Monday, January 31, 2011

[epilepsy] Re: Frustrated

 

Hi Stephen,

Have you lucked into surgery for your seizures?

Steve

--- In epilepsy@yahoogroups.com, stephenn harrison <stephennharrison@...> wrote:
>
> Hi Liz.  My name is Stephen Harrison.
>             I have Absences, and I have 4 -5 per day.  I live in Lancaster. &
> have been to see several specialists, and they have kept changing my tablets. 
> But what ever they have tried me on, they have never worked on me.  I
> take Lamotrigine, Keppra, clonazipam.  So seen as how they don't make any
> difference I myself think that I should stay as I am.  That is the way I feel. 
> I have had a few jobs, and they seem to finnish me.  Due to my epilepsy.  So
> I receive benefits now.
>                                                            
>
>
>
> ________________________________
> From: Liz Welker <lizard110366@...>
> To: epilepsy@yahoogroups.com
> Sent: Sun, January 30, 2011 1:28:23 PM
> Subject: Re: [epilepsy] Frustrated
>
>  
> How often are your szs? What kind(s) do you have? Do you have an aura
> beforehand? Are they long enough for you to get somewhere safe?
>
> I am also a mom, but I'm the one with the epi. I know that my parents are uneasy
>
> about me having szs when I'm alone, but I'm fortunate to have excellent control,
>
> a long aura, and generally have them only at night, so I'm in bed, anyway, and
> my hub is with me. I have experienced some alone, and it was scary the first
> time, but I'd much rather be alone than have my kids at home. I know what to do.
>
>
> If you have some kind of "drill" with your parents, where you can show them that
>
> you know what to do and are capable of doing it, they may be more reassured and
> more inclined to allow you to be alone while they're gone. If you can call
> someone for help once you come to and protect yourself from injury, I think
> they'll feel more confident that you can handle whatever happens.
>
> Good luck!
>
> LIZARD :)
>
> ________________________________
> From: Mischa <mischa25@...>
> To: epilepsy@yahoogroups.com
> Sent: Sun, January 30, 2011 1:04:11 AM
> Subject: [epilepsy] Frustrated
>
>  
> In a few months my parents might go to Las Vegas for a military reunion, and
> they don't want me to be by myself. I know it's only because they care about me,
>
> but it makes me feel like such a baby. I'm 20 years old! I'm pretty sure that I
> can take care of myself just fine. I think my parents are afraid that I will
> have a seizure and something horrible will happen, like me falling and suffering
>
> a head injury. They need to realize that there may be a time when I will have a
> seizure without them being around. My older sister Jan (she's not really my
> sister, but my best friend from college. She's 38) said she would stay with me.
> I talked to her about feeling frustrated and she said that if my parents went on
>
> this trip and something happened to me, they would feel a lot of guilt. She was
> also telling me that no matter how old a child is, a parent will always worry
> (she's a mom to a 13 year old). When I first told Jan of my dilemma, I said, "I
> don't need a babysitter". She reassured me that my parents don't think I am a
> baby.
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

__._,_.___
Recent Activity:
Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply to them.  This is especially important if you are on digest.  This not only helps out the list owner but, it makes messages much easier to read when they arrive in our inboxes.

MARKETPLACE

Find useful articles and helpful tips on living with Fibromyalgia. Visit the Fibromyalgia Zone today!


Stay on top of your group activity without leaving the page you're on - Get the Yahoo! Toolbar now.

.

__,_._,___

No comments:

Post a Comment