My auras differ, I get a wet dog smell or a bitter metalic taste in my mouth.
My seizures start with me getting extremely hot, I then zone out. My husband describes it as turning off a switch. I just stare into space. They can last from a couple of seconds to a few minutes. The longest I have had was 5 minutes. When I came out of it I felt like I had ran a marathon. From what I have been told I don't have any clonic (twitching) motions. I know everyone has different types of seizure activity, some worse than others. I have been lucky (?) to not had a major clonic/tonic (grand mal) seizure. Although the 5 minute seizure scared the hell out of me and caused me to lose my drivers license for 6 months.
So, be careful get your neurologist to prescribe an anticonvulsant, even a low dose, since you are on Lyrica so you don't have any episodes while you are driving. It isn't any fun relying on someone else to haul you around.
--- On Sat, 4/4/09, pat040394 <ltpat228@comcast.
From: pat040394 <ltpat228@comcast.
Subject: [epilepsy] Re: Frontal Lobe Partial Complex
To: epilepsy@yahoogroup
Date: Saturday, April 4, 2009, 3:01 PM
Well thank you kindly for your reply, Pamela. :)
What's it like when you experience an aura?
And, when you had the temporal seizures, what happened?
~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~
--- In epilepsy@yahoogroup s.com, Pamela Allen <pamltcrn@.. .> wrote:
>
> Pat,
> I have temporal lobe partial complex seizures, so I kinda know what you're going through. I also have had every test known to man related to them. I went to Johns Hopkins for a 7 day monitoring in attempt to pinpoint the exact location of the seizures, and of course I didn't have any seizures and I refused to stay any longer. I am very well controlled on Lamictal, I do have to keep my stress level down and avoid certain triggers but otherwise haven't had a major event in 4 years. Some minor events, and lots of auras, but nothing major.
> I'd bypass the EEG, if not for the cost, just because it's likely to show nothing and ask the neuro to put you on a low dose med.
> Pam
>
> --- On Sat, 4/4/09, pat040394 <ltpat228@.. .> wrote:
>
>
> From: pat040394 <ltpat228@.. .>
> Subject: [epilepsy] Frontal Lobe Partial Complex
> To: epilepsy@yahoogroup s.com
> Date: Saturday, April 4, 2009, 12:30 PM
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> I saw my Neurologist a few days ago explaining how 10 days ago when I was sitting here at my computer mid afternoon, I realized my neck was twitching to the right.
> Then I came 'out of it' and was okay, although felt tired, a diferent kind of tired.
> And for the 1st time to anyone, I revealed when I have these episodes, my left hand feels odd, almost weak and limp.
>
> You see, my brother was born with brain damage and subsequently has cerebral palsy and epilepsy as well as an inoperable cyst inside his brain.
> When I was a kid and we played with others like on a ball field and such, he'd fall to the ground in a grand mall and I'd run to him, remove 1 of my flip flops and shove it in his mouth. Then I managed to get him home where he'd have another grand mall flipping on the ground and twitching like mad..
> It was awful.
>
> So I never wanted my Mom to know about me cuz we're her only kids; and I don't want her to have both children afflicted, especially now that she's 82.
>
> Anyways, my Neuro says my last episode sounds like a frontal lobe partial complex seizure. I looked that up on the Internet and it also refers me to temporal lobe sz which sounds more like me. Am wondering if you have these - what it's like when they happen - and what meds you're on.
>
> She referred me to another Specialist who does 24 hour EEGs.......and for a good laugh, I called and they want $2,395 - ahahahaha!
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> My Neuro upped my Lyrica to 500mg daily and added if I have another seizure, she'll put me on either Kepra or Lamactil [sp].
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