Thursday, March 25, 2010

Re: [epilepsy] Your headache post seizures

Tim,

I am very glad that the Vimpat got FDA approved. I take the medicine at the
exact same time every day. I have watches with alarms set it is just a
routine that I got into.It is at 350 mgs right now, divided into two doses a
day. It will be up to 400mgs,200mgs twice a day pretty soon.It has done
wonders for the seizures though. I have went a month without a seizure a
couple of times since I have been on it. That hasn't happened since I had
the suregery done.I have been on the Keppra and now the Keppra XR for years,
way before the Vimpat, I think when it 1st came out 2002 or somewhere around
there.I am glad there is something that is finally working, because none of
the other stuff never worked. Hopefully it will keep working. Take care.

Tammy

On Thu, Mar 25, 2010 at 5:11 PM, TIMOTHY BALDWIN <tbb1@prodigy.net> wrote:

>
>
> Tammy,
> I've been on all kinds of medicine combinations.I finally got into a study
> of lacosamide in '07.It was passed in Europe on 7/3/08 then real quickly FDA
> passed Vimpat on 10/31/08.Vimpat reduced my frequency of seizures from one
> every 3-4 weeks to one per 8-10 weeks.Then Keppra XR was added to it on
> 12/4/09,what a change now I'm not aware of any since then.I take the alot of
> Vimpat twice a day, 8:30am&8:30pm and XR only once at bedtime (9:30pm). It
> is very important to always take medicines at exactly the same time or maybe
> 1or 2 mins. late,ALL the time. Never think of it like or around that time.
> Prescriptions might say morning and evening but then time it more exactly.
> Tim Baldwin
>
>
>
> ----- Original Message ----
> From: uniquepnk tds.net <Uniquepnk@tds.net <Uniquepnk%40tds.net>>
> To: epilepsy@yahoogroups.com <epilepsy%40yahoogroups.com>
> Sent: Tue, March 23, 2010 9:23:50 PM
> Subject: Re: [epilepsy] Your headache post seizures
>
> Deb,
>
> I have been on the Keppra for years, so I know pretty well what I can take
> and what not to take with it. The Vimpat I haven't been on that long, so I
> really don't know about it. The antibiotics and other medicine for other
> problems I do wonder about if and when the time comes for them. Every now
> and then I go and get something to eat after a seizure.I don't know why I
> do
> it. It was worse before I was changed to the Vimpat, but it has happened.
> Just have to be careful and ask the doctors before taking other things.
> Vimpat is a pretty new thing with the doctors around here, so there is a
> lot
> to learn about it. I guess it will take so time. Take care.
>
> Tammy
>
> On Mon, Mar 22, 2010 at 11:13 PM, Deb few <na_na_76904@yahoo.com<na_na_76904%40yahoo.com>>
> wrote:
>
> >
> >
> > Tammy,
> > I take the same medicine as you do. I dont have much of a headache
> either,
> > just sleep helps me alot and I get some what hungry afterwards. But
> mainly
> > Im sleepy.
> > Im really careful of what meds I take with it though. I cant take cipro
> at
> > all, it gives me a seizures.
> > So my Dr. has that finally in his chart.
> > Other than that, so far so good.
> > Nite all.
> > Deb
> >
> > ________________________________
> > From: uniquepnk tds.net <Uniquepnk@tds.net <Uniquepnk%40tds.net><Uniquepnk%
> 40tds.net>>
> > To: epilepsy@yahoogroups.com <epilepsy%40yahoogroups.com> <epilepsy%
> 40yahoogroups.com>
>
> > Sent: Mon, March 22, 2010 8:32:31 PM
> > Subject: Re: [epilepsy] Your headache post seizures
> >
> > Doris,
> >
> > I hardly ever get headaches since I have been Keppra. It was the same
> with
> > the Neurontin too. Both of them are given for pain too.Before I took
> either
> > one of them I took advil for the headaches after a seizure. Just sleeping
> > the seizure off helped more than anything for me
> > when the headaches were really bad.You might ought to make sure it is
> safe
> > to take with medicine you take. Take care.
> >
> > Tammy
> > On Sun, Mar 21, 2010 at 5:43 PM, DorisY <dorisellen@nc.rr.com<dorisellen%40nc.rr.com>
> <dorisellen%40nc.rr.com>>
>
> > wrote:
> >
> > >
> > >
> > > I was wondering what you might have found helpful when it is
> > > the time after, or day after a seizure and the headache follows.
> > > My seizures are nocturnal only, but it seems to take at least a
> > > day after for headache to go away. Is there anything you do
> > > that is helpful for this other than extra drug, such as Excedrin
> > > for headache or something similar.
> > >
> > > Just thought maybe someone would have meaningful suggestion.
> > > Thanks.
> > > Doris
> >
> > >
> > >
> > >
> >
> > [Non-text portions of this message have been removed]
> >
> > ------------------------------------
> >
> >
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> >
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> >
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
>
> [Non-text portions of this message have been removed]
>
> ------------------------------------
>
> Just a friendly reminder: Please remember to sign your post and remember to
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>
>


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