best option.
After looking into it my husband and I knew that it was. I am now
seizure free most days, and have and average of 1 a week, but they are
nowhere near as intense as the ones I use to have. I do have some side
effects to the surgery. I lost 14 points in my IQ, I do have short term
memory issues, and my concentration is not so good. But, all of that is
better then having multiple seizures a day and being, for all intensive
purposes, useless! I can't work but I do manage to make the bed every
day, and cook for my family most days, neither of these were happening
for 2 years before my surgery.
If you have nay questions let me know, I stick around here for just that.
kelly
On 2/19/2011 7:11 PM, happymeri wrote:
> I'm getting a little nervous since by this time next week I will be in CA with
>my family, and don't get me wrong I love my family but this time I'm going to go
>to possibly discussing the possibility of temporal surgery.
>
> I going to print some basic stuff to have for them but I know that I'm just
>going to end up freaking out and just cry just like I do now at home.... My
>husband did not want to go with me or correction is not really able to go with
>me because money is tight so my youngest son (14 yr) is going along with
>me...surgery is not a done deal but more and more it looks like that's they way
>I will end up going
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