Hi Christina,
Before my surgery, I had a cluster of seizures once a month. I would have a seizure (usually a complex partial) once every two hours for 2-4 days. I would then be seizure-free for the next 2-3 weeks; until I had another cluster.
I'm from Athens, Georgia.... not too far away from you. I had my surgery at the Medical College of Georgia in Augusta, GA.
Tristin :)
--- On Mon, 11/23/09, christina <milboo1@yahoo.
From: christina <milboo1@yahoo.
Subject: [epilepsy] Re: new to group
To: epilepsy@yahoogroup
Date: Monday, November 23, 2009, 10:06 AM
tristen,
congradulations on being seizure
free for that long! a surgery
made you seizure free! Glad the
group helped you. sounds like
you had seizure very very often.
before i got on the Topamax I
was havng daily seizures. i have
been on Topamax probably 6 years...
when ever it first came out I got
on it. Too bad my memory s so
poor i can't remember when I
start something.
Anyways, it is nice to meet you!!
Where are you from? I am from
middle tn near nashville, tn.
For most of you who don't know
I have multiple conditions that
cause me to be bed-bound. i am in
bed 23 hours a day. i love
communication with people on the
computer. it is my world that I
can't other wise get out to see.
hope you are having a good day.
NurseGJTubee
Christina in tn
--- In epilepsy@yahoogroup s.com, Tristin Seagraves <tristinspike26@ ...> wrote:
>
> Hi Christina,
>    Welcome to the group. As Steve said, we're a pretty tight knit / family-like bunch of people. We're all here for each other. Feel free to ask questions. Gosh, it sounds like you have a lot to deal with! Well, I have temporal lobe epilepsy. I was diagnosed when I was 9 (1993). I've dealt with all kinds of seizures... absense, partial, complex partial, atonic, and tonic clonic, but the majority of my seizures are partial and complex partial. Up until now, my seizures have never been under control. I had a left temporal lobectomy Nov 12, 08, and I'm now one year seizure-free. I don't think I would have even had the surgery or made it where I am today without the support of this group. Again.... welcome to the group.
> Â
> Tristin Seagraves :)
>
> --- On Sun, 11/22/09, christina <milboo1@... > wrote:
>
>
> From: christina <milboo1@... >
> Subject: [epilepsy] new to group
> To: epilepsy@yahoogroup s.com
> Date: Sunday, November 22, 2009, 12:57 PM
>
>
> Â
>
>
>
> Hello, i am new to the group. I thought I would
> introduce myself a little better. I had a brain
> tumor in 1997-a craniopharingioma. I had chemo,
> radiation, and surgery for the tumor. The tumor
> is gone and has not come back.
>
> Then in 1998, I was walking to class and was hit
> by a truck. I suffered a traumatic brain injury
> and a spinal cord injury. it was at this time
> that my epilepsy started. I have both grand mal
> and complex partial seizures. From the same
> accident I had a hemorrhagic stroke and many
> broken bones and neurological damages. I
> developed central pain.
>
> IN 1999, I was diagnosed with diabetes and
> chronic fatigue/Fibromyalgi a.
>
> In 2000-I got a serious infection my leg and
> developed RSD-Reflexive sympathetic dystrophy
> (also called complex regional pain syndrome
> today).
>
> In 2004 or 2005 I developped Arachnoiditis.
> I was also diagnosed with Gastroparesis,
> dysphagia, Gerd, Esophageal Dsymotility, and
> duodenal ulcer. I was put on a PICC line and
> TPN (nutrition through your veins). I then
> went to a feeding tube. I still have the
> feeding tube for meds and supplements and for
> water in case I get sick when vomiting is bad,
> but I am eating enough to sustain.
>
> IN 2004 had 4 episodes of kidney stones (may
> have been linked to use of topamax.
>
> 2006 Had gallstones and gallbladder was taken
> out.
>
> 2009, Officially got diagnosed with pemphigus
> although I had it for years with no diagnosis.
> It is an autoimmune disease that attacks the
> skin. It causes huge widespread blistering
> and the blisters open up easily and there is
> raw areas that we have to watch for infection
> risk. Plus I am on prednisone and Cellcept
> (usually used to prevent organ rejection by
> stopping immune system) that puts immune
> system in low gear. I have to very careful
> about getting sick!
>
> As for seizures go. I have had 30 this year.
> that is the ones my non-observant nurses have
> noticed. They go outside for an hour at a
> time sometimes to smoke and talk on the phone.
> While I lay in here alone. I am bed-bound
> for the most part due to my disabilities.
> And the little seizures like face twitching
> and arm shaking, lips smacking, they NEVER
> catch those! My friends do, but my nurses
> are clueless. Okay off my soapbox!
>
> I am wanting some friends I can e-mail back
> and forth with. And meet new people. If
> there are people with multiple conditions
> let me know how you handle everything.
> Hope to hear from you soon.
>
> NurseGJTubee
> christina in tn
>
>
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> [Non-text portions of this message have been removed]
>
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