Craig ,
Has it occured to you that MSG affects very few people
including you? I don't see anybody else saying anything
about MSG.
Millie
>
>
> --- On Tue, 3/31/09, craig davis <ohs7778@yahoo.
>
> From: craig davis <ohs7778@yahoo.
> Subject: Re: [epilepsy] It happened again 4670
> To: "No Reply" <notify-dg-epilepsy@
> Date: Tuesday, March 31, 2009, 11:20 AM
>
>
>
>
>
>
> This notice is for anyone who has seizure conditions. It happened again.
> I ate some food with an M S G replacement additive that came from a can of
> Carnation Milk. No MSG logo or information was on the can. Last month I
> also had the same dish of food not knowing then what made me have the
> auras I had. At that time there were more foods which were made by
> different people. I ate just a little of everything as most things then
> must have had M S G in them. I felt bad for almost 3 full days then.
> Yesterday I had some of the same food. After eating the baked corn that
> was made with the canned milk. I started to feel bad in 6 hours. I then
> realized I ate that same coen dish a month ago, thinking then the problem
> came from other food. I thought is was strange knowing it usually affects
> me within 9 to 11 hours later to start feeling bad. This time it was very
> noticeable as I only had the one food and I told my mom to read all the
> labels before she
> buys something. www.sellingsalesman
> show all of you ALL the additives and replacement additives food
> companies use in place of MSG/MonoSodiumGluta
> might read NO MSG !! or MSG FREE !! does not mean there is no MSG in it.
> M S G can cause seizures and auras in the brain. I would like everyone
> who is affected by MSG or parents to kids/infants to call our EFA who is
> looking out for us at 1-800-321-1000. If you believe the EFA really cares
> for us then I can walk on water. I have tried to get the EFA to do
> something about this MSG problem that I and "others" have to live with
> daily. There is no way that the FDA should be allowed to let this MSG
> stay in our food supply. But the FDA is on the side of the
> food corporations, drug companies and doctors. Why because they all get
> money through us who suffers from MSG, nitrates and other illnesses these
> two can cause besides seizures. You would
> think the EFA would have some compassion about this but they never will
> until they hear it from everyone. M S G and nitrates may not affect your
> condition now. That does not mean it will not later in life with seizures
> or any other condition. www.fda.gov You all need to call the FDA as well
> on this issue. I have in the past and I was told I did not know what I
> was talking about as they never heard of MSG creating a seizure condition
> in people. I say the FDA and all the workers there should eat all the
> MSG foods first before anyone in the public digest them. WE ALL need to
> contact the EFA first, FDA second and NIH National Institutes of Health
> third at 1-800-411-1222 www.nih.gov The NIH now is doing a study on MSG
> and fibromyagia. I know what MSG can do. Hopefully none of you will learn
> the hard way as I have. By calling these numbers and keeping the phone
> lines hot about it, maybe something can get done to get MSG out of the
> foods we eat. I
> can not do it alone as I will not by you all knowing who to call now. Get
> ready EFA we'll be calling you all there. 1-800-
> Before phone calls are made, see for yourself if MSG and nitrates creates
> seizures in your life or in your childs life. I believe MSG is more
> dangerous to children more than adults as they will live a lifetime with
> seizures or something else, if parents are not warned about MSG and
> nitrates. Keep all the phone lines hot to these places. I'll call the FDA
> soon after I click send. Craig
>
> --- On Tue, 3/31/09, epilepsy@yahoogroup
> wrote:
>
> From: epilepsy@yahoogroup
> Subject: [epilepsy] Digest Number 4669
> To: epilepsy@yahoogroup
> Date: Tuesday, March 31, 2009, 3:08 AM
>
> There are 21 messages in this issue.
>
> Topics in this digest:
>
> 1a. Re: Ever Have a Blood Test Lost?
> From: mylmy@bnin.net
>
> 2a. Re: EEG results; seizure newbie(Jill)
> From: mylmy@bnin.net
>
> 3a. Re: anyone pregnant/ have been pregnant?
> From: petenlynds
> 3b. Re: anyone pregnant/ have been pregnant?
> From: mylmy@bnin.net
> 3c. Re: anyone pregnant/ have been pregnant? Thanks:-)
> From: lucy133_daisy
> 3d. Re: anyone pregnant/ have been pregnant?
> From: Mary Allen
>
> 4. I was at an EFA lecture last week
> From: no_seizures_
>
> 5.1. Re: new member
> From: mylmy@bnin.net
> 5.2. Re: new member
> From: Kirsten
> 5.3. Re: new member
> From: Tammy Wolfgram
> 5.4. Re: new member
> From: uniquepnk tds.net
> 5.5. Re: new member
> From: kteribond@aol.
>
> 6. Epilepsy Research Results
> From: Belinda Shale
>
> 7. Re: JILL [epilepsy] Re: EEG Result, seizure newbie
> From: Uggie
>
> 8a. Re: Seizures and Medications
> From: Karina Castillo
>
> 9a. Re: Does This Happen To You? [Annette]
> From: TIMOTHY BALDWIN
> 9b. Re: Does This Happen To You? [Annette]
> From: mylmy@bnin.net
> 9c. Re: Does This Happen To You? [Annette]
> From: TIMOTHY BALDWIN
>
> 10a. Re: GOOD MORNING TO ALL
> From: Kirsten
>
> 11. Re: drugs for seizures (Millie)
> From: Jill Gunzel
>
> 12a. Re: EEG Result
> From: debbie riley
>
>
> Messages
> ____________
> 1a. Re: Ever Have a Blood Test Lost?
> Posted by: "mylmy@bnin.net" mylmy@bnin.net mylmy
> Date: Mon Mar 30, 2009 2:51 am ((PDT))
>
> Traveling 2,
>
> I would go to your second Doctor in a heart beat.
> An office that can't keep track of their tests
> would scare me to death.
>
> Millie
>
>
>
>
>
>
>> I was ordered on meds in January. I was instructed to come back in late
>> March to have my blood levels checked. I called the office on 3/21 and
>> there was no order on record. The doctor signed orders on Wednesday and
>> I
>> went in on Friday 3/20.
>>
>> I followed up Tuesday 3/24, and the test could not be found right away.
>> I
>> gave my cell for call back. I did not hear anything so I called back
>> Thursday, 26. Still...no test found. I was then told it may have been
>> sent
>> to the doctors other office, so I called there. They had no record and
>> did
>> not think it would have been sent there, but would check. Again, left my
>> cell phone for call back. No call from either office on Friday. I am
>> going
>> to make a point of it on Monday and make sure I escalate this to the
>> duty
>> nurse, but please....the lack of follow-up does not make me me feel
>> better.
>>
>> I went to another doctor last month for a second opinion. He concurred
>> with my current doctor and said that he was a colleague at another
>> practice and I was in good hands. I really did like him more though
>> becuase of his bedsire manners. I also had a list of quesitons that I
>> brought and he answered them all.
>>
>> I am really thinking of switching over to the other doctor. This is my
>> health and I really do not want to have tests being missed and then not
>> getting an answer on why.
>>
>> What does the rest of the group think?
>>
>>
>
>
>
>
>
>
>
> Messages in this topic (5)
> ____________
> ____________
> 2a. Re: EEG results; seizure newbie(Jill)
> Posted by: "mylmy@bnin.net" mylmy@bnin.net mylmy
> Date: Mon Mar 30, 2009 3:04 am ((PDT))
>
> Jill,
>
> That is a good idea to get all the reports of whatever tests
> he has.
>
> When you have a GM sz your whole body's muscles stretch like
> if they were doing an exercise they weren't used to doing.
> That is probably why he was sore.
>
> Millie
>
>
>
>
>>
>> Steve,
>> Thanks so much for your reply and for taking time to think it through
>> with
>> me.
>> And thanks for the offer to have my husband join. I think I'm the
>> official family email support grouper. No one else seems interested
>> (except my son, who is on a fishing group....but is that a "support
>> group"?)
>> I'm also on one for stroke survivors, thyroid cancer, restless legs
>> syndrome, ovarian cancer, and tremors. Such fun!! I share responses
>> with others, but they don't seem to want to write.
>> I'm thinking you're right about the age factor with the soreness.
> He
>> was also exhausted from it. He actually took naps for the first time
>> in his life, and seemed to need them. But he's almost back to normal,
>> now.
>> Your thoughts on whether the MRI possibilities could be significant
>> enough to cause the seizure are what's been on our minds. Could the
>> findings be important? All we know, so far, is that the ER doctor
>> saw the CT scan and said, "There's no brain tumor."
>> I immediately thought, "Maybe it's a small one and they just
> didn't see
>> it."
>> It was as if he could read my mind, because he looked at me and said,
>> "If a tumor had caused this, it would have been a BIG tumor, and we
>> would be seeing it in a CT scan."
>> So, I'm hoping he's right about that. If not, then you might be
>> right, that we're onto something, with the MRI. Oh, one other reason
>> I was sorta discounting the serious possibilities of the MRI, was
>> that there was no differences in symmetry, no shift in position, and
>> no mass apparent. So, it's just a brighter area. But hey, who am I
>> to read a MRI report, right? :)
>> You were right about the details I know. I'm a stickler for being a
>> team player with the doctors. I always get my lab and diagnostic
>> reports. Several times it's saved us from taking a wrong medical
> step.
>> Thanks again, for all your thoughts. :)
>> Jill
>>
>>
>>
>>
>>
>> Steve wrote:
>> Hi Jill,
>> Welcome to the group! Sorry to hear your husband had his first
>> seizure this month! First off, get your husband into the group
>> (smile). Allot of what might be running through both your minds we
>> call all relate to!, big time! You posted about specifics in great
>> detail which a majority of us wouldn't have a clue about (smile)! As
>> far as relating the details to basics as far as your husband goes I
>> would think the following as far as what you described. As far as
>> being sore for 3 weeks now. Might it be that when he had a grand mal,
>> might it be adding his age, the stressful body movement together
>> might be nothing more than pulling a muscle? I'm 51 and am pulling
>> muscles allot more than when I was younger (smile)! As far as vein
>> infections from the dye for an MRI. That would have nothing to do
>> with a seizure or epilepsy. And as far as the fun test (smile) called
>> a colonoscopy! I was put on meds. for a year after the results where
>> found. But in a year was taken off it. That had nothing to do with a
>> seizure or epilepsy either. And as far as the MRI results, might it
>> be that what you described what might become a nasty tumor might be a
>> possible cause for the seizure? Where the smaller piece found might
>> be located in an area of the brain which caused electrical activity
>> to be affected? Brain tumors can cause a seizure or seizures. Also,
>> you said he had his seizure was in front of the computer. Seizures
>> can be caused by a person who is more light sensitive. Such as
>> flashing police car lights, constantly changing channels on TV or
>> screens on the computer, oncoming traffic at night, the lights in a
>> disco (ect). Those changing flashing lights is a common cause for
>> seizures for a person with epilepsy. Also, stress is an easy way to
>> bring on seizures for a person with epilepsy! You add all these
>> different things together and just maybe, bits or a couple of
>> different things might be what brought on his seizure, who knows?
>> Just some thoughts. Get your husband in here if he could use support
>> by friends as far as seizures, life, the meds side affects ect...
>> Hey, we are nothing more than a group of people on this planet who
>> can relate to each other so much (smile)! Take care, keep a smile on
>> your
>> face!
>> Steve
>>
>>
>>
>> [Non-text portions of this message have been removed]
>>
>>
>
>
>
>
>
>
>
> Messages in this topic (2)
> ____________
> ____________
> 3a. Re: anyone pregnant/ have been pregnant?
> Posted by: "petenlynds" petenlynds@yahoo.
> Date: Mon Mar 30, 2009 4:26 am ((PDT))
>
> --- In epilepsy@yahoogroup
> <lucy133_daisy@
>>
>> Hi all,
>>
>> I am looking for someone who is pregnant (or already has kids!) for
>> some
> advice.
>>
>> I'm 15 weeks pregnant, and on lamictal. Have already had one seizure
> during the pregnancy, and would like some reasurrance/ advice from any of
> the
> epileptic ladies here!
>>
>> TIA, Lucy.
>> lucy133_daisy@
>>
>
> Hi Lucy,
>
> CONGRATULATIONS!
> ago.
> I was very scared but that is the safest med to be on during pregnancy and
> has
> the least side effects. I have a healthy beautiful little girl. I did
> not have
> any serious complications. I had several small seizures during my
> pregnancy and
> had no problems. I was treated as high risk they may treat you as high
> risk as
> well. Prior to my daughter I had 2 miscarriages but at that time I was
> taking
> tegretol and neurontin. After that my dr. switched me to Lamictal because
> I
> wanted to try again and he said that it would be safer. Sure you will
> still
> have a small risk of complications but it is very small. I'm sure they
> will
> monitor you closely. I have a very healthy extremely intelligent child.
> They
> were not certain if it was the meds or just my endometriosis. I know it
> is
> nerve racking but remain positive and keep your chin up. My dr. also told
> me to
> take extra folic acid. So I took double what you normally would take.
> Lamictal
> depletes what your body naturally makes. If you were not informed of that
> ask
> your dr. Make sure you continue to see your Neurologist as well as your
> OB. If
> you are 15 weeks you are already at the safe point. Congratulations you
> made it
> through your first trimester. The only thing that I found with taking
> Lamictal
> during my pregnancy was that I had sleepless nights so I did a lot of
> resting
> during the day. Lamictal can cause that anyway but I found that I had
> more of a
> problem with it during pregnancy. Take care of yourself and remember to
> remain
> positive. Listen to your body and do not over do it rest when you need
> to.
> Take care and best wishes.
> Lyndsey (smile)
>
>
>
>
>
>
> Messages in this topic (5)
> ____________
> 3b. Re: anyone pregnant/ have been pregnant?
> Posted by: "mylmy@bnin.net" mylmy@bnin.net mylmy
> Date: Mon Mar 30, 2009 5:12 am ((PDT))
>
> Hi Lucy,
>
> Welcome to the group. I had my 1st sz when I
> was carrying my 2nd daughter and my 2nd sz when
> I was carrying my 3rd daughter.I do not remember
> what meds the Dr. gave me. My daughters are all
> near 50 years of age now.
>
> The Dr. thought pregnancy and I didn't mix so I had
> my tubes tied. When my 3rd daughter was 2 I had
> another sz and that took me 30 miles away to the
> closest EEG machine at that time. There I found out
> I had EP, couldn't drive for a year and needed to be
> on meds the rest of my life.
>
> I've been on a few meds but now have been on Dilantin
> and Phenabarb for over 20 years. Everybody has to find
> the med or combination of meds for them. My last sz was
> over 2 years ago and before that it was 4 years.
>
> I do suggest that you use the brand name drug of whatever
> your Dr.recommends. I also suggest that you keep a diary
> of when you take your meds, when you have a sz. what happens
> when you have a sz, how long the sz lasts and how long it
> takes you to get back to your usual self. That will help the
> Dr and you to see if there is a pattern.
>
> I have learned so much from this group. Read all the letters and
> you will also.
>
> Millie
>
>
>
>
>
>
>> Hi all,
>>
>> I am looking for someone who is pregnant (or already has kids!) for
>> some
>> advice.
>>
>> I'm 15 weeks pregnant, and on lamictal. Have already had one seizure
>> during the pregnancy, and would like some reasurrance/ advice from any
>> of
>> the epileptic ladies here!
>>
>> TIA, Lucy.
>> lucy133_daisy@
>>
>>
>
>
>
>
>
>
>
> Messages in this topic (5)
> ____________
> 3c. Re: anyone pregnant/ have been pregnant? Thanks:-)
> Posted by: "lucy133_daisy" lucy133_daisy@
> lucy133_daisy
> Date: Mon Mar 30, 2009 7:23 am ((PDT))
>
> Thank you so much for your kind words and advice, Lyndsey and Millie!
> I am also taking Lamictal, and feel so relieved to hear that you both have
> healthy kids.
> Had an ultrasound today, and it's a boy!
> Am going to try and enjoy the pregnancy, and not worry all the time
> because of
> the epilepsy.
> Thanks again ladies:)
> Lucy.
>
>
>
>
>
>
> Messages in this topic (5)
> ____________
> 3d. Re: anyone pregnant/ have been pregnant?
> Posted by: "Mary Allen" jake100036@yahoo.
> Date: Mon Mar 30, 2009 6:30 pm ((PDT))
>
> hello, i have a daughter with epilepsy, she got this from a car accident
> when
> she was 15. she didn"t have her first seizure until she was 18. She
> is now 26 and has had 2 children and one on the way. She has continued to
> take
> 1200 mg of lamictal a day, and is doing fine. The seizures were pretty
> severe
> in the beginning, but are mainly mild ones every once in awhile. She
> currently
> isn,t driving because her last big one was last July, and the state and
> her
> family will not let her drive. I always worry about her and always will.
> It
> is very hard to watch your child live this way, but i thank God everyday
> that
> she is mine... Good Luck and Just have Faith,,,, God doesn't give us more
> than we can handle,,,,,, with love and prayers,,,,,
>
>
>
>
> ____________
> From: lucy133_daisy <lucy133_daisy@
> To: epilepsy@yahoogroup
> Sent: Monday, March 30, 2009 2:28:19 AM
> Subject: [epilepsy] anyone pregnant/ have been pregnant?
>
>
> Hi all,
>
> I am looking for someone who is pregnant (or already has kids!) for some
> advice.
>
> I'm 15 weeks pregnant, and on lamictal. Have already had one seizure
> during
> the pregnancy, and would like some reasurrance/ advice from any of the
> epileptic
> ladies here!
>
> TIA, Lucy.
> lucy133_daisy@ hotmail.com
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
>
> Messages in this topic (5)
> ____________
> ____________
> 4. I was at an EFA lecture last week
> Posted by: "no_seizures_
> no_seizures_
> Date: Mon Mar 30, 2009 4:31 am ((PDT))
>
> I was at a lecture Thursday night by the EFA branch here near Chicago.
> One
> thing mentioned which I've heard many times before says so much in few
> words. They spoke about after the first few meds tried and don't control
> your seizures, the lower the chance of success in each new med. you try.
> More
> and more they are suggesting looking into surgery sooner than ever before.
> There are statistics of success you might be interested in asking your Dr.
> about
> as far as the percentage of success going down each new med. you try.
> Maybe
> those stats. could be found through the EFA? It was most definitely a
> very
> interesting lecture followed by Q/A by 2 Drs. The subject was "Epilepsy
> and
> Testing for Cognitive Deficits" And boy do I have cognitive deficits (big
> smile)! Allot of us can truly relate to that (smile)! Take care, keep a
> smile
> on your face!
>
> Steve
>
>
>
>
>
>
> Messages in this topic (1)
> ____________
> ____________
> 5.1. Re: new member
> Posted by: "mylmy@bnin.net" mylmy@bnin.net mylmy
> Date: Mon Mar 30, 2009 4:42 am ((PDT))
>
> Cathy,
>
> Welcome to our group. I don't have any experiecne with
> children but I have had EP for 46 years. I was diagnosed
> (DX) when I was 30.
>
> I have learned a lot from this group. Just read all the
> letters. You will hear from many. There are 30 different
> kind of meds. Your Dr. needs to find the one that fits
> your daughter.
>
> Keep on asking questions.
>
> Millie
>
>
>
>
>
>> my 7 yr old daughter was just diagnosed with epilepsy this past friday,
>> she had 2 grand mal seizures in less than a week. I have been reading
>> about the different meds and this is very scary!!!! I would love to hear
>> from anywone who could give me advice, answers,anything!
>>
>> cathie
>>
>>
>
>
>
>
>
>
>
> Messages in this topic (156)
> ____________
> 5.2. Re: new member
> Posted by: "Kirsten" kirsty815@yahoo.
> Date: Mon Mar 30, 2009 8:16 am ((PDT))
>
> Hey Cathy,
> My daughter is 6 and has had epilepsy since she was a month old. I can
> tell
> you about our experiences with some meds. I know how scary it can be, but
> your
> in a trial and error period right now to see what med will work best for
> your
> daughter. The key is to find an epileptologist you trust and feel
> comfortable
> talking to.
>
> Meg started with Myoclonic seizures but they've always changed, she now
> has
> complex partial seizures, she's been pretty well controlled on meds and
> hasn't had a seizure since Aug '07'. Meds we've tried are
> Phenobarbital, dilantin, tryleptal, neurontin, and Keppra. Right now
> she's
> on 9cc's of Phenobarbital and 3cc's of Keppra 2 x a day (we're
> currently weaning the Pheno to see if she can stay seizure free on just
> the
> Keppra). I joined this group a little over a week ago and they are all
> very
> friendly and helpful.
>
> Welcome
> Kirst
> --- In epilepsy@yahoogroup
> <cathiebutler@
>>
>> my 7 yr old daughter was just diagnosed with epilepsy this past friday,
> she had 2 grand mal seizures in less than a week. I have been reading
> about the
> different meds and this is very scary!!!! I would love to hear from
> anywone who
> could give me advice, answers,anything!
>>
>> cathie
>>
>
>
>
>
>
>
>
> Messages in this topic (156)
> ____________
> 5.3. Re: new member
> Posted by: "Tammy Wolfgram" tammy@maccetera.
> Date: Mon Mar 30, 2009 9:52 am ((PDT))
>
> To the Mom of the child who was just diagnosed with epilepsy,
>
> First, I'm sorry I forgot to grab your name. My daughter Megan
> started having seizures right around the time she turned ten. I don't
> want to step on anyone's toes, so I hope everyone reads this in the
> spirit in which is was written. I am so glad that my husband was
> diagnosed with esophageal before Megan was diagnosed with epilepsy,
> because dealing with cancer has given me an entirely different
> perspective than I think I would have had without that experience.
>
> My attitude at that time was that anything that didn't have a better
> than 90% change of killing you wasn't really worth worrying about too
> much. (It's still pretty much my attitude:) I am always grateful that
> I had that reaction, as it allowed Megan to live her life as normally
> as possible. I'm not suggesting you should be reckless where your
> child's safety is concerned, but don't overdo the protection either.
> I understand how a diagnosis like epilepsy can overshadow everything
> else, but only if you let it. Focus on making your child's life as
> normal as possible. If you are afraid to even have your child out of
> your sight because of epilepsy, he or she will pick up on that fear
> and very likely become fearful, too.
>
> Obviously, everyone's situation is different. Some children will
> outgrow their seizures and others may not. Some will only have an
> occasional seizure, while others may have dozens in a a single day.
> And you have to keep your own child's circumstances in mind as you
> make decisions. I'm just encouraging you to not let this diagnosis
> overwhelm you or your child. Life does go on and life can still be
> wonderful.
>
> Take care,
> Tammy
>
>
>
>
>
>
> Messages in this topic (156)
> ____________
> 5.4. Re: new member
> Posted by: "uniquepnk tds.net" Uniquepnk@tds.
> Date: Mon Mar 30, 2009 11:20 am ((PDT))
>
> Cathie,
>
> Welcome to the group. I have complex partial seizures. They were caused
> from
> a head injury when I was a baby. I am 40 now. There are many different
> medicines, so you will have to work with the doctors to find out what
> works
> for you daughter. It takes time to find the right combination. My seizures
> are not fully controlled,but with the medicine I am on they are not as bad
> as they were when I was younger.There is plenty of information here and if
> you need anything, write anytime. Take care.
>
> Tammy
>
> On Sun, Mar 29, 2009 at 8:02 PM, cathiebutler
> <cathiebutler@
>
>> my 7 yr old daughter was just diagnosed with epilepsy this past
>> friday,
>> she had 2 grand mal seizures in less than a week. I have been reading
> about
>> the different meds and this is very scary!!!! I would love to hear from
>> anywone who could give me advice, answers,anything!
>>
>> cathie
>>
>>
>>
>
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
>
> Messages in this topic (156)
> ____________
> 5.5. Re: new member
> Posted by: "kteribond@aol.
> Date: Mon Mar 30, 2009 5:41 pm ((PDT))
>
> Hi Cathie,
> Welcome to the group. I have an 8 year old daughter that has had
> Epilepsy
> since she was 3 years old. She mainly has complex partials that usually
> occur
>
> in her sleep, which many times generalize into GM.
> What medication have they started your daughter on? My daughter was
> initially on Trileptal, but is now on Depakote and Keppra.
> It's a very scary process in the beginning dealing with all of this.
> But,
>
> it does get better. You will learn a lot from the others in this group.
> If I can help you in anyway please let me know.
> Kim
>
>
> Kim Bond
> Scrapbook Advisor #1440
> Picture Perfect Scrapbook Co;
> _www.scraplifesart.
> Contact me to get a copy of our NEW Catalog!!
>
>
>
>
>
>
> In a message dated 3/29/2009 4:05:40 P.M. Pacific Standard Time,
> cathiebutler@
>
>
>
>
> my 7 yr old daughter was just diagnosed with epilepsy this past friday,
> she
> had 2 grand mal seizures in less than a week. I have been reading about
> the
> different meds and this is very scary!!!! I would love to hear from
> anywone
> who could give me advice, answers,anything!
>
> cathie
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
>
> Messages in this topic (156)
> ____________
> ____________
> 6. Epilepsy Research Results
> Posted by: "Belinda Shale"
> belinda.shale@
> Date: Mon Mar 30, 2009 7:03 am ((PDT))
>
> Hi Everyone
>
> Just to let you know that our epilepsy research results are now avaiable
> online
>
> http://www.thepatie
>
> Please do feel free to use the infomation as you see fit. However we do
> ask
> that you link to the page if you choose to do so
>
> Rgds
>
> Belinda
>
>
>
>
>
>
> Messages in this topic (1)
> ____________
> ____________
> 7. Re: JILL [epilepsy] Re: EEG Result, seizure newbie
> Posted by: "Uggie" ugmcginnis@embarqma
> Date: Mon Mar 30, 2009 7:26 am ((PDT))
>
> Jill -
> Ur husband needs to tell the drs that are treating him that he has a
> sensitivity to the IV dye. I know when I have to get an MRI with IV dye -
> I
> have to take a few days prior of additional (allergy) meds - so I don't
> have
> a reaction to that dye. U may check into this and see if his drs have it
> listed about his reactions to the IV dye.
>
> Just a thought
> Uggie
>
> -------Original Message-----
>
> From: Jill Gunzel
> Date: 3/28/2009 7:53:08 PM
> To: epilepsy@yahoogroup
> Subject: [epilepsy] Re: EEG Result, seizure newbie
>
> Dear Group,
> It was so interesting to read someone's post about EEG results not
> really showing anything (unless something happened to be going on
> during the test).
> I'm new to the group. My husband (57 yrs old, otherwise extremely
> healthy)) had a first time seizure, March 10. So far, the CT scan
> was clear, the blood test showed a definite tonic/clonic seizure
> (high CO2), he's been sore for almost 3 weeks (back xray showed no
> break), MRI showed a bright signal in the T2 area (so we'll retake it
> in April), and the EEG is next week. His blood tests showed kidney
> functions were way off a few days after the seizure. And he managed
> to get two vein infections from the IV's (from the ambulance and also
> from the dye with the MRI...he had an infection last year from the IV
> for a colonoscopy. Not sure why he's so prone to those.)
>
> The MRI report was slightly scary, because they gave those
> speculations on why there was a bright signal. I wish I hadn't
> looked up the terms they used (demylinating process, which is MS, and
> low grade neoplasm...which could be an early stage of a nasty
> tumor). But it was only "possibilities"
> doc's
> comment was, "They don't have a clue!" And I figure neither of
> those
> possibilities were big enough to have caused the seizure....so I"m
> trying to convince myself it was either always that way, or a result
> of the seizure, which was listed as another less likely possibility.
>
> The morning of the seizure, he was sitting at his computer and just
> keeled over onto the floor with the seizure. He'd been extremely
> constipate (like for a week), had taken 2 Exlax the night before and
> 2 that morning, and had just had a major dump. He was also taking
> cold meds for a nasty cold, and he'd had a lot of coffee. So, if
> electrolyte imbalance and/or viruses can be the cause....I'd like to
> think that was enough to be the case.
>
> For now, we're waiting for the EEG, the next MRI, the bloodtests to
> confirm kidneys are back....and an okay to start driving again. If
> any of you have a different take on this, I'd be very interested in
> hearing from you.
> Best wishes to all,
> Jill
>
>
>
> ------------
>
> Just a friendly reminder: Please remember to sign your post and remember
> to
> clean up messages when you reply to them. This is especially important if
> you are on digest. This not only helps out the list owner but, it makes
> messages much easier to read when they arrive in our inboxes.
>
> Yahoo! Groups Links
>
>
>
>
> ____________
>
> No virus found in this incoming message.
> Checked by AVG - www.avg.com
> Version: 8.0.238 / Virus Database: 270.11.31/2028 - Release Date: 03/28/09
> 07:16:00
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
>
> Messages in this topic (1)
> ____________
> ____________
> 8a. Re: Seizures and Medications
> Posted by: "Karina Castillo" castillokarina88@
> castillokarina88
> Date: Mon Mar 30, 2009 8:00 am ((PDT))
>
> Well hardly, i used to be taking lamictal but now my doctor changed my
> prescription so now I am taking keppra 500mg.
> 1/2 in the morning, 1 in the pm, and 1 daily. And I feel fine as now.
> What medication is she taking? I used to take lamictal.
>
>
>
>
> ____________
> From: Barbara Allen <barb.allen50@
> To: epilepsy@yahoogroup
> Sent: Thursday, March 26, 2009 8:20:37 PM
> Subject: Re: [epilepsy] Re: Seizures and Medications
>
>
> My daughter takes 500 mg of Lamictal morning and night. Last night we went
> to
> see a local Epilepsy doc speak, he said she should not be taking the
> lamictal at
> night because it can cause insomnia (which has been the case with her), so
> she
> is going to talk to her doc. He also said that the generic drug has a
> 20%/20%
> which means the drug companies only have to come within 20% more or less
> of the
> effectivemness of the brand name drug so depending on how frequent and
> severe
> the seizures are you may want to stay away from generic.
>
> --- On Thu, 3/26/09, Doris <dorisellen@
>
> From: Doris <dorisellen@
> Subject: [epilepsy] Re: Seizures and Medications
> To: epilepsy@yahoogroup s.com
> Date: Thursday, March 26, 2009, 6:57 PM
>
> Hi Marie,
> Very glad Lamictal working well for you and the super thing is that you
> are
> going to persue your education online. That is a terrific idea. It will be
> an
> accomplishment and it will be super satisfying. There is so much we can do
> online. I am on the Lamictal too, 200mg twice daily. I still have seizures
> but
> they are nocturnal and it happens usually twice a month. I have my license
> too
> and it is very meaningful to me too. For a super amount of years I did not
> have
> it since seizures were during the day. Left temporal lobectomy changed
> that
> about 12 years ago. I hope you have real good insurance since the Lamictal
> is
> expensive unless you use the generic type. If by chance you do use
> generic,
> please fill me in as I keep thinking maybe sometime I will be able to
> change to
> that because of the cost involved. Good luck and fill in on how you are
> doing.
> Take care.
> Doris
>
> --- In epilepsy@yahoogroup s.com, Danny Newell <bigboy46@.. .> wrote:
>>
>> i know some meds work different on people, i did get a vasectomy at a
>> very
> young age. i was only 20 years old.
>>
>>
>>
>>
>>
>>
>>
>> --- On Thu, 3/26/09, moblondielpn <annaackermann@ ...> wrote:
>>
>> From: moblondielpn <annaackermann@ ...>
>> Subject: [epilepsy] Seizures and Medications
>> To: epilepsy@yahoogroup s.com
>> Date: Thursday, March 26, 2009, 8:41 AM
>>
>> Seems they are different for each of us. I take lamitcal for years now.
>> I
> works
>> for me. Wont say haven't had any but it has helped me.
>> I am back at work. I can drive. of course we never forget that in one
>> day
> that
>> can all change and I could start having them frequently again.
>> I had to have a hysterectomy about the same time I started lamitcal I
> always
>> had seizures and
>> bad ones around that "time of the month" So that also helped I
> am
>> sure.
>> I am a L.P.N. and now Hubby and i have decided for me to try to get my
>> R.N.online . take my time and just try. Even if studies takes a few
> years.. I
>> always even as a child that I am not so smart. Killed to many brain
>> cells
> I
>> guess. My husband says that I am smarter than I think I am. But being
> treated
>> like I was mentally challenged as a child didn't help I'm sure. No
> one
>> explained to me anything about seizures and My childhood is a lifetime
> movie for
>> sure.
>> So I will try a subject at a time. I need some encouragement please.
>> Marie
>>
>>
>>
>> ------------ --------- --------- ------
>>
>> Just a friendly reminder: Please remember to sign your post and remember
> to
>> clean up messages when you reply to them. This is especially important
>> if
> you
>> are on digest. This not only helps out the list owner but, it makes
> messages
>> much easier to read when they arrive in our inboxes.
>>
>> Yahoo! Groups Links
>>
>>
>>
>>
>>
>> [Non-text portions of this message have been removed]
>>
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
>
> Messages in this topic (19)
> ____________
> ____________
> 9a. Re: Does This Happen To You? [Annette]
> Posted by: "TIMOTHY BALDWIN" tbb1@prodigy.
> Date: Mon Mar 30, 2009 8:05 am ((PDT))
>
> Millie,
>
> Complex-partial siezures are unconscious partial siezures. My seizures in
> one
> area of my brain is all that is nechacerly to show that they are partial.
> And that my unconsciousness shows that defines that they are complex.
> Thank
> you.
>
> Timothy Baldwin < tbb1@prodigy.
>
> --- On Mon, 3/30/09, mylmy@bnin.net <mylmy@bnin.net> wrote:
>
> From: mylmy@bnin.net <mylmy@bnin.net>
> Subject: Re: [epilepsy] Re: Does This Happen To You? [Annette]
> To: epilepsy@yahoogroup
> Date: Monday, March 30, 2009, 5:26 AM
>
>
>
>
>
>
> Annette,
>
> You usually pass out with a GM. With a Complex partial
> or an absence or other kinds- you don't pass out.-- your
> brain just isn't working like usual. You don't hear
> what is going on and sometimes can't talk. There are 25
> different kinds of szs.
>
> Millie
>
>> Hi Millie: I don't get Medicare I get "Minnesota
> Care" Because I am
>> from Minnesota-- I getmy meds Cheap cuz the State pays for it and I pay
> a
>> CO---Pay. Oh, I was taking to a friend and she said the seizures I was
>> have were GM. But I don't understand I was sitting>>>>
> I thought the GM
>> is ONLY when you fall to the floor?
>>
>>
>>
>> From: mylmy@bnin.net <mylmy@bnin.net>
>> Subject: Re: [epilepsy] Re: Does This Happen To You? [Annette]
>> To: epilepsy@yahoogroup s.com
>> Date: Saturday, March 28, 2009, 8:44 AM
>>
>>
>>
>>
>>
>>
>> Annette,
>>
>> Before Medicare d -- I had been getting my meds almost free.
>> Dilantin (brand name) was free. Then Medicare D came in and
>> they changed it to generic. I had a complex partial-- or
>> something like it and my Dr. ordered the brand name. I had
>> been sz free for 4 years. I've been on a combination of Dilantin
>> and Phenabarb for over 20 years.
>>
>> Millie
>>
>>> Hi Millie : My Insurance that I get thru the State does't cover
>>> regular
>>> EP meds I was on it but now I sopose cuz the Country's pinching
>>> pennies
>>> they want to try me out on Generic . I have been on these 2
> types of
>>> Meds 4 years. Maybe I will have 2 b a Guinne Pig again ( which I
>>> really
>>> don't) Maybe it takes longer/ who knows thanks 4 your
> reply.
>>> ~~Annette~~
>>>
>>> --- On Fri, 3/27/09, mylmy@bnin.net <mylmy@bnin.net> wrote:
>>>
>>>
>>> From: mylmy@bnin.net <mylmy@bnin.net>
>>> Subject: Re: [epilepsy] Re: Does This Happen To You? [Annette]
>>> To: epilepsy@yahoogroup s.com
>>> Date: Friday, March 27, 2009, 8:47 PM
>>>
>>>
>>>
>>>
>>>
>>>
>>> Anne,
>>>
>>> Generic meds for EP don't seem to work too well. I know I need
>>> to take the Brand name. It is more expensive but if it works--fine.
>>>
>>> Or maybe you need another med. There are 30 different kinds of meds.
>>> Or a combination. Each person has to find the one that works for them.
>>>
>>> Millie
>>>
>>>> Hi At first it was Grandmal then I started haveing
> what are
>>>> called
>>>> Complex Partial, and Simple Partial I just called them Medium
> Seizures
>>>> or
>>>> Small Seizures cuz to me that is what they are to me also
> "Clusters"
>>>> haveing small ones right after another. I am sopose to take
> Lorazapam 1
>>>> mg. When it does that, But Latnight I was on the computer and
> I had 3
>>>> (
>>>> what I call) Complex Partial and very different I just sat at my
> chair
>>>> andjust shook and then my head hurt like my brain was rattled
>>>> (headache)
>>>> Then I read that Lamictial makes ya not sleepy I doesnt matter
> what
>>>> time
>>>> I take my meds I still can't fall asleep. I am now on Both
> Generic
>>>> Keppra & Generic Lamictal to me I think it isn't
> working cuz I have
>>>> not had these many seizures in years. ~Hope this answers your
>>>> questions~~ ~~Annette~~
>>>>
>>>> --- On Fri, 3/27/09, pat040394 <ltpat228@comcast. net>
> wrote:
>>>>
>>>>
>>>> From: pat040394 <ltpat228@comcast. net>
>>>> Subject: [epilepsy] Re: Does This Happen To You? [Annette]
>>>> To: epilepsy@yahoogroup s.com
>>>> Date: Friday, March 27, 2009, 5:18 PM
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>> Annette - what kind of epilepsy were you diagnosed?
>>>>
>>>> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~
>>>>
>>>> --- In epilepsy@yahoogroup s.com, Annette Holm <annetteholm69@
> ...>
>>>> wrote:
>>>>>
>>>>> I don't really know What I do know is that I have G.M
> (grandmals, Cp
>>>>> -complex partial what I call med. seizures and Sp
> Simple Partial
>>>>> what I call little ones cuz they last only sec.) I have a
> V.N.S.
>>>>> Vagel Nerve Stimalator I like it . going on 8 yrs now
> .
>>>>> ~~Annette~~
>>>>>
>>>>> --- On Wed, 3/25/09, pat040394 <ltpat228@.. .> wrote:
>>>>>
>>>>>
>>>>> From: pat040394 <ltpat228@.. .>
>>>>> Subject: [epilepsy] Re: Does This Happen To You?
>>>>> To: epilepsy@yahoogroup s.com
>>>>> Date: Wednesday, March 25, 2009, 7:09 PM
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>> Well I called my Neuro today and left a message with her
> Nurses about
>>>>> my
>>>>> episode.
>>>>> For me it's paramount as hopefully this will aide her in
> my diagnosis.
>>>>>
>>>>> What kind of epilepsy do you have?
>>>>>
>>>>> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~
>>>>>
>>>>> --- In epilepsy@yahoogroup s.com, Annette Holm
> <annetteholm69@ ...>
>>>>> wrote:
>>>>> >
>>>>> > ok-- I was standing outside A Hospital cuz my
> stepdaughter just
>>>>> had twins and felt weird I could feel my head turn to the
> right ( I
>>>>> knew it wasn't sopose to ) I new it was an involentary
> movement (
>>>>> there were other people standing near me) but didn't
> notice . which
>>>>> was ok don't want to freak them out ( some of the people
> know about
>>>>> my seizures) it also was 2-3 pm. and also I felt like
> I was
>>>>> spacy~~!! It just seemed really odd I sopose I should tell
> my neuro
>>>>> X-Cept I don't want her to(up) the meds . I hate that
> when they do
>>>>> that.
>>>>> >
>>>>> > --- On Wed, 3/25/09, pat040394 <ltpat228@ .> wrote:
>>>>> >
>>>>> >
>>>>> > From: pat040394 <ltpat228@ .>
>>>>> > Subject: [epilepsy] Re: Does This Happen To You?
>>>>> > To: epilepsy@yahoogroup s.com
>>>>> > Date: Wednesday, March 25, 2009, 5:19 PM
>>>>> >
>>>>> >
>>>>> >
>>>>> >
>>>>> >
>>>>> >
>>>>> > Please tell me, Annette, what exactly happened with you.
>>>>> >
>>>>> > My episode occured mid afternoon.
>>>>> >
>>>>> > ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~
>>>>> >
>>>>> > --- In epilepsy@yahoogroup s.com, Annette Holm
> <annetteholm69@ ...>
>>>>> wrote:
>>>>> > >
>>>>> > > Hi~~ Yes, this has happened to me about 3 wks
> ago, I wasn't at
>>>>> the
>>>>> computer, but I have noticed it a few times, I don't
> know what I'd
>>>>> call it I think it is a type of seizure cp-----sp ? I
> don't know
>>>>> if this has happened to you besides being on the computer I
> have
>>>>> noticed when I play . certain games on the computer this
> happenes
>>>>> to me . ~~Annette~~ I cannot say about others cuz they are
> all
>>>>> different just like we are.
>>>>> > >
>>>>> > > --- On Wed, 3/25/09, pat040394 <ltpat228@ .>
> wrote:
>>>>> > >
>>>>> > >
>>>>> > > From: pat040394 <ltpat228@ .>
>>>>> > > Subject: [epilepsy] Does This Happen To You?
>>>>> > > To: epilepsy@yahoogroup s.com
>>>>> > > Date: Wednesday, March 25, 2009, 3:08 PM
>>>>> > >
>>>>> > >
>>>>> > >
>>>>> > >
>>>>> > >
>>>>> > >
>>>>> > > Last Sunday I was sitting here at my computer when
> it occured to
>>>>> me
>>>>> I was staring, then my neck and head started to pull/twitch to
> the
>>>>> right. I think when the pulling began, that's when I
> realized
>>>>> something was odd and I shook my body so it would stop. I
> really had
>>>>> to concentrate and force myself so my neck would go back
> right.
>>>>> > >
>>>>> > > I really can't say how long it lasted but maybe
> up to 30 seconds?
>>>>> > > I say this as when I stare, I truly don't know
> how much time goes
>>>>> by.
>>>>> > > Afterwards I felt worn out for some reason.
>>>>> > >
>>>>> > > As most of you know, I'm still being tested and
> haven't yet been
>>>>> diagnosed with epilepsy, although my Neurologist suspects
> absence
>>>>> petit mals.
>>>>> > >
>>>>> > >
>>>>> > >
>>>>> > >
>>>>> > >
>>>>> > >
>>>>> > >
>>>>> > >
>>>>> > >
>>>>> > >
>>>>> > >
>>>>> > >
>>>>> > >
>>>>> > >
>>>>> > >
>>>>> > >
>>>>> > >
>>>>> > >
>>>>> > >
>>>>> > > [Non-text portions of this message have been
> removed]
>>>>> > >
>>>>> >
>>>>> >
>>>>> >
>>>>> >
>>>>> >
>>>>> >
>>>>> >
>>>>> >
>>>>> >
>>>>> >
>>>>> >
>>>>> >
>>>>> >
>>>>> >
>>>>> >
>>>>> >
>>>>> >
>>>>> >
>>>>> >
>>>>> > [Non-text portions of this message have been removed]
>>>>> >
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>> [Non-text portions of this message have been removed]
>>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>> [Non-text portions of this message have been removed]
>>>>
>>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>> [Non-text portions of this message have been removed]
>>>
>>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>> [Non-text portions of this message have been removed]
>>
>>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
>
> Messages in this topic (23)
> ____________
> 9b. Re: Does This Happen To You? [Annette]
> Posted by: "mylmy@bnin.net" mylmy@bnin.net mylmy
> Date: Mon Mar 30, 2009 9:18 am ((PDT))
>
> Timorthy,
>
> Do you pass out or are you not aware of what is going on?
>
> Millie
>
>
>
>> Millie,
>>
>> Complex-partial siezures are unconscious partial siezures. My seizures
>> in
>> one area of my brain is all that is nechacerly to show that they are
>> partial. And that my unconsciousness shows that defines that they are
>> complex. Thank you.
>>
>> Timothy Baldwin < tbb1@prodigy.
>>
>> --- On Mon, 3/30/09, mylmy@bnin.net <mylmy@bnin.net> wrote:
>>
>> From: mylmy@bnin.net <mylmy@bnin.net>
>> Subject: Re: [epilepsy] Re: Does This Happen To You? [Annette]
>> To: epilepsy@yahoogroup
>> Date: Monday, March 30, 2009, 5:26 AM
>>
>>
>>
>>
>>
>>
>> Annette,
>>
>> You usually pass out with a GM. With a Complex partial
>> or an absence or other kinds- you don't pass out.-- your
>> brain just isn't working like usual. You don't hear
>> what is going on and sometimes can't talk. There are 25
>> different kinds of szs.
>>
>> Millie
>>
>>> Hi Millie: I don't get Medicare I get "Minnesota
> Care" Because I am
>>> from Minnesota-- I getmy meds Cheap cuz the State pays for it and I
> pay
>>> a
>>> CO---Pay. Oh, I was taking to a friend and she said the seizures I
> was
>>> have were GM. But I don't understand I was
> sitting>>>> I thought the
>>> GM
>>> is ONLY when you fall to the floor?
>>>
>>>
>>>
>>> From: mylmy@bnin.net <mylmy@bnin.net>
>>> Subject: Re: [epilepsy] Re: Does This Happen To You? [Annette]
>>> To: epilepsy@yahoogroup s.com
>>> Date: Saturday, March 28, 2009, 8:44 AM
>>>
>>>
>>>
>>>
>>>
>>>
>>> Annette,
>>>
>>> Before Medicare d -- I had been getting my meds almost free.
>>> Dilantin (brand name) was free. Then Medicare D came in and
>>> they changed it to generic. I had a complex partial-- or
>>> something like it and my Dr. ordered the brand name. I had
>>> been sz free for 4 years. I've been on a combination of Dilantin
>>> and Phenabarb for over 20 years.
>>>
>>> Millie
>>>
>>>> Hi Millie : My Insurance that I get thru the State does't
> cover
>>>> regular
>>>> EP meds I was on it but now I sopose cuz the Country's
> pinching
>>>> pennies
>>>> they want to try me out on Generic . I have been on these 2
> types of
>>>> Meds 4 years. Maybe I will have 2 b a Guinne Pig again (
> which I
>>>> really
>>>> don't) Maybe it takes longer/ who knows thanks 4 your
> reply.
>>>> ~~Annette~~
>>>>
>>>> --- On Fri, 3/27/09, mylmy@bnin.net <mylmy@bnin.net> wrote:
>>>>
>>>>
>>>> From: mylmy@bnin.net <mylmy@bnin.net>
>>>> Subject: Re: [epilepsy] Re: Does This Happen To You? [Annette]
>>>> To: epilepsy@yahoogroup s.com
>>>> Date: Friday, March 27, 2009, 8:47 PM
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>> Anne,
>>>>
>>>> Generic meds for EP don't seem to work too well. I know I need
>>>> to take the Brand name. It is more expensive but if it
> works--fine.
>>>>
>>>> Or maybe you need another med. There are 30 different kinds of
> meds.
>>>> Or a combination. Each person has to find the one that works for
> them.
>>>>
>>>> Millie
>>>>
>>>>> Hi At first it was Grandmal then I started
> haveing what are
>>>>> called
>>>>> Complex Partial, and Simple Partial I just called them
> Medium
>>>>> Seizures
>>>>> or
>>>>> Small Seizures cuz to me that is what they are to me also
>>>>> "Clusters"
>>>>> haveing small ones right after another. I am sopose to take
> Lorazapam
>>>>> 1
>>>>> mg. When it does that, But Latnight I was on the computer
> and I had
>>>>> 3
>>>>> (
>>>>> what I call) Complex Partial and very different I just sat at
> my chair
>>>>> andjust shook and then my head hurt like my brain was rattled
>>>>> (headache)
>>>>> Then I read that Lamictial makes ya not sleepy I doesnt
> matter what
>>>>> time
>>>>> I take my meds I still can't fall asleep. I am now on
> Both Generic
>>>>> Keppra & Generic Lamictal to me I think it
> isn't working cuz I
>>>>> have
>>>>> not had these many seizures in years. ~Hope this answers
> your
>>>>> questions~~ ~~Annette~~
>>>>>
>>>>> --- On Fri, 3/27/09, pat040394 <ltpat228@comcast. net>
> wrote:
>>>>>
>>>>>
>>>>> From: pat040394 <ltpat228@comcast. net>
>>>>> Subject: [epilepsy] Re: Does This Happen To You? [Annette]
>>>>> To: epilepsy@yahoogroup s.com
>>>>> Date: Friday, March 27, 2009, 5:18 PM
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>> Annette - what kind of epilepsy were you diagnosed?
>>>>>
>>>>> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~
>>>>>
>>>>> --- In epilepsy@yahoogroup s.com, Annette Holm
> <annetteholm69@ ...>
>>>>> wrote:
>>>>>>
>>>>>> I don't really know What I do know is that I have
> G.M (grandmals,
>>>>>> Cp
>>>>>> -complex partial what I call med. seizures and Sp
> Simple Partial
>>>>>> what I call little ones cuz they last only sec.) I
> have a V.N.S.
>>>>>> Vagel Nerve Stimalator I like it . going on 8 yrs
> now .
>>>>>> ~~Annette~~
>>>>>>
>>>>>> --- On Wed, 3/25/09, pat040394 <ltpat228@.. .>
> wrote:
>>>>>>
>>>>>>
>>>>>> From: pat040394 <ltpat228@.. .>
>>>>>> Subject: [epilepsy] Re: Does This Happen To You?
>>>>>> To: epilepsy@yahoogroup s.com
>>>>>> Date: Wednesday, March 25, 2009, 7:09 PM
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>> Well I called my Neuro today and left a message with her
> Nurses about
>>>>>> my
>>>>>> episode.
>>>>>> For me it's paramount as hopefully this will aide her
> in my
>>>>>> diagnosis.
>>>>>>
>>>>>> What kind of epilepsy do you have?
>>>>>>
>>>>>> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~
>>>>>>
>>>>>> --- In epilepsy@yahoogroup s.com, Annette Holm
> <annetteholm69@ ...>
>>>>>> wrote:
>>>>>> >
>>>>>> > ok-- I was standing outside A Hospital cuz
> my stepdaughter
>>>>>> just
>>>>>> had twins and felt weird I could feel my head turn to
> the right ( I
>>>>>> knew it wasn't sopose to ) I new it was an
> involentary movement (
>>>>>> there were other people standing near me) but didn't
> notice . which
>>>>>> was ok don't want to freak them out ( some of the
> people know about
>>>>>> my seizures) it also was 2-3 pm. and also I felt
> like I was
>>>>>> spacy~~!! It just seemed really odd I sopose I should
> tell my neuro
>>>>>> X-Cept I don't want her to(up) the meds . I hate
> that when they do
>>>>>> that.
>>>>>> >
>>>>>> > --- On Wed, 3/25/09, pat040394 <ltpat228@ .>
> wrote:
>>>>>> >
>>>>>> >
>>>>>> > From: pat040394 <ltpat228@ .>
>>>>>> > Subject: [epilepsy] Re: Does This Happen To You?
>>>>>> > To: epilepsy@yahoogroup s.com
>>>>>> > Date: Wednesday, March 25, 2009, 5:19 PM
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> > Please tell me, Annette, what exactly happened with
> you.
>>>>>> >
>>>>>> > My episode occured mid afternoon.
>>>>>> >
>>>>>> > ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~
>>>>>> >
>>>>>> > --- In epilepsy@yahoogroup s.com, Annette Holm
> <annetteholm69@ ...>
>>>>>> wrote:
>>>>>> > >
>>>>>> > > Hi~~ Yes, this has happened to me about 3 wks
> ago, I wasn't at
>>>>>> the
>>>>>> computer, but I have noticed it a few times, I don't
> know what I'd
>>>>>> call it I think it is a type of seizure cp-----sp
> ? I don't know
>>>>>> if this has happened to you besides being on the
> computer I have
>>>>>> noticed when I play . certain games on the computer this
> happenes
>>>>>> to me . ~~Annette~~ I cannot say about others cuz they
> are all
>>>>>> different just like we are.
>>>>>> > >
>>>>>> > > --- On Wed, 3/25/09, pat040394 <ltpat228@
> .> wrote:
>>>>>> > >
>>>>>> > >
>>>>>> > > From: pat040394 <ltpat228@ .>
>>>>>> > > Subject: [epilepsy] Does This Happen To You?
>>>>>> > > To: epilepsy@yahoogroup s.com
>>>>>> > > Date: Wednesday, March 25, 2009, 3:08 PM
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > > Last Sunday I was sitting here at my computer
> when it occured to
>>>>>> me
>>>>>> I was staring, then my neck and head started to
> pull/twitch to the
>>>>>> right. I think when the pulling began, that's when I
> realized
>>>>>> something was odd and I shook my body so it would stop. I
> really had
>>>>>> to concentrate and force myself so my neck would go back
> right.
>>>>>> > >
>>>>>> > > I really can't say how long it lasted but
> maybe up to 30 seconds?
>>>>>> > > I say this as when I stare, I truly don't
> know how much time goes
>>>>>> by.
>>>>>> > > Afterwards I felt worn out for some reason.
>>>>>> > >
>>>>>> > > As most of you know, I'm still being tested
> and haven't yet been
>>>>>> diagnosed with epilepsy, although my Neurologist suspects
> absence
>>>>>> petit mals.
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > > [Non-text portions of this message have been
> removed]
>>>>>> > >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> > [Non-text portions of this message have been removed]
>>>>>> >
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
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>>>>>>
>>>>>>
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>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>> [Non-text portions of this message have been removed]
>>>>>>
>>>>>
>>>>>
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>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
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> Messages in this topic (23)
> ____________
> 9c. Re: Does This Happen To You? [Annette]
> Posted by: "TIMOTHY BALDWIN" tbb1@prodigy.
> Date: Mon Mar 30, 2009 1:01 pm ((PDT))
>
> YES. Mostly all times when one occurs at home, where I live by my self
> without
> a witness to inform me of them. I'm not aware of a seizure. Unless, I was
> injured in the fall, or if I may have been sitting in a good
> chair watching
> TV and spilled something I'd been drinking
> spill anything, I wouldn't be aware that I missed a min. or few of the
> show. During one of latest seizures, I was walking from the
> refrigerator.
> probably just stood up and got back and did something without being fully
> aware
> that anything until 30 mins. later when I noticed that I was confused, I
> was
> in the right place but didn't remember my route there or those I was to
> take
> I just walked and thought that I was having a simple partial seizure. I
> didn't know that my confusion was due to being in the post ictal period
> of a complex-partial that had happed at home earlier when I was
> returning from the refridgerator. It took place, I dropped what was in my
> hand. I then stood up and wasn't aware of the seizure happening or
> anything or what I was doing or had been in my hand. Thirty mins. later, I
> still wasn't aware of previous seizure. But I noticed that I
> was confused and thought that I was having a simple partial taking place
> in my
> brain at that time. I wasn't aware of a seizure earlier which placed me
> in the post ictal period of the complex partial that had occured .
> Later, after work I was back at home and near the refidg. I saw the
> remains
> from it. And, I figured that the confusion I was aware later when on my
> way
> to work was related to it.
>
> Thanks for hearing it,
> Tim Baldwin < tbb1@prodigy.
>
>
> --- On Mon, 3/30/09, mylmy@bnin.net <mylmy@bnin.net> wrote:
>
> From: mylmy@bnin.net <mylmy@bnin.net>
> Subject: Re: [epilepsy] Re: Does This Happen To You? [Annette]
> To: epilepsy@yahoogroup
> Date: Monday, March 30, 2009, 12:16 PM
>
>
>
>
>
>
> Timorthy,
>
> Do you pass out or are you not aware of what is going on?
>
> Millie
>
>> Millie,
>>
>> Complex-partial siezures are unconscious partial siezures. My seizures
>> in
>> one area of my brain is all that is nechacerly to show that they are
>> partial. And that my unconsciousness shows that defines that they are
>> complex. Thank you.
>>
>> Timothy Baldwin < tbb1@prodigy. net >
>>
>> --- On Mon, 3/30/09, mylmy@bnin.net <mylmy@bnin.net> wrote:
>>
>> From: mylmy@bnin.net <mylmy@bnin.net>
>> Subject: Re: [epilepsy] Re: Does This Happen To You? [Annette]
>> To: epilepsy@yahoogroup s.com
>> Date: Monday, March 30, 2009, 5:26 AM
>>
>>
>>
>>
>>
>>
>> Annette,
>>
>> You usually pass out with a GM. With a Complex partial
>> or an absence or other kinds- you don't pass out.-- your
>> brain just isn't working like usual. You don't hear
>> what is going on and sometimes can't talk. There are 25
>> different kinds of szs.
>>
>> Millie
>>
>>> Hi Millie: I don't get Medicare I get "Minnesota
> Care" Because I am
>>> from Minnesota-- I getmy meds Cheap cuz the State pays for it and I
> pay
>>> a
>>> CO---Pay. Oh, I was taking to a friend and she said the seizures I
> was
>>> have were GM. But I don't understand I was
> sitting>>>> I thought the
>>> GM
>>> is ONLY when you fall to the floor?
>>>
>>>
>>>
>>> From: mylmy@bnin.net <mylmy@bnin.net>
>>> Subject: Re: [epilepsy] Re: Does This Happen To You? [Annette]
>>> To: epilepsy@yahoogroup s.com
>>> Date: Saturday, March 28, 2009, 8:44 AM
>>>
>>>
>>>
>>>
>>>
>>>
>>> Annette,
>>>
>>> Before Medicare d -- I had been getting my meds almost free.
>>> Dilantin (brand name) was free. Then Medicare D came in and
>>> they changed it to generic. I had a complex partial-- or
>>> something like it and my Dr. ordered the brand name. I had
>>> been sz free for 4 years. I've been on a combination of Dilantin
>>> and Phenabarb for over 20 years.
>>>
>>> Millie
>>>
>>>> Hi Millie : My Insurance that I get thru the State does't
> cover
>>>> regular
>>>> EP meds I was on it but now I sopose cuz the Country's
> pinching
>>>> pennies
>>>> they want to try me out on Generic . I have been on these 2
> types of
>>>> Meds 4 years. Maybe I will have 2 b a Guinne Pig again (
> which I
>>>> really
>>>> don't) Maybe it takes longer/ who knows thanks 4 your
> reply.
>>>> ~~Annette~~
>>>>
>>>> --- On Fri, 3/27/09, mylmy@bnin.net <mylmy@bnin.net> wrote:
>>>>
>>>>
>>>> From: mylmy@bnin.net <mylmy@bnin.net>
>>>> Subject: Re: [epilepsy] Re: Does This Happen To You? [Annette]
>>>> To: epilepsy@yahoogroup s.com
>>>> Date: Friday, March 27, 2009, 8:47 PM
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>> Anne,
>>>>
>>>> Generic meds for EP don't seem to work too well. I know I need
>>>> to take the Brand name. It is more expensive but if it
> works--fine.
>>>>
>>>> Or maybe you need another med. There are 30 different kinds of
> meds.
>>>> Or a combination. Each person has to find the one that works for
> them.
>>>>
>>>> Millie
>>>>
>>>>> Hi At first it was Grandmal then I started
> haveing what are
>>>>> called
>>>>> Complex Partial, and Simple Partial I just called them
> Medium
>>>>> Seizures
>>>>> or
>>>>> Small Seizures cuz to me that is what they are to me also
>>>>> "Clusters"
>>>>> haveing small ones right after another. I am sopose to take
> Lorazapam
>>>>> 1
>>>>> mg. When it does that, But Latnight I was on the computer
> and I had
>>>>> 3
>>>>> (
>>>>> what I call) Complex Partial and very different I just sat at
> my chair
>>>>> andjust shook and then my head hurt like my brain was rattled
>>>>> (headache)
>>>>> Then I read that Lamictial makes ya not sleepy I doesnt
> matter what
>>>>> time
>>>>> I take my meds I still can't fall asleep. I am now on
> Both Generic
>>>>> Keppra & Generic Lamictal to me I think it
> isn't working cuz I
>>>>> have
>>>>> not had these many seizures in years. ~Hope this answers
> your
>>>>> questions~~ ~~Annette~~
>>>>>
>>>>> --- On Fri, 3/27/09, pat040394 <ltpat228@comcast. net>
> wrote:
>>>>>
>>>>>
>>>>> From: pat040394 <ltpat228@comcast. net>
>>>>> Subject: [epilepsy] Re: Does This Happen To You? [Annette]
>>>>> To: epilepsy@yahoogroup s.com
>>>>> Date: Friday, March 27, 2009, 5:18 PM
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>> Annette - what kind of epilepsy were you diagnosed?
>>>>>
>>>>> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~
>>>>>
>>>>> --- In epilepsy@yahoogroup s.com, Annette Holm
> <annetteholm69@ ...>
>>>>> wrote:
>>>>>>
>>>>>> I don't really know What I do know is that I have
> G.M (grandmals,
>>>>>> Cp
>>>>>> -complex partial what I call med. seizures and Sp
> Simple Partial
>>>>>> what I call little ones cuz they last only sec.) I
> have a V.N.S.
>>>>>> Vagel Nerve Stimalator I like it . going on 8 yrs
> now .
>>>>>> ~~Annette~~
>>>>>>
>>>>>> --- On Wed, 3/25/09, pat040394 <ltpat228@.. .>
> wrote:
>>>>>>
>>>>>>
>>>>>> From: pat040394 <ltpat228@.. .>
>>>>>> Subject: [epilepsy] Re: Does This Happen To You?
>>>>>> To: epilepsy@yahoogroup s.com
>>>>>> Date: Wednesday, March 25, 2009, 7:09 PM
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>> Well I called my Neuro today and left a message with her
> Nurses about
>>>>>> my
>>>>>> episode.
>>>>>> For me it's paramount as hopefully this will aide her
> in my
>>>>>> diagnosis.
>>>>>>
>>>>>> What kind of epilepsy do you have?
>>>>>>
>>>>>> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~
>>>>>>
>>>>>> --- In epilepsy@yahoogroup s.com, Annette Holm
> <annetteholm69@ ...>
>>>>>> wrote:
>>>>>> >
>>>>>> > ok-- I was standing outside A Hospital cuz
> my stepdaughter
>>>>>> just
>>>>>> had twins and felt weird I could feel my head turn to
> the right ( I
>>>>>> knew it wasn't sopose to ) I new it was an
> involentary movement (
>>>>>> there were other people standing near me) but didn't
> notice . which
>>>>>> was ok don't want to freak them out ( some of the
> people know about
>>>>>> my seizures) it also was 2-3 pm. and also I felt
> like I was
>>>>>> spacy~~!! It just seemed really odd I sopose I should
> tell my neuro
>>>>>> X-Cept I don't want her to(up) the meds . I hate
> that when they do
>>>>>> that.
>>>>>> >
>>>>>> > --- On Wed, 3/25/09, pat040394 <ltpat228@ .>
> wrote:
>>>>>> >
>>>>>> >
>>>>>> > From: pat040394 <ltpat228@ .>
>>>>>> > Subject: [epilepsy] Re: Does This Happen To You?
>>>>>> > To: epilepsy@yahoogroup s.com
>>>>>> > Date: Wednesday, March 25, 2009, 5:19 PM
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> > Please tell me, Annette, what exactly happened with
> you.
>>>>>> >
>>>>>> > My episode occured mid afternoon.
>>>>>> >
>>>>>> > ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~
>>>>>> >
>>>>>> > --- In epilepsy@yahoogroup s.com, Annette Holm
> <annetteholm69@ ...>
>>>>>> wrote:
>>>>>> > >
>>>>>> > > Hi~~ Yes, this has happened to me about 3 wks
> ago, I wasn't at
>>>>>> the
>>>>>> computer, but I have noticed it a few times, I don't
> know what I'd
>>>>>> call it I think it is a type of seizure cp-----sp
> ? I don't know
>>>>>> if this has happened to you besides being on the
> computer I have
>>>>>> noticed when I play . certain games on the computer this
> happenes
>>>>>> to me . ~~Annette~~ I cannot say about others cuz they
> are all
>>>>>> different just like we are.
>>>>>> > >
>>>>>> > > --- On Wed, 3/25/09, pat040394 <ltpat228@
> .> wrote:
>>>>>> > >
>>>>>> > >
>>>>>> > > From: pat040394 <ltpat228@ .>
>>>>>> > > Subject: [epilepsy] Does This Happen To You?
>>>>>> > > To: epilepsy@yahoogroup s.com
>>>>>> > > Date: Wednesday, March 25, 2009, 3:08 PM
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > > Last Sunday I was sitting here at my computer
> when it occured to
>>>>>> me
>>>>>> I was staring, then my neck and head started to
> pull/twitch to the
>>>>>> right. I think when the pulling began, that's when I
> realized
>>>>>> something was odd and I shook my body so it would stop. I
> really had
>>>>>> to concentrate and force myself so my neck would go back
> right.
>>>>>> > >
>>>>>> > > I really can't say how long it lasted but
> maybe up to 30 seconds?
>>>>>> > > I say this as when I stare, I truly don't
> know how much time goes
>>>>>> by.
>>>>>> > > Afterwards I felt worn out for some reason.
>>>>>> > >
>>>>>> > > As most of you know, I'm still being tested
> and haven't yet been
>>>>>> diagnosed with epilepsy, although my Neurologist suspects
> absence
>>>>>> petit mals.
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > >
>>>>>> > > [Non-text portions of this message have been
> removed]
>>>>>> > >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> >
>>>>>> > [Non-text portions of this message have been removed]
>>>>>> >
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>> [Non-text portions of this message have been removed]
>>>>>>
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>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
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>>>>>
>>>>>
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>>>>>
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>>>>
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>
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>
>
>
> Messages in this topic (23)
> ____________
> ____________
> 10a. Re: GOOD MORNING TO ALL
> Posted by: "Kirsten" kirsty815@yahoo.
> Date: Mon Mar 30, 2009 8:25 am ((PDT))
>
> Hey Tammy,
> Our Meghan is 6 years old, she goes by meggers, meg-a-moo, moo moo,
> bug-a-boo
> and various others I'm sure she'll totally be embarrassed by in a few
> years..lol
> The National Walk for Epilepsy is in D.C. but you can fundraise and
> virtual
> walk or walk in your own community on the day (they'll send you your
> t-shirts and give you press release info if you want to get the media
> involved
> in your local participation)
> we
> raised $130 not to bad considering I'm not a pushy sales person..lol Next
> year we're going to try and make it to D.C. and get our local media
> involved. There are other walks you can participate in, but you have to
> check
> your local Epilepsy Foundation chapter to see where they are. I know here
> in
> Tampa they have one in December called the reindeer run, it's a 5k or a
> mile
> walk with kids, they give the kids bells and antlers, very cute!
>
> Kirst
>
> --- In epilepsy@yahoogroup
>>
>> Hi all,
>>
>> You all have too much to say! I can barely keep up with you. I was
>> five digests behind this afternoon! I'm doing to just do all my
>> replies to the two remaining digests in this email. BTW, it would
>> really help me and others who are on digest format if you would trim
>> your quoted material when replying. A lot of times, there is about 3
>> or 4 times as much quoted material in each digest as new material.
>>
>> Annette, I am insured by my state's health risk sharing pool, which
>> means that I pay premiums like an insurance plan, but it has similar
>> restrictions to medicare. I think that in most cases, if your doctor
>> indicates that the brand name medication is "medically
> necessary" you
>> can get the brand name approved. We were able to do this for Megan,
>> in spite of the new drug policy indicating that no brand name drugs
>> would be covered if there was a generic available. We pay a higher co-
>> pay ($30 for each Rx), but it's well worth it in terms of Megan's
>
>> better seizure control.
>>
>> Also for Annette: Grand mal seizures are also known as generalized
>> tonic clonic seizures. You can fall to the floor, but if you are
>> seated, you might remain so even while having a tonic clonic seizure.
>> You generally lose consciousness during the seizure, and your muscles
>> spasm or contract. When Megan feels like she is going to have a
>> seizure and can let us know, we either sit her down or get her to
>> lie down so she doesn't injure herself while falling. That said,
>> Megan generally has only superficial injuries as the result of her
>> seizures. Bruises or small abrasions are usually all that happens.
>>
>> It is possible for you to have more than one kind of seizure. When
>> you were sitting, was there anyone around to describe what was
>> happening? Do you have any recollection of that time? Best wishes in
>> getting this figured out.
>>
>> For Kirst and Meghan: first off, how old is your Meghan? My Megan is
>> 19 and will be 20 in May. We also call our Megan "Meggers"
> although
>> she is also known as Monkey and Magpie by various people :) I am
>> unfamiliar with the Walk for Epilepsy. Do they only do this in DC, or
>> are there events staged in other cities in the US on the same day?
>>
>> For Melissa and Steve's reply: Steve, I think it is so great that
>> your surgery had such good results for you. Melissa, since
>> medications do not work for you and you apparently have a focus of
>> seizure activity in your brain, I certainly would encourage you to
>> explore the option of surgery.
>>
>> For Jill: I can understand your worry and concern for your husband.
>> It sounds like he has only had one seizure so far. While it is wise
>> to look into it, this one seizure could just be an anomaly. Best
>> wishes to you both.
>>
>> For travilin2, if you feel this second doctor is a better fit for
>> you, and you don't have much confidence in the way your case is being
>
>> handled by the first doctor and his office, I think changing would be
>> a good idea. You might want to investigate the reputation and
>> credentials of doctor number 2 before making the switch, just to be
>> sure.
>>
>> OK, this is long and I've only read the one digest, so I'll send
> this
>> now.
>>
>> Tammy
>>
>
>
>
>
>
>
>
> Messages in this topic (6)
> ____________
> ____________
> 11. Re: drugs for seizures (Millie)
> Posted by: "Jill Gunzel" gunzel@cox.net jgunzel
> Date: Mon Mar 30, 2009 9:29 am ((PDT))
>
> Millie,
> Thanks so much for your comments on meds and seizures. I'm hoping we
> won't need them, but we're already talking about the "what if this
>
> wasn't a flukey one-time seizure". I speculated about medicines and
> your post confirmed I was correct. I speculated that it was just
> like with Restless Legs Syndrome. The FDA approves some drugs for
> it, the doctors also prescribe other drugs that are approved for
> other situations, and to make it really exciting, we find that what
> works for one doesn't work for the other....or even makes it worse!
>
> With RLS, coffee is a bad thing for some, but for others it will stop
> and RLS attack. Go figure!
>
> I love your attitude about not caring about the cause....you got it,
> you're dealing with it. Good for you!!!
> Jill
>
>
>
>
>
>
> Messages in this topic (1)
> ____________
> ____________
> 12a. Re: EEG Result
> Posted by: "debbie riley" islandbabie5942004@
> islandbabie5942004
> Date: Mon Mar 30, 2009 1:25 pm ((PDT))
>
> hun dont give up. it took my hubby 5 years to finally have a egg to show
> something we thougtht the doc tought we was crazy but 2 weeks ago he had a
> siezure and it show up on the egg and now he is on meds doing better
> please take
> care
>
> --- On Fri, 3/27/09, pat040394 <ltpat228@comcast.
>
>
> From: pat040394 <ltpat228@comcast.
> Subject: [epilepsy] EEG Result
> To: epilepsy@yahoogroup
> Date: Friday, March 27, 2009, 10:32 PM
>
>
>
>
>
>
> It was normal.
>
> Had an absence petit mal last Sunday but noooooooooo, the friggin EEG
> taken 1
> week earlier was normal!
>
> I've had it, man - just about had it.
>
> All these tests and still no diagnosis.
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
>
> Messages in this topic (7)
>
>
>
> Just a friendly reminder: Please remember to sign your post and remember
> to
> clean up messages when you reply to them. This is especially important if
> you
> are on digest. This not only helps out the list owner but, it makes
> messages
> much easier to read when they arrive in our inboxes.
>
>
>
> ------------
> Yahoo! Groups Links
>
>
>
> ------------
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