Welcome Mischa!! I hope you find the site helpful it sure has helped me. What an inspiration you are :)
Jamie Malone (megan's mom age 9)
--- In epilepsy@yahoogroups.com, "Millie Myers" <mylmy@...> wrote:
>
> Mischa,
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> Welcome to our group. What are you studying in college?
> Are you in a wheel chair?
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> Aren't we glad for second opinions?
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> Millie
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> ----- Original Message -----
> From: Mischa
> To: epilepsy@yahoogroups.com
> Sent: Tuesday, January 18, 2011 8:50 PM
> Subject: [epilepsy] Hello
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>
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> My name is Mischa Kennedy. I am 20 years old and I am a college student. have cerebral palsy (left side hemiplegia), right side open-lipped schizencephaly and focal seizures. Schizencephaly is a rare brain disorder that causes splits or clefts in the brain. This is what causes my seizures. Most people who have this condition are unable to live without constant care. I was diagnosed at nine months old. The doctor who diagnosed me suggested to my mother that I be institutionalized because I would never be able to live a normal life. Fortunately, my mom went and got a second opinion from a different neurologist, who said I was a "miracle case". I stopped having seizures at 6 years old after taking Tegretol. I was seizure-free until I was 14. I had two seizures in April and July of 2005. I was put on Topamax, which had weird side effects. I couldn't think of words to put in sentences. So, I was taken off the Topamax and I was put on Carbatrol, which works very well. I have had two seizures since being put on Carbatrol...One in March of 2009 and one in December 2010. The seizure in March of '09 was a scary one. According to my parents, I went into a series of seizures that lasted around 10 minutes. I hope to be able to communicate with others and learn more about epilepsy.
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