Pat,
I have temporal lobe partial complex seizures, so I kinda know what you're going through. I also have had every test known to man related to them. I went to Johns Hopkins for a 7 day monitoring in attempt to pinpoint the exact location of the seizures, and of course I didn't have any seizures and I refused to stay any longer. I am very well controlled on Lamictal, I do have to keep my stress level down and avoid certain triggers but otherwise haven't had a major event in 4 years. Some minor events, and lots of auras, but nothing major.
I'd bypass the EEG, if not for the cost, just because it's likely to show nothing and ask the neuro to put you on a low dose med.
Pam
--- On Sat, 4/4/09, pat040394 <ltpat228@comcast.
From: pat040394 <ltpat228@comcast.
Subject: [epilepsy] Frontal Lobe Partial Complex
To: epilepsy@yahoogroup
Date: Saturday, April 4, 2009, 12:30 PM
I saw my Neurologist a few days ago explaining how 10 days ago when I was sitting here at my computer mid afternoon, I realized my neck was twitching to the right.
Then I came 'out of it' and was okay, although felt tired, a diferent kind of tired.
And for the 1st time to anyone, I revealed when I have these episodes, my left hand feels odd, almost weak and limp.
You see, my brother was born with brain damage and subsequently has cerebral palsy and epilepsy as well as an inoperable cyst inside his brain.
When I was a kid and we played with others like on a ball field and such, he'd fall to the ground in a grand mall and I'd run to him, remove 1 of my flip flops and shove it in his mouth. Then I managed to get him home where he'd have another grand mall flipping on the ground and twitching like mad.
It was awful.
So I never wanted my Mom to know about me cuz we're her only kids; and I don't want her to have both children afflicted, especially now that she's 82.
Anyways, my Neuro says my last episode sounds like a frontal lobe partial complex seizure. I looked that up on the Internet and it also refers me to temporal lobe sz which sounds more like me. Am wondering if you have these - what it's like when they happen - and what meds you're on.
She referred me to another Specialist who does 24 hour EEGs.......and for a good laugh, I called and they want $2,395 - ahahahaha!
My Neuro upped my Lyrica to 500mg daily and added if I have another seizure, she'll put me on either Kepra or Lamactil [sp].
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