Hi Tim,
My best friend's dad has been taking dilantin for years. The only time he has break through seizures is when they try to put him on a new medication...there's something to be said for "an oldie but goodie". If it works, don't change it, but if you're like me, you'll go through a lot of combos trying to find one!
Elizabeth
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Millie Myers <mylmy@gogreencroft.net> wrote:
>Susan,
>
>If by addictive -- you mean you need more all the time.-- that is not in my case.
>I've taken the same amount all the time.
>
>The only side effects I have of either of the 2 meds-- Dilantin and Pheno is that
>it affects my gums. They tell me that Dilantin does that. and my dentist works
>with that.
>
>Millie
>
>
> ----- Original Message -----
> From: Susan Wain
> To: epilepsy@yahoogroups.com
> Sent: Monday, December 26, 2011 5:45 PM
> Subject: Re: [epilepsy] phenobarbital?
>
>
>
> My docs refused to put me on pheono as they siad it was addictive and had many side effects
>
> ________________________________
> From: Millie Myers <mylmy@gogreencroft.net>
> To: epilepsy@yahoogroups.com
> Sent: Saturday, December 24, 2011 12:47 PM
> Subject: Re: [epilepsy] phenobarbital?
>
>
>
>
> Timothy,
>
> That is a possibility. I've often wandered why they take you off
> of something that is working and put you on something that doesn't.
>
> I have been on Dilantin and Phenabarb for over 20 years. They are two
> of the oldest meds and so are not so expensive. It 's been 5 years since
> I have had a sz. Have you asked your Dr why he doesn't put you on Dilantin
> and Phenabarb?
>
> Millie
>
> ----- Original Message -----
> From: TIMOTHY
> To: epilepsy@yahoogroups.com
> Sent: Saturday, December 24, 2011 11:58 AM
> Subject: [epilepsy] phenobarbital?
>
> Someone besides me,
>
> After having my first two seizures,a family doctor did the right thing by starting me on Dilanin & phenobarbital.I wasn't aware of any seizures for the next four years,before telling a friend of my epilepsy and being on medicine to prevent seizures.They told me they'd
> been diagnosed w/epilepsy,until another doctor said they had seizures that were myoclonic.Their advice,go a neurologist.
> At first visit,Dr.replaced phenobarbital with something else.I noticed a partial seizure in a few days,so he tried another,this was repeated again and again.Before adding a third medicine,I thought he'd find it someday.He would've done better to remain at the beginning or go back there and never change anything.
> Then in '91 he replaced Dilantin with Tegretol explaining that was related to having used it for over ten years,then I had double vision.He replaced it with something else.This went on through alot of medicines which all had carbamazapene in them.Why not just go back to the phenobarbital & Dilantin at the beginning.I bet every time a doctor writes a prescription,they get a kickback from a pharmaceutical company because of selling their product.That might be why he dropped phenobarbital,who'd give him a kickback?
>
> Timothy Baldwin
>
> [Non-text portions of this message have been removed]
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
>[Non-text portions of this message have been removed]
>
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