Hi Millie
When I use the word 'addictive' I mean after a bit you need like Susan says, more and more as the strength of
them eventually wear off. I have one am one right now and at first they were like had to be lying down before
I would fall down they put me out and relaxed me for a bit sure. After a while they got worse and worse and
weren't working and finally when asked dr. she told me to take an hour or two before going to bed (have my
seizures in night). Am sure they don't even help there any more yet can't go off them but very very slowly as
they have mixed right in with my usual meds that I have a seizure for sure if try. I did it once and it just
don't work.
Hope you had a good holiday and all were well and healthy and happy.
Julie
Julie Hope
epilepsyhealth@sasktel.net
----- Original Message -----
From: "Millie Myers" <mylmy@gogreencroft.net>
To: <epilepsy@yahoogroups.com>
Sent: Tuesday, December 27, 2011 1:20 AM
Subject: Re: [epilepsy] phenobarbital?
Susan,
If by addictive -- you mean you need more all the time.-- that is not in my case.
I've taken the same amount all the time.
The only side effects I have of either of the 2 meds-- Dilantin and Pheno is that
it affects my gums. They tell me that Dilantin does that. and my dentist works
with that.
Millie
----- Original Message -----
From: Susan Wain
To: epilepsy@yahoogroups.com
Sent: Monday, December 26, 2011 5:45 PM
Subject: Re: [epilepsy] phenobarbital?
My docs refused to put me on pheono as they siad it was addictive and had many side effects
________________________________
From: Millie Myers <mylmy@gogreencroft.net>
To: epilepsy@yahoogroups.com
Sent: Saturday, December 24, 2011 12:47 PM
Subject: Re: [epilepsy] phenobarbital?
Timothy,
That is a possibility. I've often wandered why they take you off
of something that is working and put you on something that doesn't.
I have been on Dilantin and Phenabarb for over 20 years. They are two
of the oldest meds and so are not so expensive. It 's been 5 years since
I have had a sz. Have you asked your Dr why he doesn't put you on Dilantin
and Phenabarb?
Millie
----- Original Message -----
From: TIMOTHY
To: epilepsy@yahoogroups.com
Sent: Saturday, December 24, 2011 11:58 AM
Subject: [epilepsy] phenobarbital?
Someone besides me,
After having my first two seizures,a family doctor did the right thing by starting me on Dilanin &
phenobarbital.I wasn't aware of any seizures for the next four years,before telling a friend of my epilepsy
and being on medicine to prevent seizures.They told me they'd
been diagnosed w/epilepsy,until another doctor said they had seizures that were myoclonic.Their advice,go a
neurologist.
At first visit,Dr.replaced phenobarbital with something else.I noticed a partial seizure in a few days,so he
tried another,this was repeated again and again.Before adding a third medicine,I thought he'd find it
someday.He would've done better to remain at the beginning or go back there and never change anything.
Then in '91 he replaced Dilantin with Tegretol explaining that was related to having used it for over ten
years,then I had double vision.He replaced it with something else.This went on through alot of medicines which
all had carbamazapene in them.Why not just go back to the phenobarbital & Dilantin at the beginning.I bet
every time a doctor writes a prescription,they get a kickback from a pharmaceutical company because of selling
their product.That might be why he dropped phenobarbital,who'd give him a kickback?
Timothy Baldwin
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